Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Investigational Parkinson’s disease dementia therapy fails in clinical trial

Research into new potential therapies for people with Parkinson’s is complex, which means that not all clinical trials will successfully move on to the next phase. This proved to be the case for US biotech company Aptinyx, which announced that it will halt further development work on an investigational therapy following “disappointing” results in the second phase of its study. The research had set out to examine the effect of NYX-458 – an oral therapy created to modulate the activity of receptors in the brain that are responsible for communication between neurons. The aim of the therapy was to improve cognition in people with cognitive impairment linked to Parkinson’s or Lewy body dementia. Yet, when compared to a placebo, the therapy didn’t demonstrate “meaningful improvements” in cognitive function. Dr Andy Kidd, president and CEO at Aptinyx, said: “We are very disappointed that the results of this Phase 2 study did…

A new intimacy guide aims to support people with Parkinson’s disease in the US

Does sexual wellness in the Parkinson’s community need more focus? It’s an area that the American Parkinson Disease Association (APDA) and media brand Havas Health Plus have targeted through the launch of a free intimacy guide. Available to people in the US, ‘The ParkinSex Booklet & Kit’ aims to support those whose relationships may have been impacted by emotional and physical distance linked to the condition. Alongside an educational guide, the kit includes items such as candles, coupons for adaptative clothing and massage stones. Following a positive response to an initial pilot distribution of the guides in the US, there is now a waitlist for future kits. Commenting on the launch in a press release, APDA president and CEO Leslie Chambers said: “The challenges of Parkinson’s can often result in intimacy and connection getting left behind. This is why we created ‘The ParkinSex Booklet & Kit’, to help people with…

How prevalent are non-visual hallucinations in Parkinson’s disease?

Some people in the later stages of Parkinson’s can experience hallucinations – “when you see, hear or feel things that aren’t there”. With most research into this topic centred on visual hallucinations, a team in Australia set out to investigate data around non-visual hallucinations in people with the condition. Published in the ‘Journal of Neurology’, the analysis drew on 91 relevant studies released between 1970 and 2022. The team found that visual hallucinations appeared to be most common, with an expected prevalence of up to 96.6%. Meanwhile, non-visual hallucinations – including auditory (relating to the sense of hearing) and olfactory (relating to the sense of smell) – had an estimated prevalence of up to 73.3%. Concluding that non-visual hallucinations may “impact a notable proportion” of people with the condition, the team said: “More direct research and clinical attention need to be devoted to the study and management of such hallucinatory…

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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Interviews

Dave Clark: “I’m not going to hide away”

Global update

“The voices of women living with Parkinson’s disease must be amplified”

Global update

Parkinson’s in the news: February

Investigational Parkinson’s disease dementia therapy fails in clinical trial

A new intimacy guide aims to support people with Parkinson’s disease in the US

How prevalent are non-visual hallucinations in Parkinson’s disease?

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

Related articles

Interviews

Dave Clark: “I’m not going to hide away”

Global update

“The voices of women living with Parkinson’s disease must be amplified”

Global update

Parkinson’s in the news: February

Investigational Parkinson’s disease dementia therapy fails in clinical trial

A new intimacy guide aims to support people with Parkinson’s disease in the US

How prevalent are non-visual hallucinations in Parkinson’s disease?

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