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Author: Joe McAweaneyPublished: 12 July 2018

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Due to recent changes in EU law, you must ‘opt-in’ to continue to receive our e-newsletter

On 25 May 2018 General Data Protection Regulation (GDPR) laws were passed by the European Union, significantly changing the ways in which businesses and public sector organisations must handle data.

The new laws mean that all consumer information held before this date must be deleted, meaning that people must ‘opt-in’ to keep receiving communications from organisations. For Parkinson’s Life, this means that if you want to keep receiving our weekly e-mail newsletter you must let us know – regardless of whether you have signed up in the past or not. Legally, we must delete your data and cannot communicate with you if you have not signed up.

To sign up, please click ‘subscribe’ in the top right hand corner of our website and fill out the form.

We are very proud of the work we do here at Parkinson’s Life, and are looking forward to communicating with as many of you as possible in the future.

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EPDA signs new charter on workplace rights

The European Parkinson’s Disease Association (EPDA) has signed the Dying to Work Charter – a pledge protecting the workplace rights of people with serious conditions. The charter – part of the Trade Union Congress’ wider Dying to Work campaign – has so far protected over half a million workers in the UK. The Dying to Work campaign group, chaired by MEP Rory Palmer, is calling on the European Union to amend its current legislation. The campaign is asking for serious conditions to be identified as a ‘protected characteristic’ – meaning employees would enjoy a protected period after diagnosis which would ensure the couldn’t be unfairly dismissed. Russell Patten, secretary general at the EPDA, said: “At the EPDA, we are committed to improving employment conditions, reducing stigma and ensuring accessibility to essential services for all people with Parkinson’s disease.” Image: Rory Palmer MEP (left) and Russell Patten, secretary general at the EPDA…

New wearable device could counteract gait

Scientists at the National University of Ireland Galway have created a wearable device that they believe will help people with Parkinson’s to walk more easily. The device, named cueStim, is worn around the waist and delivers fixed rhythmic sensory stimulation to the wearer. This will counteract ‘freezing of gait’ symptoms that are often experienced by people living with the condition. The scientists collaborated with professionals from UK medical board NHS Greater Glasgow and Clyde to test the device, and found that it significantly reduced the time taken for a person with Parkinson’s to complete walking tasks. Gearóid Ó Laighin, professor of electrical engineering at NUI Galway, said: “We are now seeking additional clinical partners to work with NUI Galway in carrying out a comprehensive long-term clinical evaluation of cueStim in enhancing the quality of life of people with Parkinson’s disease through a funded programme of research.”

Could robots replace animals in Parkinson’s medical trials?

Researchers at Heriot-Watt University, Edinburgh, UK, are testing new treatments for Parkinson’s disease on robots. Academics at the university – who are collaborating with the International Institute for Neurosciences of Natal, Brazil – will use computer models of the human brain to simulate the effect medication has on people living with Parkinson’s. The study – which is the first of its kind – could lead to a major shift in the way that Parkinson’s treatments are tested in the future, and potentially put an end to animal testing. Dr Patricia A Vargas, the lead collaborator of the study said: “Our hope is two-fold – to reduce and replace animals in research, and to help and inform new therapies, treatments and even the cure for this debilitating disease.”

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Have you stopped receiving our weekly e-newsletter?

Europe

Author: Joe McAweaneyPublished: 12 July 2018

Prep: Cook: Serves:

Last Month

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Resources & Tools

Parkinson’s podcast: Beyond motor symptoms

Interviews

Olie Westheimer: the visionary behind Dance for PD

Health & Fitness

Tonya’s trainers: the long road back to running

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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Have you stopped receiving our weekly e-newsletter?

Europe

Author: Joe McAweaneyPublished: 12 July 2018

Prep: Cook: Serves:

Last Month

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Comments

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Resources & Tools

Parkinson’s podcast: Beyond motor symptoms

Interviews

Olie Westheimer: the visionary behind Dance for PD

Health & Fitness

Tonya’s trainers: the long road back to running

EPDA signs new charter on workplace rights

New wearable device could counteract gait

Could robots replace animals in Parkinson’s medical trials?

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