Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Scotland sees soaring Parkinson’s rate

The number of drugs being prescribed for people living with Parkinson’s in Scotland, UK, has increased by more than a quarter. National Health Service (NHS) figures, published by the Scottish Conservative party, show that the number of items being dispensed for the condition have leapt by 28% – from 260,355 in 2010 to 333,167 in 2019. The sharp rise is thought to be a consequence of Scotland’s ageing population and has prompted calls from bodies, including Parkinson’s UK, for government action to ensure the NHS can cope with the increasing number of Parkinson’s cases. Annie Macleod, director of Parkinson’s UK Scotland, said: “Over the next decade we expect to see numbers increase by a fifth.” She added that reasons for such a spike could include “growing numbers of people living with more complex Parkinson’s, or changes to the ways that specialists are managing Parkinson’s”.

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

More than a quarter of people living with Parkinson’s were initially misdiagnosed, according to new research from charity Parkinson’s UK. As part of the study, 2,000 people with Parkinson’s were asked a series of questions about their diagnosis. According to results, 26% of the participants were originally told they did not have Parkinson’s – with almost half of them being treated for a different condition. The poll also found that women were more likely to be misdiagnosed than men. Katie Goates, professional engagement manager at Parkinson’s UK, said: “One of the biggest challenges for Parkinson’s research is that there is no definitive test for Parkinson’s, and as a result we’ve heard of people being misdiagnosed with anything from a frozen shoulder or anxiety to a stroke. “Our survey has shown that because of this people are being left in limbo and seeing their health deteriorate, which is unacceptable.”

Queen Elizabeth II honours UK university for Parkinson’s research

A neuroscience research centre at the University of Sheffield, UK, has been recognised by Queen Elizabeth II for improving the lives of patients living with neurodegenerative conditions, including Parkinson’s. The Sheffield Institute for Translational Neuroscience, which is based at the university, uses emerging developments in neuroscience to create innovative new approaches to treating brain conditions. The prestigious Queen’s Anniversary Prize was awarded at St James’s Palace, London. The institute was commended for its development of Parkinson’s drug discovery programmes. The honour is awarded to UK universities who exhibit groundbreaking and innovative approaches to research – with beneficial results at local, national and global levels. Professor Koen Lamberts, president and vice-chancellor for the University of Sheffield, said: “As well as making life-changing discoveries today, The Sheffield Institute for Translational Neuroscience is nurturing the next generation of talented neuroscience students, whose research will lead to pioneering treatments for those living with neurological…

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

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Interviews

New Parkinson’s love story set to hit the big screen

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World Parkinson Congress 2019 Bloggers: Tim Hague

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Michael J Fox hopes Trump government will continue support for Parkinson’s research

Scotland sees soaring Parkinson’s rate

Over a quarter of people living with Parkinson’s were initially misdiagnosed, study finds

Queen Elizabeth II honours UK university for Parkinson’s research

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