Survey highlights carers’ knowledge gap on Parkinson’s disease psychosis

News

Author: Saskia MairPublished: 11 March 2021

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

Just one in 10 caregivers of people with Parkinson’s disease psychosis have been educated about the symptom by a doctor, a study has found.

As part of the study, published in ‘Frontiers in Neurology’, the researchers in the US and Canada surveyed 145 care partners from the online Fox Insight cohort. The participants answered a range of multiple-choice questions and were asked to suggest advice for other caregivers of people experiencing Parkinson’s psychosis.

Their answers suggested that key challenges included an impact on mental health and communication difficulties, and around 68% of participants highlighted the need for advice on how to handle the symptom. Only 11% said they had been educated about Parkinson’s psychosis by a doctor. “Addressing care partner concerns around this challenging stage of disease could potentially reduce caregiver burden and associated health care costs […] and improve the overall quality of care for individuals living with Parkinson disease,” the team concluded.


Read more:

New biotech to drive forward GDNF treatment for Parkinson’s disease

New wearable medical device for Parkinson’s disease to launch this year

Go Back

Share this story

Comments


Related articles


Parkinson’s GDNF trial Kay Cotton

Interviews

GDNF trial: a miracle cure?

We talk to three participants who appeared in the BBC Two documentary

READ MORE
Boston Scientifc experts

sponsored article

Advances

From small steps to big leaps – 200 years of Parkinson’s disease research and therapy advancements

Advice from experts working to enhance Parkinson’s therapy options

READ MORE
Young woman sleeping in bed beside the window

Carers' Corner

How my husband’s Parkinson’s has ruined our sex life

A candid account of sex life and Parkinson’s

READ MORE