Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

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A weekly roundup of our favourite Parkinson’s quotes

“If you want to blame somebody, blame it on the Parkinson’s”

– Mitch Faile, the lyrics to a light-hearted song he wrote on everyday difficulties of living with Parkinson’s

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

– Bas Bloem, after signing an agreement to bring innovative healthcare model to West Michigan

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

– Susan Guy, an animator making a stop motion documentary about Parkinson’s

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

– Enzo Cilenti, ‘Yezzan’ in hit TV series Game of Thrones, whose father was diagnosed three years ago

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Boston Scientific’s Vercise deep brain stimulation system

Dancing across the globe for Parkinson’s

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New tool could support “faster diagnosis” of Parkinson’s disease psychosis

A new screening tool has been developed to support the early diagnosis of Parkinson’s disease psychosis – a symptom of the condition that is often misdiagnosed. Created by Canadian senior care software company, PointClickCare and membership organisation, the American Society of Consultant Pharmacists (ASCP), the platform asks questions on topics like hallucinations and delusions. Healthcare workers can then review the responses and decide to collect more information and create a care plan. Data collected through the tool will also be used to help scientific research in healthcare organisations. Bill Stuart, clinical product strategist at PointClickCare said: “Not only will the screener tool better enable faster diagnosis, it will provide the senior care industry with a consistent way of approaching Parkinson’s psychosis.” Chad Worz, chief executive of ASCP, added: “We are excited to have another tool for care teams to facilitate a more standardised care process for Parkinson’s disease and we…

Has Covid-19 impacted access to Parkinson’s medication?

New research has found that the coronavirus pandemic has affected access to medication for people living with Parkinson’s disease. The sub-study used information from a survey conducted by the International Parkinson and Movement Disorder Society. The results from 346 participants showed that 22.8% of high-income and 88.9% of low-income countries’ respondents agreed that the coronavirus crisis had impacted people’s access to Parkinson’s medication. Some respondents reported increased disability, increased hospitalisation and increased mortality as factors. The majority of those who completed the survey were doctors. The researchers concluded: “Our results offer preliminary data that the Covid-19 pandemic has affected Parkinson’s disease patients’ access to regular medication. “Covid-19 has diverted resources away from chronic conditions towards the fight against Covid-19 in many countries. Resource-poor countries seem to be disproportionately affected compared to their affluent counterparts.”

Brazilian dance could improve mobility in people with Parkinson’s, study finds

Researchers at the Federal University of Rio Grande do Sul in Brazil compared participants in a 12-week programme, inspired by samba and forró dances, with those in a walking exercise programme to measure improvement in their functional mobility and gait. The 18 participants had an average age of 68.6 and had all been diagnosed with Parkinson’s over a year ago. The results, published in journal BMC Neurology, found that both groups showed significant improvements in mobility and balance tests. Participants in the dance group showed increases in stride frequency at a self-chosen test speed and a reduced swing time (the amount of time the foot is off the floor) at a fast speed. The results indicated that dance was as “effective as walking in improving functional mobility”. The researchers wrote: “It is essential to find different activities that can offer benefits to individuals… so that they can engage in the…

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

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Recipes & Nutrition

Try making this delicious tropical fruit almond milk smoothie

sponsored article

Advances

Personalised and on-the-spot therapy: deep brain stimulation

Perspectives

Dancing across the globe for Parkinson’s

New tool could support “faster diagnosis” of Parkinson’s disease psychosis

Has Covid-19 impacted access to Parkinson’s medication?

Brazilian dance could improve mobility in people with Parkinson’s, study finds

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

Related articles

Recipes & Nutrition

Try making this delicious tropical fruit almond milk smoothie

sponsored article

Advances

Personalised and on-the-spot therapy: deep brain stimulation

Perspectives

Dancing across the globe for Parkinson’s

New tool could support “faster diagnosis” of Parkinson’s disease psychosis

Has Covid-19 impacted access to Parkinson’s medication?

Brazilian dance could improve mobility in people with Parkinson’s, study finds

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