A series of 12 videos to offer practical Parkinson’s advice
Resources & Tools
Author: Parkinson's Life editorsPublished: 19 May 2016
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Imagine if you had an extra hour for doing good. A new video project shows the Parkinson’s community what can be achieved in just one hour more
What could you achieve if you had one hour more each day? If you’re living with Parkinson’s an extra hour of ‘on time’ could really improve your quality of life.
A new series of 12 short illustration videos shows what you can do to during your ‘on time’ to help specific aspects of living with Parkinson’s. The videos, developed as part of ‘1 hour more’, are released on the project’s Facebook page every two weeks and aim to offer both emotional and practical support.
Matteo Brambilla, ‘1 hour more’ project manager, said: “Parkinson’s stories can and should be engaging: if a picture is ‘worth a thousand words’ then a moving image can be even more thrilling, and can help cultivate and increase awareness of Parkinson’s”.
Don’t be afraid to ask for help
The first in the series is titled ‘companionship’. The key message of the video is that spending time with good friends can positively affect your mindset.
Maintaining a routine inspires new adventures
The second video focuses on the importance of regular sleeping cycles and medication routines. The ‘1 hour more’ Facebook posts accompanying this video offer tips such as: “Keep an eye on times so that the pills work as efficiently as possible, allowing you to manage your schedule in a calm, stress-free and optimal way.”
Joining a choir can strengthen your voice
Living with Parkinson’s can affect your voice, which can sometimes make communication challenging. The third video in this series gives some tips on activities to improve the strength of your voice.
About ‘1 hour more’
The ‘1 hour more’ project invites people with Parkinson’s to submit their personal stories, which are published on a bespoke digital platform. The stories in the collection focus on the value of ‘time’ for all people within the Parkinson’s community and aim to raise public awareness of the condition. The project launched a series of video animations to inspire people with Parkinson’s to lead a full life.
To view the project so far visit the ‘1 hour more’ website
This April, The World Parkinson Coalition is launching The Parkinson Tulip Project – a global collaborative photography campaign to raise awareness of the world’s fastest growing neurological disease. As part of the campaign, which is supported by Supernus Pharmaceuticals, members of the Parkinson’s community are invited to share a photo of themselves with tulips – the official symbol of Parkinson’s disease. The project will run until April 2022, and all images shared by the community will be displayed at the sixth World Parkinson Congress in Barcelona, Spain. Additionally, every photo submitted will be entered into The Parkinson Tulip Project raffle. The World Parkinson Coalition hopes that the project will “give a face and name to those impacted by Parkinson’s” and “inspire the community, reminding people touched by Parkinson’s disease that they are not alone”.
Looking after dental health with Parkinson’s disease
Parkinson’s disease symptoms and medications can cause dental health problems – including difficulty cleaning teeth and increased tooth decay. Now, a study from researchers in Brazil has offered dental care recommendations to help people living with the condition. Analysing data from 14 studies, the scientists highlighted people with Parkinson’s can have “reduced quality of oral health and hygiene”. Their advice included routine teeth-brushing, as well as regular trips to a dentist. They also suggested brushing teeth with both hands, as symptoms like tremor and rigidity could mean using one hand is more difficult. The researchers wrote: “Although oral diseases are largely preventable, they are among the most prevalent diseases globally, thus creating a public health problem. “Despite the relatively low level of evidence in studies on oral health among patients with Parkinson’s disease, the data retrieved for this systematic review allowed us to create a set of simple guidelines.”
Why Parkinson’s disease research can’t ignore sex differences
Researchers at the University of Maryland, US, have highlighted the growing body of research that suggests male and female patients are affected differently by Parkinson’s disease. Parkinson’s disease is caused by the death of cells in the brain and nervous system. These cellular changes are associated with the collapse of the blood-brain barrier – a border of cells that protects the brain from damaging molecules. In the article – published in scientific journal ‘APL Bioengineering’ – the researchers observed that this barrier behaves differently in male and female patients. The fact that some research suggests women tend to have a stronger blood-brain barrier, for example, could explain why Parkinson’s disease is more common in men. Dr Alisa Morss Clyne, one of the article’s authors, says this research has been an “awakening”. She adds: “You cannot ignore sex differences. My goal is to inspire people to include sex differences in their research.”