New Parkinson’s survey to campaign for better quality of life
Author: Simge Eva DoganPublished: 19 July 2018
Prep: Cook: Serves:
A new survey for people with Parkinson’s has been launched by the EPDA and UCB
The European Parkinson’s Disease Association (EPDA) has launched a Europe-wide survey “to better understand the issues faced on a daily basis by people with Parkinson’s”.
The survey – which is being run with the EPDA’s long-term industry partner UCB – will ask questions on essential topics including how to help people with the condition live a “full life” and maintain their individual identities, and how to help them find appropriate support and cope better with the everyday challenges of living with Parkinson’s.
The answers to the survey will form the basis of a campaign focused on improvements in healthcare management to enhance everyday quality of life.
The survey has 14 questions and takes approximately 10 minutes to complete. It is available online in eight languages including English, German, Spanish, French, Italian, Hungarian, Greek and Swedish.
If you are living with Parkinson’s, or are a partner or carer to a person with the condition, you can take part in the survey here.
Share this story
Study finds people with Parkinson’s leave work five years after diagnosis
Fatigue was cited as the biggest reason for being unable to workREAD MORE
Michael J Fox Foundation launches ‘Fox Insight’ patient-led Parkinson’s data study
Sign-up now to the new patient-led data study from the MJFFREAD MORE
Sex and young onset Parkinson’s
Coping with the impact of Parkinson’s on sexuality at a younger ageREAD MORE