Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Smartphone test predicts development of Parkinson’s symptoms, study says

Researchers have created a smartphone test that may be able to predict the development of Parkinson’s symptoms. The study – carried out by researchers from the University of Oxford and funded by the Monument Trust Discovery Award from charity Parkinson’s UK – used the test to assess voice, balance, walking and reaction time in people living with Parkinson’s. The results indicated that the test may be able to predict development of Parkinson’s symptoms up to 18 months before they occur. Researchers hope this will allow healthcare professionals to tailor a more personalised approach to the treatment of Parkinson’s. Christine Lo, clinical research fellow at the University of Oxford’s Oxford Parkinson’s Disease Centre, said: “The main driver for this study was to improve clinical care by finding better ways of predicting how Parkinson’s is likely to progress over time on an individual basis, as its course can vary greatly from person to…

Take part in a global Parkinson’s carers survey

The European Parkinson’s Disease Association (EPDA) is inviting carers from within the Parkinson’s community to take part in a survey aiming to shine a light on the physical, financial and emotional difficulties they face. The research – supported by French healthcare devices company Air Liquide – will be used to inform future campaigns and create valuable tools to help carers and the wider Parkinson’s community. Russell Patten, the secretary general of the EPDA, said: “Carers are such an important part of the Parkinson’s community – they provide the firm foundations that support their loved ones who are physically living with the condition. “However, carers’ needs and quality of life are sadly, all too often, overlooked; this can lead to devastating and lasting effects on the individual and the wider society.” The survey is open until 6 September 2019, and is available in English, French, German Italian, Danish, Dutch, Portuguese, Slovenian…

Scottish university reveals multimillion-pound Parkinson’s research partnership

The University of Dundee, UK, has announced a collaboration with South Korean pharmaceutical company Bukwang to develop a new treatment for Parkinson’s. Collaborating with researchers at the University of Oxford, UK, the university’s drug discovery unit (DDU) has found molecules that may reduce levels of a protein closely connected to the development of the condition. The new partnership will build on this existing relationship between the universities – and facilitate a further three-year Parkinson’s research programme which will move the molecules towards clinical development. Professor Paul Wyatt, head of the DDU, said: “Drug discovery for neurological disorders is especially challenging and an area where academia and industry need to be working together. “This project brings together the clinical and translational research expertise in Oxford with Dundee’s professional drug-discovery capabilities, allowing us to move one stage further towards a treatment.”

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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Meet our poetry competition runner-up

Resources & Tools

Drug repurposing: testing a drug approved for one disease for its efficacy in another

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Smartphone test predicts development of Parkinson’s symptoms, study says

Take part in a global Parkinson’s carers survey

Scottish university reveals multimillion-pound Parkinson’s research partnership

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

Related articles

Interviews

Meet our poetry competition runner-up

Resources & Tools

Drug repurposing: testing a drug approved for one disease for its efficacy in another

Perspectives

How will ‘Brexit’ affect Parkinson’s research in the UK?

Smartphone test predicts development of Parkinson’s symptoms, study says

Take part in a global Parkinson’s carers survey

Scottish university reveals multimillion-pound Parkinson’s research partnership

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