New survey highlights challenges facing Parkinson’s carers

Carers' Corner

Author: Roisin McCormackPublished: 13 June 2019

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

Nurse and senior couple talking at a home visit

The EPDA is launching a survey that hopes to highlight the difficulties and consequences of caring for someone with Parkinson’s


The European Parkinson’s Disease Association (EPDA) is releasing a new survey that seeks to shine a light on the physical, emotional and financial challenges of caring for someone with Parkinson’s.

The survey, which is being conducted with support from healthcare devices company Air Liquide Healthcare, is aimed at anyone who provides care – either in a continuous or occasional capacity – for a family member, partner or friend living with the condition.

Hoping to gain new insight into the experience of being a carer – as well as the often overlooked effects on the individual and society at large – the EPDA plans to use results to inform future campaigns and curate a new range of valuable resources, tools and solutions for carers and the wider Parkinson’s community.

Taking no more than 15 to 20 minutes to complete, the survey will be available in several European languages including English, Finnish, Italian, Norwegian and Czech.

Russell Patten, the secretary general of the EPDA, said: “Carers are such an important part of the Parkinson’s community – they provide the firm foundations that support their loved ones who are physically living with the condition.

However, carers’ needs and quality of life are sadly, all too often, overlooked; this can lead to devastating and lasting effects on the individual and the wider society.”

The survey is open until 6 September 2019.

Please click here to take part in the survey, available in English, French, German and Italian.

For more information on carers and Parkinson’s, please visit the EPDA website.


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