Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

– US Senator Johnny Isakson insists his Parkinson’s diagnosis will not affect his 2016 bid for re-election

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

– Olie Westheimer, executive director of Brooklyn Parkinson Group, reflects on the international success of Dance for PD

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

– Kate Matheson, a digital entreupreneur and leading businesswoman – diagnosed with Young Onset Parkinson’s at the age of 35 – has been appointed National Ambassador for Australian charity, Shake It Up

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

– Joy Esterberg, a Parkinon’s patient who tested new Google Glass software as part of her PD dance class

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Global update

#UniteForParkinsons campaign wins ‘highly commended’ award

Parkinson’s Life and partners recognised in ‘Best Charity Campaign’ a

Vegetarian ‘Beet Wellington’ with mushrooms, aubergines and garlic

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Now there’s an app to remind your loved ones to take their Parkinson’s meds

Introducing the voice reminder service for Parkinson’s carers

Can a digital pen “revolutionise” Parkinson’s diagnosis?

A Parkinson’s diagnosing pen has sealed a five-year manufacturing deal from stationery brand Stabilo. The Neuromotor Pen– developed by Scottish medical devices company Manus Neurodynamica – analyses a user’s hand and limb movements as they perform a number of drawing tests on a tablet. Microchips within the device record the data of even the smallest of movements, and determine whether a user has Parkinson’s in a simple and non-invasive way. Researchers believe the pen could be adapted in the future for use in monitoring patients with Alzheimer’s, multiple sclerosis and those that have suffered from a stroke. Peter Kämpf, director of research and development at Schwan-Stabilo, said: “This novel product can potentially revolutionise the diagnosis and treatment of neuromotor diseases, and we are excited to be involved in its development and in helping bring it to market.”

Scotland sees soaring Parkinson’s rate

The number of drugs being prescribed for people living with Parkinson’s in Scotland, UK, has increased by more than a quarter. National Health Service (NHS) figures, published by the Scottish Conservative party, show that the number of items being dispensed for the condition have leapt by 28% – from 260,355 in 2010 to 333,167 in 2019. The sharp rise is thought to be a consequence of Scotland’s ageing population and has prompted calls from bodies, including Parkinson’s UK, for government action to ensure the NHS can cope with the increasing number of Parkinson’s cases. Annie Macleod, director of Parkinson’s UK Scotland, said: “Over the next decade we expect to see numbers increase by a fifth.” She added that reasons for such a spike could include “growing numbers of people living with more complex Parkinson’s, or changes to the ways that specialists are managing Parkinson’s”.

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

More than a quarter of people living with Parkinson’s were initially misdiagnosed, according to new research from charity Parkinson’s UK. As part of the study, 2,000 people with Parkinson’s were asked a series of questions about their diagnosis. According to results, 26% of the participants were originally told they did not have Parkinson’s – with almost half of them being treated for a different condition. The poll also found that women were more likely to be misdiagnosed than men. Katie Goates, professional engagement manager at Parkinson’s UK, said: “One of the biggest challenges for Parkinson’s research is that there is no definitive test for Parkinson’s, and as a result we’ve heard of people being misdiagnosed with anything from a frozen shoulder or anxiety to a stroke. “Our survey has shown that because of this people are being left in limbo and seeing their health deteriorate, which is unacceptable.”

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Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

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Global update

#UniteForParkinsons campaign wins ‘highly commended’ award

Recipes & Nutrition

Vegetarian ‘Beet Wellington’ with mushrooms, aubergines and garlic

Carers' Corner

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Can a digital pen “revolutionise” Parkinson’s diagnosis?

Scotland sees soaring Parkinson’s rate

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

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Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

Last Month

Next Month

Share this story

Comments

Related articles

Global update

#UniteForParkinsons campaign wins ‘highly commended’ award

Recipes & Nutrition

Vegetarian ‘Beet Wellington’ with mushrooms, aubergines and garlic

Carers' Corner

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Can a digital pen “revolutionise” Parkinson’s diagnosis?

Scotland sees soaring Parkinson’s rate

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

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