Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“If you want to blame somebody, blame it on the Parkinson’s”

– Mitch Faile, the lyrics to a light-hearted song he wrote on everyday difficulties of living with Parkinson’s

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

– Bas Bloem, after signing an agreement to bring innovative healthcare model to West Michigan

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

– Susan Guy, an animator making a stop motion documentary about Parkinson’s

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

– Enzo Cilenti, ‘Yezzan’ in hit TV series Game of Thrones, whose father was diagnosed three years ago

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Take part in The Parkinson Tulip Project

This April, The World Parkinson Coalition is launching The Parkinson Tulip Project – a global collaborative photography campaign to raise awareness of the world’s fastest growing neurological disease. As part of the campaign, which is supported by Supernus Pharmaceuticals, members of the Parkinson’s community are invited to share a photo of themselves with tulips – the official symbol of Parkinson’s disease. The project will run until April 2022, and all images shared by the community will be displayed at the sixth World Parkinson Congress in Barcelona, Spain. Additionally, every photo submitted will be entered into The Parkinson Tulip Project raffle. The World Parkinson Coalition hopes that the project will “give a face and name to those impacted by Parkinson’s” and “inspire the community, reminding people touched by Parkinson’s disease that they are not alone”.

Looking after dental health with Parkinson’s disease

Parkinson’s disease symptoms and medications can cause dental health problems – including difficulty cleaning teeth and increased tooth decay. Now, a study from researchers in Brazil has offered dental care recommendations to help people living with the condition. Analysing data from 14 studies, the scientists highlighted people with Parkinson’s can have “reduced quality of oral health and hygiene”. Their advice included routine teeth-brushing, as well as regular trips to a dentist. They also suggested brushing teeth with both hands, as symptoms like tremor and rigidity could mean using one hand is more difficult. The researchers wrote: “Although oral diseases are largely preventable, they are among the most prevalent diseases globally, thus creating a public health problem. “Despite the relatively low level of evidence in studies on oral health among patients with Parkinson’s disease, the data retrieved for this systematic review allowed us to create a set of simple guidelines.”

Why Parkinson’s disease research can’t ignore sex differences

Researchers at the University of Maryland, US, have highlighted the growing body of research that suggests male and female patients are affected differently by Parkinson’s disease. Parkinson’s disease is caused by the death of cells in the brain and nervous system. These cellular changes are associated with the collapse of the blood-brain barrier – a border of cells that protects the brain from damaging molecules. In the article – published in scientific journal ‘APL Bioengineering’ – the researchers observed that this barrier behaves differently in male and female patients. The fact that some research suggests women tend to have a stronger blood-brain barrier, for example, could explain why Parkinson’s disease is more common in men. Dr Alisa Morss Clyne, one of the article’s authors, says this research has been an “awakening”. She adds: “You cannot ignore sex differences. My goal is to inspire people to include sex differences in their research.”

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

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Global update

Love creating art? Here’s your chance to help raise awareness on World PD Day

Europe

Parkinson’s UK urges British government to change stance on disability assessments

Special reports

Reimagining Parkinson’s healthcare: a patient-focused plan

Take part in The Parkinson Tulip Project

Looking after dental health with Parkinson’s disease

Why Parkinson’s disease research can’t ignore sex differences

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

Related articles

Global update

Love creating art? Here’s your chance to help raise awareness on World PD Day

Europe

Parkinson’s UK urges British government to change stance on disability assessments

Special reports

Reimagining Parkinson’s healthcare: a patient-focused plan

Take part in The Parkinson Tulip Project

Looking after dental health with Parkinson’s disease

Why Parkinson’s disease research can’t ignore sex differences

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