Teenager raises over $40,000 for Parkinson’s research

Global update

Author: Geoffrey ChangPublished: 9 April 2015

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How much could you fundraise from selling bookmarks?

Jenna Sigurdson – a 13 year old from Winnipeg, Canada – received more than $40,000, after creating a campaign to raise awareness about Parkinson’s disease involving bookmarks.

She was inspired into action when her dad was diagnosed with the neurodegenerative disease three years earlier. Combining entrepreneurial determination with philanthropic spirit, Jenna decided to create bookmarks that sold for two dollars each.

“Most of the time kids think, I can’t do this right?” said Jenna. “You can set your mind to do anything that you want to do, it’s just determination.”

She raised the impressive amount in just four years and has donated the money to Parkinson’s research at the Parkinson’s Society of Manitoba in Canada.

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Musical therapy study to receive $20 million in funding

The National Institutes of Health (NIH) is donating US $20 million to a medical trial researching the effects of musical therapy on brain conditions, including Parkinson’s. The trial will be carried out by the Sound Health initiative, a joint partnership between the NIH and The John F Kennedy Center for the Performing Arts. The initiative was created to expand current knowledge of how listening, performing and creating music could be harnessed for health and wellness. Francis S. Collins, director of the NIH, said: “We know that the beat of a metronome can steady the gait of someone with Parkinson’s disease, for example, but we don’t fully understand how that happens. “If we can pinpoint in the brain how music therapy works through the use of imaging and biomarkers, the hope is that we can improve its effectiveness and apply it more broadly to improve the lives of millions of people.”

Researchers develop automated system to diagnose Parkinson’s

In an international study, researchers from the US, Germany and Austria have used a non-invasive MRI method to develop an automated system that can diagnose Parkinson’s. As part of the study – published in medical journal ‘The Lancet Digital Health’ – researchers worked with 1,002 patients and used an imaging method that measures how water molecules diffuse in the brain. This helped them to identify where neurodegeneration is occurring. Researchers hope this will help improve the accuracy of early Parkinson’s diagnoses – which they estimate to be around 58%. Dr David Vaillancourt, who led the study, said: “Our method may help to reduce the number of misdiagnosed cases in the future. Since these diseases require unique treatment plans and different medications, and clinical trials testing new medications require the correct diagnosis, getting it right is important for patient care.”

MJFF announces $10 million competition for Parkinson’s

The Michael J Fox Foundation has launched the ‘Ken Griffin Alpha-synuclein Imaging Competition’ – a US $10 million programme aiming to develop a game-changing tool for Parkinson’s research. As part of the competition, participating teams will compete in a scientific race to build a device that is able to identify alpha-synuclein – a protein closely associated with Parkinson’s. Although almost everyone diagnosed with Parkinson’s has clumps of alpha-synuclein in the brain, these are currently only visible when analysing tissue during autopsies. The competition is named after Ken Griffin, CEO of US investment firm Citadel who has given US $7.5 million funding to the programme. Griffin – whose father has Parkinson’s – said: “If we have the imaging capability to observe the pathology that arises from protein-misfolding in real time, and understand how drugs are impacting people in real time, that would be a major advance.”

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Teenager raises over $40,000 for Parkinson’s research

Global update

Author: Geoffrey ChangPublished: 9 April 2015

Prep: Cook: Serves:

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Why I promise to make poetry, not Parkinson’s disease, my daily challenge

Perspectives

“Nobody ever thought I had Parkinson’s disease – I was just 10 years old”

Global update

Thousands of campaigners from 170 countries set to #UniteForParkinsons

Musical therapy study to receive $20 million in funding

Researchers develop automated system to diagnose Parkinson’s

MJFF announces $10 million competition for Parkinson’s

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Teenager raises over $40,000 for Parkinson’s research

Global update

Author: Geoffrey ChangPublished: 9 April 2015

Prep: Cook: Serves:

Last Month

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Share this story

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Perspectives

Why I promise to make poetry, not Parkinson’s disease, my daily challenge

Perspectives

“Nobody ever thought I had Parkinson’s disease – I was just 10 years old”

Global update

Thousands of campaigners from 170 countries set to #UniteForParkinsons

Musical therapy study to receive $20 million in funding

Researchers develop automated system to diagnose Parkinson’s

MJFF announces $10 million competition for Parkinson’s

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