Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Could a transplant lower the risk of Parkinson’s?

Researchers at Washington University School of Medicine, US, have found that having a heart, kidney, lung or bone marrow transplant could reduce the risk of developing Parkinson’s. As part of the study, published in medical journal ‘Parkinsonism & Related Disorders’, the team assessed data of just under 200,000 patients – 89,790 of whom had Parkinson’s. The results revealed that individuals who had a transplant were 37% less likely to develop Parkinson’s. This could be due to the immunosuppressant medication patients receive before undergoing a transplant, which researchers believe may help slow neurodegeneration as it reduces inflammation in the brain. The study said: “This study provides evidence that tissue transplant may be associated with a lower PD [Parkinson’s disease] risk, warranting further investigation to identify factors that mediate this relationship.”

Groundbreaking Parkinson’s trial publishes results

A breakthrough Parkinson’s trial that featured in a two-part documentary on UK television channel BBC Two has published its results. The study, which featured in the documentary ‘The Parkinson’s Drug Trial: A miracle cure?’, aimed to investigate whether it was possible to restore damaged neurons by administering protein Glial Cell Line Derived Neurotrophic Factor (GDNF). As part of the trial, scientists initially infused GDNF into the brains of six participants living with the condition. Researchers then invited a further 35 individuals with Parkinson’s to take part, with approximately half being administered with a placebo infusion. Although not conclusive, the results suggest that GDNF had an impact on the brain and researchers believe the topic is worthy of further study. Dr Alan Whone, principal investigator on the trial, said: “This represents some of the most compelling evidence yet that we may have a means to possibly reawaken and restore the dopamine brain cells…

Course for Parkinson’s nurses launches in Slovenia

The International Parkinson and Movement Disorder Society is hosting its third summer school for nurses specialising in Parkinson’s. The course – which will be held from 10-12 May in Ljubljana, Slovenia – will focus on the management of the motor and non-motor symptoms of the condition. Students will also attend lectures, examine Parkinson’s patients and discuss treatment plans with experts. All lectures will be presented in English. Heather Vitale, senior programme manager at the International Parkinson and Movement Disorder Society, said: “This course offers a unique opportunity for nurses to enhance their knowledge in Parkinson’s disease, while also learning and networking with their peers through case study presentations and small group discussions.” Registration closes 26 April 2019 and costs USD $350.

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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Recipes & Nutrition

How to plan nutritious easy-to-chew meals for people with Parkinson’s

Health & Fitness

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Global update

John Stapleton: “More Parkinson’s research is needed, full stop”

Could a transplant lower the risk of Parkinson’s?

Groundbreaking Parkinson’s trial publishes results

Course for Parkinson’s nurses launches in Slovenia

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

Related articles

Recipes & Nutrition

How to plan nutritious easy-to-chew meals for people with Parkinson’s

Health & Fitness

How tailored exercise programmes can help people with Parkinson’s

Global update

John Stapleton: “More Parkinson’s research is needed, full stop”

Could a transplant lower the risk of Parkinson’s?

Groundbreaking Parkinson’s trial publishes results

Course for Parkinson’s nurses launches in Slovenia

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