Online video campaign ‘gives life’ to powerful Parkinson’s stories
Author: Geoffrey ChangPublished: 13 August 2015
Prep: Cook: Serves:
Sometimes a story needs more than just words on a page
A non-profit organisation has dedicated its 2015 campaign to raising international awareness of Parkinson’s through a collection of inspiring crowd-sourced videos.
Based in New York, the charity – My Angel My Hero – is appealing to those living with Parkinson’s to submit videos describing their personal journeys, the highs and the lows.
By encouraging people to share their stories, the campaign is aiming to inspire, empower and spread hope for others tackling the disease. The charity hopes to create a library of at least 200 online videos within the first year.
The charity has assembled a team of 25 volunteers from, video editors to development professionals to lawyers, to join in the humanitarian efforts.
Faizan Sheikh, founder of My Angel My Hero, said: “My Angel My Hero’s mission is to give life to stories through videos and films. We believe every moment is a story. Every story has a message. In phase one of our 2015 campaign, we’ll offer people affected by Parkinson’s the opportunity to be heard.”
The name of the campaign comes from a film that Sheikh made about a promising young dancer who is diagnosed with young onset Parkinson’s, a story inspired by real life events. He began to encourage others facing Parkinson’s to recount their experience on camera, giving rise to this latest online campaign.
Frankie Smith, a retired maths teacher diagnosed with Parkinson’s at 53, learned about My Angel My Hero in a chat room. In her video testimonial she says: “Every day I wake up, and I have a sense of gratitude. I hope that as my Parkinson’s gets worse and as I meet each new challenge, I continue to have an attitude of thankfulness and a choice to be happy.”
About My Angel My Hero
My Angel My Hero is a 501(3)(c) non-profit organisation committed to raising awareness for various social, medical and charitable causes including Parkinson’s disease, autism and domestic violence. What began as an idea to help patients tell their stories has grown into a full team of volunteers and community members that is rooted in compassion, growth and advocacy.
Parkinson’s prevalence expected to increase by 18% in next seven years
Aging UK population could see increase in Parkinson’s over time
3 weeks ago
Plant-based compounds could treat chronic pain in Parkinson’s, study finds
A six-year study has found that chronic pain in people with Parkinson’s is linked to a gene involved with how the brain responds to cannabis compounds. The investigation examined why some people with the condition experience persistent pain – and the impact it has on their work, daily life and social relationships. Conducted by researchers at Manchester’s Salford Royal Foundation Trust, UK, and funded by Parkinson’s UK, it is the largest study to investigate chronic pain in people with Parkinson’s. Dr Monty Silverdale, consultant neurologist at Greater Manchester Centre, said: “This study is significant because it shows the important role of genetics in chronic pain in Parkinson’s. “Our findings suggest that cannabis-based compounds may be worth investigating as a treatment for pain in Parkinson’s.”
Could playing table tennis help reduce Parkinson’s symptoms?
Researchers at Fukuoka University, Japan, have found that playing table tennis may help alleviate motor symptoms in Parkinson’s. As part of the study, 12 people with Parkinson’s with an average age of 73 played a five-hour session of table tennis every week for a period of six months. The sessions were developed specifically for people with the condition by experienced table tennis players from the university’s department of sports science. The participants were evaluated after three months and at the end of the study. At both evaluations, participants had reduced symptoms – showing improvement in speech, handwriting, walking and hand tremors. Two participants reported side-effects of backache and falling. Study author Ken-ichi Inoue, MD, of Fukuoka University said: “While this study is small, the results are encouraging because they show ping pong, a relatively inexpensive form of therapy, may improve some symptoms of Parkinson’s disease. A much larger study is…
‘Dopamine-boosting’ BT13 molecule could be used to slow Parkinson’s
Researchers have discovered that a molecule called BT13 could have potential to treat Parkinson’s. The study, conducted by scientists from the University of Helsinki, Finland, found that mice injected with the BT13 molecule had an increase in dopamine levels in the brain. Their findings also suggested that the molecule could lead to a new drug treatment to protect the brain cells that produce dopamine. Dopamine helps coordinate movement, but people with Parkinson’s have normally lost between 70 and 80% of the brain cells that produce the neurotransmitter when they are diagnosed with the condition. Professor David Dexter, Deputy Director of Research at Parkinson’s UK – which co-funded the study – said: “People with Parkinson’s desperately need a new treatment that can stop the condition in its tracks, instead of just masking the symptoms. “More research is needed to turn BT13 into a treatment to be tested in clinical trials, to…