Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“If you want to blame somebody, blame it on the Parkinson’s”

– Mitch Faile, the lyrics to a light-hearted song he wrote on everyday difficulties of living with Parkinson’s

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

– Bas Bloem, after signing an agreement to bring innovative healthcare model to West Michigan

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

– Susan Guy, an animator making a stop motion documentary about Parkinson’s

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

– Enzo Cilenti, ‘Yezzan’ in hit TV series Game of Thrones, whose father was diagnosed three years ago

Share this story

Comments

Fynlee Hateley: the 13-year-old Parkinson’s campaigner

The boy has raised UK £1,000 for the condition

“We know so much about Parkinson’s, but so little about people with Parkinson’s”

The book shining a new light on Parkinson’s research

Parkinson’s in the news: March

This month’s Parkinson’s disease stories from around the globe

Is there a link between Parkinson’s disease and blood vessel dysfunction?

Scientists in Slovakia have investigated the link between blood vessel dysfunction and Parkinson’s – and found that dopamine agonists may have an impact. The team studied the function of the endothelium – a membrane which lines the heart and blood vessels and helps control blood fluidity – in 41 people with the condition and 41 people without. Endothelial function was then measured through a parameter that assessed how easily blood could flow through the vessels. The results showed that while more people with Parkinson’s had endothelial dysfunction compared to those without, the difference did not reach statistical significance. However, the researchers noted that the findings suggested “an association between smoking, dopamine agonists, and impaired endothelial function” in those with the condition. Outlining the study’s limitations, the team noted that more research is needed to explore this potential link.

New swab test may help with Parkinson’s disease diagnosis

Researchers at the University of Manchester, UK, have drawn on one woman’s sense of smell to develop a swab test that may be used to detect Parkinson’s. The scientists used the test to analyse sebum (a type of oily substance on the skin) in 79 people with Parkinson’s and a control group of 71 healthy individuals. The team identified more than 4,000 different compounds in the participant samples – including 500 that were unique to those living with the condition. The test was developed with the help of Joy Milne from Perth, Scotland, whose unique sense of smell meant that she noticed a change in her late husband Les’s odour twelve years before he was diagnosed with Parkinson’s. Speaking to the BBC, Professor Perdita Barran, who led the research, described the test as potentially “transformative” – and said that the team hopes to roll the test out to people in…

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

A biobank is a collection of biological samples and data designed to be used for research. Now, researchers in Australia are working to build a biobank for Parkinson’s. As part of the project, the scientists are conducting scans of people that have been injected with fluorodopa – a substance that highlights dopamine in the brain. Participants include people living with Parkinson’s and a control group of people without the condition. The resulting database of scans will be used to create a national biobank that aims to inform treatment and research into the condition. Commenting on the study, Olivia Nasser – executive director at the Hospital Research Foundation, which is helping to fund the research – said, “Once we build up the biobank of scans, it can actually be used as an effective way to treat Parkinson’s.” The researchers encourage people with and without Parkinson’s to take part in the trial.

All fields required

First name*
Last name*
Email address*
Enter Email Confirm Email
Country of residence*
About me*
- I have Parkinson's disease
- I am a partner / carer / family / friend of someone who has Parkinson's
- I am a healthcare professional with an interest in Parkinson's
- I work for a Parkinson's disease organisation
- Other
CAPTCHA
*
- By proceeding you agree to our
Comments
This field is for validation purposes and should be left unchanged.

Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

Interviews

Fynlee Hateley: the 13-year-old Parkinson’s campaigner

Interviews

“We know so much about Parkinson’s, but so little about people with Parkinson’s”

Global update

Parkinson’s in the news: March

Is there a link between Parkinson’s disease and blood vessel dysfunction?

New swab test may help with Parkinson’s disease diagnosis

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

{title}

Subscribe

Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

Related articles

Interviews

Fynlee Hateley: the 13-year-old Parkinson’s campaigner

Interviews

“We know so much about Parkinson’s, but so little about people with Parkinson’s”

Global update

Parkinson’s in the news: March

Is there a link between Parkinson’s disease and blood vessel dysfunction?

New swab test may help with Parkinson’s disease diagnosis

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

{title}

Subscribe

Sign in