Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“If you want to blame somebody, blame it on the Parkinson’s”

– Mitch Faile, the lyrics to a light-hearted song he wrote on everyday difficulties of living with Parkinson’s

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

– Bas Bloem, after signing an agreement to bring innovative healthcare model to West Michigan

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

– Susan Guy, an animator making a stop motion documentary about Parkinson’s

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

– Enzo Cilenti, ‘Yezzan’ in hit TV series Game of Thrones, whose father was diagnosed three years ago

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Michael J Fox on his Parkinson’s: “Acceptance isn’t resignation”

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EPDA signs new charter on workplace rights

The European Parkinson’s Disease Association (EPDA) has signed the Dying to Work Charter – a pledge protecting the workplace rights of people with serious conditions. The charter – part of the Trade Union Congress’ wider Dying to Work campaign – has so far protected over half a million workers in the UK. The Dying to Work campaign group, chaired by MEP Rory Palmer, is calling on the European Union to amend its current legislation. The campaign is asking for serious conditions to be identified as a ‘protected characteristic’ – meaning employees would enjoy a protected period after diagnosis which would ensure the couldn’t be unfairly dismissed. Russell Patten, secretary general at the EPDA, said: “At the EPDA, we are committed to improving employment conditions, reducing stigma and ensuring accessibility to essential services for all people with Parkinson’s disease.” Image: Rory Palmer MEP (left) and Russell Patten, secretary general at the EPDA…

New wearable device could counteract gait

Scientists at the National University of Ireland Galway have created a wearable device that they believe will help people with Parkinson’s to walk more easily. The device, named cueStim, is worn around the waist and delivers fixed rhythmic sensory stimulation to the wearer. This will counteract ‘freezing of gait’ symptoms that are often experienced by people living with the condition. The scientists collaborated with professionals from UK medical board NHS Greater Glasgow and Clyde to test the device, and found that it significantly reduced the time taken for a person with Parkinson’s to complete walking tasks. Gearóid Ó Laighin, professor of electrical engineering at NUI Galway, said: “We are now seeking additional clinical partners to work with NUI Galway in carrying out a comprehensive long-term clinical evaluation of cueStim in enhancing the quality of life of people with Parkinson’s disease through a funded programme of research.”

Could robots replace animals in Parkinson’s medical trials?

Researchers at Heriot-Watt University, Edinburgh, UK, are testing new treatments for Parkinson’s disease on robots. Academics at the university – who are collaborating with the International Institute for Neurosciences of Natal, Brazil – will use computer models of the human brain to simulate the effect medication has on people living with Parkinson’s. The study – which is the first of its kind – could lead to a major shift in the way that Parkinson’s treatments are tested in the future, and potentially put an end to animal testing. Dr Patricia A Vargas, the lead collaborator of the study said: “Our hope is two-fold – to reduce and replace animals in research, and to help and inform new therapies, treatments and even the cure for this debilitating disease.”

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

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Europe

Walk with Copenhagen

Health & Fitness

Sign up for the World Parkinson Boot Camp this April

Perspectives

Michael J Fox on his Parkinson’s: “Acceptance isn’t resignation”

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

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Europe

Walk with Copenhagen

Health & Fitness

Sign up for the World Parkinson Boot Camp this April

Perspectives

Michael J Fox on his Parkinson’s: “Acceptance isn’t resignation”

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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