Survey highlights carers’ knowledge gap on Parkinson’s disease psychosis

News

Author: Saskia MairPublished: 11 March 2021

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

Just one in 10 caregivers of people with Parkinson’s disease psychosis have been educated about the symptom by a doctor, a study has found.

As part of the study, published in ‘Frontiers in Neurology’, the researchers in the US and Canada surveyed 145 care partners from the online Fox Insight cohort. The participants answered a range of multiple-choice questions and were asked to suggest advice for other caregivers of people experiencing Parkinson’s psychosis.

Their answers suggested that key challenges included an impact on mental health and communication difficulties, and around 68% of participants highlighted the need for advice on how to handle the symptom. Only 11% said they had been educated about Parkinson’s psychosis by a doctor. “Addressing care partner concerns around this challenging stage of disease could potentially reduce caregiver burden and associated health care costs […] and improve the overall quality of care for individuals living with Parkinson disease,” the team concluded.


Read more:

New biotech to drive forward GDNF treatment for Parkinson’s disease

New wearable medical device for Parkinson’s disease to launch this year

Go Back

Share this story

Comments


Related articles


Special reports

Has the pandemic had some positive effects on people with Parkinson’s disease?

Researchers suggest it has improved health-related quality of life

READ MORE
Artist Timothy John in his studio

Perspectives

Painting a picture of life with Parkinson’s

Australian artist Timothy John describes his work

READ MORE

PD in Practice

Tips and tricks: how Parkinson’s patients can discover their own coping strategies

Bouncing a ball or riding a bike could help your symptoms

READ MORE