Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

– Mitch Faile, the next popstar of Parkinson’s

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

– David Leventhal, the director of the Mark Morris Dance Group’s Dance for PD programme, talking about the new Moving Through Glass software

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

– taken from the newly launched 1HourMore e-book

“It actually has changed my life for the better. It led to my spiritual awakening”

– Bob Beattie, author of Tremors in the Universe

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The European Parkinson’s Disease Association (EPDA) has signed the Dying to Work Charter – a pledge protecting the workplace rights of people with serious conditions. The charter – part of the Trade Union Congress’ wider Dying to Work campaign – has so far protected over half a million workers in the UK. The Dying to Work campaign group, chaired by MEP Rory Palmer, is calling on the European Union to amend its current legislation. The campaign is asking for serious conditions to be identified as a ‘protected characteristic’ – meaning employees would enjoy a protected period after diagnosis which would ensure the couldn’t be unfairly dismissed. Russell Patten, secretary general at the EPDA, said: “At the EPDA, we are committed to improving employment conditions, reducing stigma and ensuring accessibility to essential services for all people with Parkinson’s disease.” Image: Rory Palmer MEP (left) and Russell Patten, secretary general at the EPDA…

New wearable device could counteract gait

Scientists at the National University of Ireland Galway have created a wearable device that they believe will help people with Parkinson’s to walk more easily. The device, named cueStim, is worn around the waist and delivers fixed rhythmic sensory stimulation to the wearer. This will counteract ‘freezing of gait’ symptoms that are often experienced by people living with the condition. The scientists collaborated with professionals from UK medical board NHS Greater Glasgow and Clyde to test the device, and found that it significantly reduced the time taken for a person with Parkinson’s to complete walking tasks. Gearóid Ó Laighin, professor of electrical engineering at NUI Galway, said: “We are now seeking additional clinical partners to work with NUI Galway in carrying out a comprehensive long-term clinical evaluation of cueStim in enhancing the quality of life of people with Parkinson’s disease through a funded programme of research.”

Could robots replace animals in Parkinson’s medical trials?

Researchers at Heriot-Watt University, Edinburgh, UK, are testing new treatments for Parkinson’s disease on robots. Academics at the university – who are collaborating with the International Institute for Neurosciences of Natal, Brazil – will use computer models of the human brain to simulate the effect medication has on people living with Parkinson’s. The study – which is the first of its kind – could lead to a major shift in the way that Parkinson’s treatments are tested in the future, and potentially put an end to animal testing. Dr Patricia A Vargas, the lead collaborator of the study said: “Our hope is two-fold – to reduce and replace animals in research, and to help and inform new therapies, treatments and even the cure for this debilitating disease.”

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Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

“It actually has changed my life for the better. It led to my spiritual awakening”

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Who said what: QoTW 25.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 25 June 2015

Prep: Cook: Serves:

“As I recorded the song, it became my coping mechanism; a personal anthem which invoked a laugh or smile with family and friends as we dealt with symptoms at home”

“People love having a dance-based toolkit that is user-friendly and appears in their field of vision – they love that it’s hands-free and uses their voice to navigate the programme”

I’d like to suggest what my wife says: always try to be as independent as possible. Don’t spoil us! Don’t pamper us! Let’s play it cool and try as hard as possible to lead a normal life.

“It actually has changed my life for the better. It led to my spiritual awakening”

Last Month

Next Month

Share this story

Comments

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Campaigners win petition for ‘student carer’ status on uni application forms

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Oven-baked fish in butter and mixed herbs

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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