Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

– US Senator Johnny Isakson insists his Parkinson’s diagnosis will not affect his 2016 bid for re-election

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

– Olie Westheimer, executive director of Brooklyn Parkinson Group, reflects on the international success of Dance for PD

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

– Kate Matheson, a digital entreupreneur and leading businesswoman – diagnosed with Young Onset Parkinson’s at the age of 35 – has been appointed National Ambassador for Australian charity, Shake It Up

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

– Joy Esterberg, a Parkinon’s patient who tested new Google Glass software as part of her PD dance class

Last Month

Next Month

Go Back

Share this story

Comments

Global update

Parkinson’s in the news: May

A roundup of Parkinson’s news stories in May

My dad’s diagnosis inspired me to become an Ironman

Ironman athlete inspired by father's response to Parkinson's

On the road to Santiago – with just my Parkinson’s for company

Doctor travels 800km on solo Parkinson’s pilgrimage

Musical therapy study to receive $20 million in funding

The National Institutes of Health (NIH) is donating US $20 million to a medical trial researching the effects of musical therapy on brain conditions, including Parkinson’s. The trial will be carried out by the Sound Health initiative, a joint partnership between the NIH and The John F Kennedy Center for the Performing Arts. The initiative was created to expand current knowledge of how listening, performing and creating music could be harnessed for health and wellness. Francis S. Collins, director of the NIH, said: “We know that the beat of a metronome can steady the gait of someone with Parkinson’s disease, for example, but we don’t fully understand how that happens. “If we can pinpoint in the brain how music therapy works through the use of imaging and biomarkers, the hope is that we can improve its effectiveness and apply it more broadly to improve the lives of millions of people.”

Researchers develop automated system to diagnose Parkinson’s

In an international study, researchers from the US, Germany and Austria have used a non-invasive MRI method to develop an automated system that can diagnose Parkinson’s. As part of the study – published in medical journal ‘The Lancet Digital Health’ – researchers worked with 1,002 patients and used an imaging method that measures how water molecules diffuse in the brain. This helped them to identify where neurodegeneration is occurring. Researchers hope this will help improve the accuracy of early Parkinson’s diagnoses – which they estimate to be around 58%. Dr David Vaillancourt, who led the study, said: “Our method may help to reduce the number of misdiagnosed cases in the future. Since these diseases require unique treatment plans and different medications, and clinical trials testing new medications require the correct diagnosis, getting it right is important for patient care.”

MJFF announces $10 million competition for Parkinson’s

The Michael J Fox Foundation has launched the ‘Ken Griffin Alpha-synuclein Imaging Competition’ – a US $10 million programme aiming to develop a game-changing tool for Parkinson’s research. As part of the competition, participating teams will compete in a scientific race to build a device that is able to identify alpha-synuclein – a protein closely associated with Parkinson’s. Although almost everyone diagnosed with Parkinson’s has clumps of alpha-synuclein in the brain, these are currently only visible when analysing tissue during autopsies. The competition is named after Ken Griffin, CEO of US investment firm Citadel who has given US $7.5 million funding to the programme. Griffin – whose father has Parkinson’s – said: “If we have the imaging capability to observe the pathology that arises from protein-misfolding in real time, and understand how drugs are impacting people in real time, that would be a major advance.”

All fields required

First name*
Last name*
Email address*
Enter Email Confirm Email
Country of residence*
About me*
- I have Parkinson's disease
- I am a partner / carer / family / friend of someone who has Parkinson's
- I am a healthcare professional with an interest in Parkinson's
- I work for a Parkinson's disease organisation
- Other
CAPTCHA
*
- By proceeding you agree to our
Phone
This field is for validation purposes and should be left unchanged.

Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

Last Month

Next Month

Share this story

Comments

Global update

Parkinson’s in the news: May

Europe

My dad’s diagnosis inspired me to become an Ironman

Perspectives

On the road to Santiago – with just my Parkinson’s for company

Musical therapy study to receive $20 million in funding

Researchers develop automated system to diagnose Parkinson’s

MJFF announces $10 million competition for Parkinson’s

{title}

Subscribe

Who said what: QoTW 18.06.15

Perspectives

Author: AdminPublished: 18 June 2015

Prep: Cook: Serves:

“With Parkinson’s you have two choices: You can let it control you, or you can control it. And I’ve chosen to control it”

“People all around the world marvel at the joy they gain from dance and how much they learn in the classes”

“We aren’t victims, we’re strong, amazing people who happen to have a crummy disease, and we want a cure. Young onset Parkinson’s is real and it’s common. It’s not just a disease of older people”

“It is very sci-fi. What I like about it is that I can wear it at home. You have the little screen, and you can follow the moves”

Last Month

Next Month

Share this story

Comments

Related articles

Global update

Parkinson’s in the news: May

Europe

My dad’s diagnosis inspired me to become an Ironman

Perspectives

On the road to Santiago – with just my Parkinson’s for company

Musical therapy study to receive $20 million in funding

Researchers develop automated system to diagnose Parkinson’s

MJFF announces $10 million competition for Parkinson’s

{title}

Subscribe

Sign in