New Parkinson’s survey to campaign for better quality of life

Advances

Author: Simge Eva DoganPublished: 19 July 2018

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

survey

A new survey for people with Parkinson’s has been launched by the EPDA and UCB


The European Parkinson’s Disease Association (EPDA) has launched a Europe-wide survey “to better understand the issues faced on a daily basis by people with Parkinson’s”.

The survey – which is being run with the EPDA’s long-term industry partner UCB – will ask questions on essential topics including how to help people with the condition live a “full life” and maintain their individual identities, and how to help them find appropriate support and cope better with the everyday challenges of living with Parkinson’s.

The answers to the survey will form the basis of a campaign focused on improvements in healthcare management to enhance everyday quality of life.

The survey has 14 questions and takes approximately 10 minutes to complete. It is available online in eight languages including English, German, Spanish, French, Italian, Hungarian, Greek and Swedish.

If you are living with Parkinson’s, or are a partner or carer to a person with the condition, you can take part in the survey here.


Read more:
Five incredible feats by people living with Parkinson’s

Is your Parkinson’s making you tired?

Go Back

Share this story

Comments


Related articles


Harry Styles Anne Twist

Carers' Corner

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

One Direction star praised for care of granddad with Parkinson’s

READ MORE
Tahiti

Interviews

“I’m trying to be the Stephen Hawking of Parkinson’s”

We talk US rapper with Parkinson’s Walter J Archey III

READ MORE
PD-Podcast-DBS

Resources & Tools

Parkinson’s podcast: DBS – a report from the front lines

Get the low-down on new surgical and non-surgical interventions

READ MORE