Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“If you want to blame somebody, blame it on the Parkinson’s”

– Mitch Faile, the lyrics to a light-hearted song he wrote on everyday difficulties of living with Parkinson’s

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

– Bas Bloem, after signing an agreement to bring innovative healthcare model to West Michigan

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

– Susan Guy, an animator making a stop motion documentary about Parkinson’s

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

– Enzo Cilenti, ‘Yezzan’ in hit TV series Game of Thrones, whose father was diagnosed three years ago

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9 stunning works of art created by people with Parkinson’s

A special gallery in London will showcase the artworks

Waking up to the impact of sleep disruption

Researchers look at improving sleep patterns for people with Parkinson's

Parkinson’s cookbook receives royal reception in Belgium

New innovative cookbook offers specialised Parkinson’s recipes

Scotland sees soaring Parkinson’s rate

The number of drugs being prescribed for people living with Parkinson’s in Scotland, UK, has increased by more than a quarter. National Health Service (NHS) figures, published by the Scottish Conservative party, show that the number of items being dispensed for the condition have leapt by 28% – from 260,355 in 2010 to 333,167 in 2019. The sharp rise is thought to be a consequence of Scotland’s ageing population and has prompted calls from bodies, including Parkinson’s UK, for government action to ensure the NHS can cope with the increasing number of Parkinson’s cases. Annie Macleod, director of Parkinson’s UK Scotland, said: “Over the next decade we expect to see numbers increase by a fifth.” She added that reasons for such a spike could include “growing numbers of people living with more complex Parkinson’s, or changes to the ways that specialists are managing Parkinson’s”.

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

More than a quarter of people living with Parkinson’s were initially misdiagnosed, according to new research from charity Parkinson’s UK. As part of the study, 2,000 people with Parkinson’s were asked a series of questions about their diagnosis. According to results, 26% of the participants were originally told they did not have Parkinson’s – with almost half of them being treated for a different condition. The poll also found that women were more likely to be misdiagnosed than men. Katie Goates, professional engagement manager at Parkinson’s UK, said: “One of the biggest challenges for Parkinson’s research is that there is no definitive test for Parkinson’s, and as a result we’ve heard of people being misdiagnosed with anything from a frozen shoulder or anxiety to a stroke. “Our survey has shown that because of this people are being left in limbo and seeing their health deteriorate, which is unacceptable.”

Queen Elizabeth II honours UK university for Parkinson’s research

A neuroscience research centre at the University of Sheffield, UK, has been recognised by Queen Elizabeth II for improving the lives of patients living with neurodegenerative conditions, including Parkinson’s. The Sheffield Institute for Translational Neuroscience, which is based at the university, uses emerging developments in neuroscience to create innovative new approaches to treating brain conditions. The prestigious Queen’s Anniversary Prize was awarded at St James’s Palace, London. The institute was commended for its development of Parkinson’s drug discovery programmes. The honour is awarded to UK universities who exhibit groundbreaking and innovative approaches to research – with beneficial results at local, national and global levels. Professor Koen Lamberts, president and vice-chancellor for the University of Sheffield, said: “As well as making life-changing discoveries today, The Sheffield Institute for Translational Neuroscience is nurturing the next generation of talented neuroscience students, whose research will lead to pioneering treatments for those living with neurological…

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

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Europe

9 stunning works of art created by people with Parkinson’s

Advances

Waking up to the impact of sleep disruption

Resources & Tools

Parkinson’s cookbook receives royal reception in Belgium

Scotland sees soaring Parkinson’s rate

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

Queen Elizabeth II honours UK university for Parkinson’s research

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Who said what: QoTW 11.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 11 June 2015

Prep: Cook: Serves:

“If you want to blame somebody, blame it on the Parkinson’s”

“We’ll start small, think big, act fast. We’ll hopefully expand to the rest of Michigan, and why not the rest of the States?”

“The puppets will have the strings attached to the head, hands and feet which will be a metaphor for the disease itself”

“The focus now is on being there for my parents because this doesn’t just affect the individual, it affects the whole family”

Last Month

Next Month

Share this story

Comments

Related articles

Europe

9 stunning works of art created by people with Parkinson’s

Advances

Waking up to the impact of sleep disruption

Resources & Tools

Parkinson’s cookbook receives royal reception in Belgium

Scotland sees soaring Parkinson’s rate

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

Queen Elizabeth II honours UK university for Parkinson’s research

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