Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

– Mitch Faile, the next popstar of Parkinson’s

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

– David Leventhal, the director of the Mark Morris Dance Group’s Dance for PD programme, talking about the new Moving Through Glass software

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

– taken from the newly launched 1HourMore e-book

“It actually has changed my life for the better. It led to my spiritual awakening”

– Bob Beattie, author of Tremors in the Universe

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Take part in The Parkinson Tulip Project

This April, The World Parkinson Coalition is launching The Parkinson Tulip Project – a global collaborative photography campaign to raise awareness of the world’s fastest growing neurological disease. As part of the campaign, which is supported by Supernus Pharmaceuticals, members of the Parkinson’s community are invited to share a photo of themselves with tulips – the official symbol of Parkinson’s disease. The project will run until April 2022, and all images shared by the community will be displayed at the sixth World Parkinson Congress in Barcelona, Spain. Additionally, every photo submitted will be entered into The Parkinson Tulip Project raffle. The World Parkinson Coalition hopes that the project will “give a face and name to those impacted by Parkinson’s” and “inspire the community, reminding people touched by Parkinson’s disease that they are not alone”.

Looking after dental health with Parkinson’s disease

Parkinson’s disease symptoms and medications can cause dental health problems – including difficulty cleaning teeth and increased tooth decay. Now, a study from researchers in Brazil has offered dental care recommendations to help people living with the condition. Analysing data from 14 studies, the scientists highlighted people with Parkinson’s can have “reduced quality of oral health and hygiene”. Their advice included routine teeth-brushing, as well as regular trips to a dentist. They also suggested brushing teeth with both hands, as symptoms like tremor and rigidity could mean using one hand is more difficult. The researchers wrote: “Although oral diseases are largely preventable, they are among the most prevalent diseases globally, thus creating a public health problem. “Despite the relatively low level of evidence in studies on oral health among patients with Parkinson’s disease, the data retrieved for this systematic review allowed us to create a set of simple guidelines.”

Why Parkinson’s disease research can’t ignore sex differences

Researchers at the University of Maryland, US, have highlighted the growing body of research that suggests male and female patients are affected differently by Parkinson’s disease. Parkinson’s disease is caused by the death of cells in the brain and nervous system. These cellular changes are associated with the collapse of the blood-brain barrier – a border of cells that protects the brain from damaging molecules. In the article – published in scientific journal ‘APL Bioengineering’ – the researchers observed that this barrier behaves differently in male and female patients. The fact that some research suggests women tend to have a stronger blood-brain barrier, for example, could explain why Parkinson’s disease is more common in men. Dr Alisa Morss Clyne, one of the article’s authors, says this research has been an “awakening”. She adds: “You cannot ignore sex differences. My goal is to inspire people to include sex differences in their research.”

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Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

“It actually has changed my life for the better. It led to my spiritual awakening”

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Luxembourgers ruffle some feathers for Parkinson’s awareness

Recipes & Nutrition

Parkinson’s power foods: one-day menus to nourish your brain and body

Interviews

World Parkinson Congress 2019 Bloggers: Kirk Hall

Take part in The Parkinson Tulip Project

Looking after dental health with Parkinson’s disease

Why Parkinson’s disease research can’t ignore sex differences

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Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

“It actually has changed my life for the better. It led to my spiritual awakening”

Last Month

Next Month

Share this story

Comments

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Europe

Luxembourgers ruffle some feathers for Parkinson’s awareness

Recipes & Nutrition

Parkinson’s power foods: one-day menus to nourish your brain and body

Interviews

World Parkinson Congress 2019 Bloggers: Kirk Hall

Take part in The Parkinson Tulip Project

Looking after dental health with Parkinson’s disease

Why Parkinson’s disease research can’t ignore sex differences

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