Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

– US Senator Johnny Isakson insists his Parkinson’s diagnosis will not affect his 2016 bid for re-election

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

– Olie Westheimer, executive director of Brooklyn Parkinson Group, reflects on the international success of Dance for PD

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

– Kate Matheson, a digital entreupreneur and leading businesswoman – diagnosed with Young Onset Parkinson’s at the age of 35 – has been appointed National Ambassador for Australian charity, Shake It Up

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

– Joy Esterberg, a Parkinon’s patient who tested new Google Glass software as part of her PD dance class

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Europe

Farming friendships: in good company with Parkinson’s

A UK farm is giving a new sense of belonging to men with Parkinson’s

Rock and stroll in NYC – US Unity Walk

Thousands to join Michael J Fox and May May Ali at US Unity Walk

Billy Connolly “doing really well, funny as ever,” says wife

Pamela Stephenson gives an update on her husband’s condition

EPDA signs new charter on workplace rights

The European Parkinson’s Disease Association (EPDA) has signed the Dying to Work Charter – a pledge protecting the workplace rights of people with serious conditions. The charter – part of the Trade Union Congress’ wider Dying to Work campaign – has so far protected over half a million workers in the UK. The Dying to Work campaign group, chaired by MEP Rory Palmer, is calling on the European Union to amend its current legislation. The campaign is asking for serious conditions to be identified as a ‘protected characteristic’ – meaning employees would enjoy a protected period after diagnosis which would ensure the couldn’t be unfairly dismissed. Russell Patten, secretary general at the EPDA, said: “At the EPDA, we are committed to improving employment conditions, reducing stigma and ensuring accessibility to essential services for all people with Parkinson’s disease.” Image: Rory Palmer MEP (left) and Russell Patten, secretary general at the EPDA…

New wearable device could counteract gait

Scientists at the National University of Ireland Galway have created a wearable device that they believe will help people with Parkinson’s to walk more easily. The device, named cueStim, is worn around the waist and delivers fixed rhythmic sensory stimulation to the wearer. This will counteract ‘freezing of gait’ symptoms that are often experienced by people living with the condition. The scientists collaborated with professionals from UK medical board NHS Greater Glasgow and Clyde to test the device, and found that it significantly reduced the time taken for a person with Parkinson’s to complete walking tasks. Gearóid Ó Laighin, professor of electrical engineering at NUI Galway, said: “We are now seeking additional clinical partners to work with NUI Galway in carrying out a comprehensive long-term clinical evaluation of cueStim in enhancing the quality of life of people with Parkinson’s disease through a funded programme of research.”

Could robots replace animals in Parkinson’s medical trials?

Researchers at Heriot-Watt University, Edinburgh, UK, are testing new treatments for Parkinson’s disease on robots. Academics at the university – who are collaborating with the International Institute for Neurosciences of Natal, Brazil – will use computer models of the human brain to simulate the effect medication has on people living with Parkinson’s. The study – which is the first of its kind – could lead to a major shift in the way that Parkinson’s treatments are tested in the future, and potentially put an end to animal testing. Dr Patricia A Vargas, the lead collaborator of the study said: “Our hope is two-fold – to reduce and replace animals in research, and to help and inform new therapies, treatments and even the cure for this debilitating disease.”

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Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

Last Month

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Europe

Farming friendships: in good company with Parkinson’s

Global update

Rock and stroll in NYC – US Unity Walk

Perspectives

Billy Connolly “doing really well, funny as ever,” says wife

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

Last Month

Next Month

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Comments

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Europe

Farming friendships: in good company with Parkinson’s

Global update

Rock and stroll in NYC – US Unity Walk

Perspectives

Billy Connolly “doing really well, funny as ever,” says wife

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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