For more information about Parkinson’s advocacy, please visit the EPDA website.
The campaign calling for “proper” Parkinson’s disease care in Ireland
Author: Sarah McGrathPublished: 14 July 2022
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Members of the Parkinson’s community in Ireland are calling for care issues in the country to be addressed – and highlighting the need for more specialist Parkinson’s nurses
Approximately 12,000 people are currently living with Parkinson’s in Ireland. And yet, the country currently only has six specialist nurses trained to support people with this condition.
With the number of people living with the condition worldwide set to double by 2040, Parkinson’s activist groups in Ireland are highlighting the need for more specialist nurses to help bring better care to those in the community.
Tony Wilkinson, chair of the Cork branch of the Parkinson’s Association of Ireland, has played a leading role in the campaign, which has seen recent support from public figures such as Irish presenter and author Graham Norton.
Quoted in newspaper CorkBeo, Wilkinson said: “There is a serious lack of support for those of us living with Parkinson’s in this country. There is meant to be one nurse for every 300 patients, but we have less than 10 for over 12,000 of us. We deserve better.”
Led by Wilkinson, members of the Parkinson’s community met with Minister for Health Stephen Donnelly inside the Irish Parliament building on 6 July. The event included a panel of speakers who took part in a discussion with politicians about services and community support for people with Parkinson’s.
Advocating for better care
A panellist at the event, Ireland-based dietician Richelle Flanagan also started a petition asking the public to “please lend your voice”. Addressed to Ireland’s prime minister, Taoiseach Micheál Martin, Minister for Health Stephen Donnelly and Director General of the Health Service Executive (HSE) Paul Reid, the petition currently has over 5,600 signatures.
“It is negligent how the state is treating people with Parkinson’s,” Richelle writes. “Many of those battling this condition do not have the voice (some literally due to the disease) and their caregivers are too worn out to fight the system. It has to stop.”
But the meeting in Parliament allegedly brought good news for the community. According to tweet by Parkinson’s advocate and attendee Gary Boyle, the group were able to secure a commitment from the Minister for Health around the provision of 20 new specialist neurological nurse posts in the government’s September budget – leading to hopes that this issue will continue to be properly addressed.
As of 13 July, the Minister has not publicly commented on or confirmed this potential development.
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