Survey: what do you know about the EPDA?

News

Author: European Parkinson's Disease AssociationPublished: 27 January 2022

Prep: Cook: Serves:

Did you know that Parkinson’s Life is the online lifestyle magazine of the European Parkinson’s Disease Association (EPDA)?

The EPDA, the only European Parkinson’s disease umbrella organisation, will be turning 30 years old this year – and to celebrate this anniversary the team want to learn more about what people in the Parkinson’s community know about its purpose and identity.

By taking part in a short survey you will be helping the organisation to better amplify the voices of people with Parkinson’s, their families and carers in Europe.

The EPDA’s operations director Dominic Graham says: “We want our 30th anniversary year to be the start of a new phase for the EPDA. Feedback from this survey will help shape how we can have the greatest positive impact on the lives of people with Parkinson’s and their communities.”

Take part in the EPDA’s six question survey, open until 28 February 2022.

To find out more about the EPDA, please visit their website.

Could traumatic brain injury accelerate the onset of Parkinson’s disease?

Last Month

Next Month

Go Back

Share this story

Comments

Global update

10 of our favourite Parkinson’s Life stories from 2021

What has been your favourite article about Parkinson’s disease?

EPDA signs new charter on workplace rights

The European Parkinson’s Disease Association (EPDA) has signed the Dying

EPDA and Parkinson’s UK launch #UniteForParkinsons campaign

Parkinson’s organisations around the world set to unite on World Parkinso

Is there a link between Parkinson’s disease and blood vessel dysfunction?

Scientists in Slovakia have investigated the link between blood vessel dysfunction and Parkinson’s – and found that dopamine agonists may have an impact. The team studied the function of the endothelium – a membrane which lines the heart and blood vessels and helps control blood fluidity – in 41 people with the condition and 41 people without. Endothelial function was then measured through a parameter that assessed how easily blood could flow through the vessels. The results showed that while more people with Parkinson’s had endothelial dysfunction compared to those without, the difference did not reach statistical significance. However, the researchers noted that the findings suggested “an association between smoking, dopamine agonists, and impaired endothelial function” in those with the condition. Outlining the study’s limitations, the team noted that more research is needed to explore this potential link.

New swab test may help with Parkinson’s disease diagnosis

Researchers at the University of Manchester, UK, have drawn on one woman’s sense of smell to develop a swab test that may be used to detect Parkinson’s. The scientists used the test to analyse sebum (a type of oily substance on the skin) in 79 people with Parkinson’s and a control group of 71 healthy individuals. The team identified more than 4,000 different compounds in the participant samples – including 500 that were unique to those living with the condition. The test was developed with the help of Joy Milne from Perth, Scotland, whose unique sense of smell meant that she noticed a change in her late husband Les’s odour twelve years before he was diagnosed with Parkinson’s. Speaking to the BBC, Professor Perdita Barran, who led the research, described the test as potentially “transformative” – and said that the team hopes to roll the test out to people in…

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

A biobank is a collection of biological samples and data designed to be used for research. Now, researchers in Australia are working to build a biobank for Parkinson’s. As part of the project, the scientists are conducting scans of people that have been injected with fluorodopa – a substance that highlights dopamine in the brain. Participants include people living with Parkinson’s and a control group of people without the condition. The resulting database of scans will be used to create a national biobank that aims to inform treatment and research into the condition. Commenting on the study, Olivia Nasser – executive director at the Hospital Research Foundation, which is helping to fund the research – said, “Once we build up the biobank of scans, it can actually be used as an effective way to treat Parkinson’s.” The researchers encourage people with and without Parkinson’s to take part in the trial.

All fields required

First name*
Last name*
Email address*
Enter Email Confirm Email
Country of residence*
About me*
- I have Parkinson's disease
- I am a partner / carer / family / friend of someone who has Parkinson's
- I am a healthcare professional with an interest in Parkinson's
- I work for a Parkinson's disease organisation
- Other
CAPTCHA
*
- By proceeding you agree to our
Comments
This field is for validation purposes and should be left unchanged.

Survey: what do you know about the EPDA?

News

Author: European Parkinson's Disease AssociationPublished: 27 January 2022

Prep: Cook: Serves:

Last Month

Next Month

Share this story

Comments

Global update

10 of our favourite Parkinson’s Life stories from 2021

News

EPDA signs new charter on workplace rights

Global update

EPDA and Parkinson’s UK launch #UniteForParkinsons campaign

Is there a link between Parkinson’s disease and blood vessel dysfunction?

New swab test may help with Parkinson’s disease diagnosis

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

{title}

Subscribe

Survey: what do you know about the EPDA?

News

Author: European Parkinson's Disease AssociationPublished: 27 January 2022

Last Month

Next Month

Share this story

Comments

Related articles

Global update

10 of our favourite Parkinson’s Life stories from 2021

News

EPDA signs new charter on workplace rights

Global update

EPDA and Parkinson’s UK launch #UniteForParkinsons campaign

Is there a link between Parkinson’s disease and blood vessel dysfunction?

New swab test may help with Parkinson’s disease diagnosis

Could a national biobank help inform the future of Parkinson’s disease treatment in Australia?

{title}

Subscribe

Sign in