Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

A weekly roundup of our favourite Parkinson’s quotes

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

– Kate Matheson, newly appointed national ambassador at Shake It Up in Australia

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

– Tore Henriksen, inspired by his father’s battle with Parkinson’s, completed a gruelling Ironman race in Lanzarote to raise funds and awareness

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

– Alice Lazzarini, a Parkinson’s researcher who was diagnosed with the disease

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

– Bas Bloem, after signing an agreement to lay the foundation for bringing innovative Dutch healthcare programme ParkinsonNet to the US

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Could Parkinson’s disease originate in the gut?

A new body of research has highlighted a potential link between gut health and Parkinson’s, with several studies presented at the Society for Neuroscience’s annual meeting in San Diego, US. One study focused on alpha-synuclein – a protein that can cause brain cells to die and contribute to the condition’s onset. As part of the study, the researchers created a mouse model of Parkinson’s by treating the mice with rotenone (an ingredient used in pesticides). This was found to increase clumps of alpha-synuclein in the gut, suggesting the protein may originate in the digestive system before moving to the brain. Commenting on the research presented at the event in a press release, assistant professor of neurosurgery Sonia Villapol said: “When it comes to neurological disorders, we cannot target only the brain. Everything that happens in the gut has an impact on the brain.”

Is dry eye disease common in people with Parkinson’s?

Dry eye disease can involve symptoms such as a lower blinking rate and typically occurs when the eyes are not effectively moistened by tears – leading to discomfort and possible vision loss. Now, a recent study from Japan has investigated the previously underexplored relationship between dry eye disease and Parkinson’s. As part of their research, the team analysed 13 studies published between 2004 and 2022, which involved more than 1,500 people with Parkinson’s. Five of the reports highlighted the prevalence of dry eye disease in people with the condition – with 61% experiencing symptoms. “Our findings emphasize the need for clinicians to be vigilant of the presence of dry eye disease when managing [people with Parkinson’s],” the researchers wrote. However, they noted that more research is needed – especially “future large-scale studies” – to help understand the relationship between dry eye disease and the condition.

Highlighting dental care needs among people with Parkinson’s disease

Researchers from the University of Copenhagen, Denmark, have published a new study looking into dental care among people with Parkinson’s. Using a national register to obtain data relating to dental care between 2015 and 2019, the team identified 6,874 people with Parkinson’s, whose data was then compared to a control group of 34,285 people without the condition. A key takeaway from the five-year study was that a larger portion of people with Parkinson’s were not regular users of the dental care system – 21%, compared to 16.9% in the control group. The findings published in the journal ‘Community Dentistry and Oral Epidemiology’ also revealed that people with Parkinson’s utilised more dental-related treatment services than those in the control group – such as fillings and extractions. The researchers concluded: “This knowledge can be used by clinicians and decision-makers to ensure the optimal dental care for persons with Parkinson’s.”

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

Prep: Cook: Serves:

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

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“I hope it empowers people with Parkinson’s to be more open and honest”

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Who said what: QoTW 04.06.15

Perspectives

Author: Parkinson's Life editorsPublished: 4 June 2015

“We aren’t victims, we are strong, amazing people who just happen to have a crummy disease, and we want a cure to that disease”

“Giving up is not an option and no matter what kind of obstacle you must face – face it with all you’ve got”

“How are they going to see me — as the colleague as I have always been, or as the patient I always will be? That was the beginning of my transition”

“More comprehensive care not only means a better quality of life for people with Parkinson’s, but also markedly reduced healthcare costs”

Last Month

Next Month

Share this story

Comments

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“I hope it empowers people with Parkinson’s to be more open and honest”

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Michael J Fox Foundation pledges £100,000 for Parkinson’s app

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Share what you know about treatments for late-stage Parkinson’s disease

Could Parkinson’s disease originate in the gut?

Is dry eye disease common in people with Parkinson’s?

Highlighting dental care needs among people with Parkinson’s disease

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