Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Has Covid-19 impacted access to Parkinson’s medication?

New research has found that the coronavirus pandemic has affected access to medication for people living with Parkinson’s disease. The sub-study used information from a survey conducted by the International Parkinson and Movement Disorder Society. The results from 346 participants showed that 22.8% of high-income and 88.9% of low-income countries’ respondents agreed that the coronavirus crisis had impacted people’s access to Parkinson’s medication. Some respondents reported increased disability, increased hospitalisation and increased mortality as factors. The majority of those who completed the survey were doctors. The researchers concluded: “Our results offer preliminary data that the Covid-19 pandemic has affected Parkinson’s disease patients’ access to regular medication. “Covid-19 has diverted resources away from chronic conditions towards the fight against Covid-19 in many countries. Resource-poor countries seem to be disproportionately affected compared to their affluent counterparts.”

Brazilian dance could improve mobility in people with Parkinson’s, study finds

Researchers at the Federal University of Rio Grande do Sul in Brazil compared participants in a 12-week programme, inspired by samba and forró dances, with those in a walking exercise programme to measure improvement in their functional mobility and gait. The 18 participants had an average age of 68.6 and had all been diagnosed with Parkinson’s over a year ago. The results, published in journal BMC Neurology, found that both groups showed significant improvements in mobility and balance tests. Participants in the dance group showed increases in stride frequency at a self-chosen test speed and a reduced swing time (the amount of time the foot is off the floor) at a fast speed. The results indicated that dance was as “effective as walking in improving functional mobility”. The researchers wrote: “It is essential to find different activities that can offer benefits to individuals… so that they can engage in the…

#WomenAndParkinsons shortlisted for ‘Charity Content Campaign of the Year’

Parkinson’s Life’s #WomenAndParkinsons campaign – a series highlighting the unique experiences of the estimated three million women worldwide who live with the condition – has been shortlisted in the UK Content Awards 2020 in the ‘Not-for-Profit / Charity Content Campaign of the Year’ category. Since its launch in 2019 the #WomenAndParkinsons campaign has covered topics including: the impact of menstruation on medication; the difficulties surrounding pregnancy, childbirth and breastfeeding with Parkinson’s; the interaction between menopause, sex and Parkinson’s; how coronavirus is impacting the lives of women with the condition; and what’s behind the lack of focus on gender. Parkinson’s Life editor Simge Eva Dogan, said: “Our campaign has centered on voices that were previously unheard and started much-needed discussions about the specific needs and experiences of women who are living with Parkinson’s. Being recognised by this award will help us to build on the success of the campaign so far and continue…

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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PD in Practice

Aspiring Parkinson’s nurses urged to apply for “hands-on” summer school in Portugal

Carers' Corner

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Global update

Thousands of campaigners from 170 countries set to #UniteForParkinsons

Has Covid-19 impacted access to Parkinson’s medication?

Brazilian dance could improve mobility in people with Parkinson’s, study finds

#WomenAndParkinsons shortlisted for ‘Charity Content Campaign of the Year’

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

Related articles

PD in Practice

Aspiring Parkinson’s nurses urged to apply for “hands-on” summer school in Portugal

Carers' Corner

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Global update

Thousands of campaigners from 170 countries set to #UniteForParkinsons

Has Covid-19 impacted access to Parkinson’s medication?

Brazilian dance could improve mobility in people with Parkinson’s, study finds

#WomenAndParkinsons shortlisted for ‘Charity Content Campaign of the Year’

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