Award-winning Parkinson’s inventor told to leave UK within 14 days
Author: Geoffrey ChangPublished: 19 May 2017
Prep: Cook: Serves:
Inventor’s future in Britain – and her ability to develop her innovative Parkinson’s walking aid – hangs in the balance after her application for a visa renewal was turned down
The inventor of a ‘smart’ walking stick that could change the lives of millions of Parkinson’s patients has been told she has 14 days to leave the UK after her visa renewal application was rejected by the Home Office – on the grounds of a minor technical fault – which puts her groundbreaking work in jeopardy.
Neha Chaudhry, a 24-year-old graduate of the University of the West of England, told Parkinson’s Life there was “a misunderstanding” with a date discrepancy on one of her documents in the 66-page form, which meant that it was rejected. The decision comes eight weeks after her initial application.
Born in Pakistan, the award-winning inventor has won nearly £100,000 of investment to develop her pioneering walking stick for people with Parkinson’s, which helps prevent a common symptom known as ‘freezing’ of gait – the sudden inability to walk. She has been in the UK since 2010 and began working on the device while studying for her degree in product design technology.
Neha said over the phone: “It’s very upsetting. This is not something I thought would ever happen. The thing that hit me when I first received the rejection letter on 10 May was, ‘what do I say to all the Parkinson’s patients I have promised this product to?’
“I get emails every day from patients and their families, asking me when it will be ready, people who want to buy this product for their loved ones and are hopeful that it will be made. But if I have to leave, it would delay or put my work on hold completely. I don’t know how I would answer them. They would be very disappointed and it would just be very sad.”
The problem with her visa application arose after one of her submitted documents, detailing her status as a director of the company, mistakenly didn’t include a date.
Neha with an early prototype of her ‘smart’ walking stick
Designed to look like a normal walking stick to avoid drawing unwanted attention to the user, the device sends a rhythmic pulse to the handle when it detects a pause in motion. The beat acts as a reminder, encouraging patients to walk and keep pace with it.
“I spent three to four months doing research, talking to patients, going to care homes and attending Parkinson’s UK drop-in sessions. More than the disease itself, a big problem is its impact on social lives. Some other products for people with Parkinson’s have a stigma attached to them – they look like products for disabled people,” said Neha in an earlier interview.
Around 10 million people have Parkinson’s worldwide. According to the National Parkinson Foundation, 38 per cent of patients fall each year due to freezing, which can happen without warning, anytime and anywhere, and can lead to injury.
Because of my grandfather
Inspired by her late grandfather, who experienced freezing and falls because of his Parkinson’s, the student entrepreneur founded her own start-up company, ‘Walk to Beat’, to support the development of the product.
After the walking stick showed so much promise in testing phases, with interest from the NHS and Parkinson’s UK, Neha now feels a duty to the patients to fulfill her work that will improve their quality of life.
“When I do this work I’m not doing it for my own good, but for the people who need this,” she said. “I started this work because of my grandfather and when I meet patients, they remind me of him. It is something I can relate to very easily.
“It just confuses me that on the one hand I’m getting all these entrepreneur awards, funding and prizes. But on the other, I’m told there is a technical issue with my visa, so now I’ve got to leave. This doesn’t make sense to me.”
Neha has appealed the case, which is currently under review by the Home Office.
Ireland survey aims to uncover link between pesticides and Parkinson’s disease
Previous studies of vineyard and agricultural workers in France and the US highlight potential correlations between pesticide exposure and Parkinson’s risk. Now, a team is conducting the first study in Ireland to investigate this potential link. Last week, researchers from University College Cork, Ireland, took to the country’s National Ploughing Championships – a three-day country show, agricultural trade fair and ploughing competition. Their goal? To “gather information on the environmental risks associated with Parkinson’s in Ireland”, according to Professor Aideen Sullivan of the university’s Department of Anatomy and Neuroscience. “Our survey is a broad-stroke approach. We are going to ask people what categories of pesticides they’ve used,” said Sullivan’s colleague, Dr Lucy Collins-Stack. “We are going into this thinking there may be a stronger link with rural settings rather than towns, but we still want to look at both.” The survey can be completed online.
Is there a link between Parkinson’s disease and blood vessel dysfunction?
Scientists in Slovakia have investigated the link between blood vessel dysfunction and Parkinson’s – and found that dopamine agonists may have an impact. The team studied the function of the endothelium – a membrane which lines the heart and blood vessels and helps control blood fluidity – in 41 people with the condition and 41 people without. Endothelial function was then measured through a parameter that assessed how easily blood could flow through the vessels. The results showed that while more people with Parkinson’s had endothelial dysfunction compared to those without, the difference did not reach statistical significance. However, the researchers noted that the findings suggested “an association between smoking, dopamine agonists, and impaired endothelial function” in those with the condition. Outlining the study’s limitations, the team noted that more research is needed to explore this potential link.
New swab test may help with Parkinson’s disease diagnosis
Researchers at the University of Manchester, UK, have drawn on one woman’s sense of smell to develop a swab test that may be used to detect Parkinson’s. The scientists used the test to analyse sebum (a type of oily substance on the skin) in 79 people with Parkinson’s and a control group of 71 healthy individuals. The team identified more than 4,000 different compounds in the participant samples – including 500 that were unique to those living with the condition. The test was developed with the help of Joy Milne from Perth, Scotland, whose unique sense of smell meant that she noticed a change in her late husband Les’s odour twelve years before he was diagnosed with Parkinson’s. Speaking to the BBC, Professor Perdita Barran, who led the research, described the test as potentially “transformative” – and said that the team hopes to roll the test out to people in…