Online video campaign ‘gives life’ to powerful Parkinson’s stories
Author: Geoffrey ChangPublished: 13 August 2015
Prep: Cook: Serves:
Sometimes a story needs more than just words on a page
A non-profit organisation has dedicated its 2015 campaign to raising international awareness of Parkinson’s through a collection of inspiring crowd-sourced videos.
Based in New York, the charity – My Angel My Hero – is appealing to those living with Parkinson’s to submit videos describing their personal journeys, the highs and the lows.
By encouraging people to share their stories, the campaign is aiming to inspire, empower and spread hope for others tackling the disease. The charity hopes to create a library of at least 200 online videos within the first year.
The charity has assembled a team of 25 volunteers from, video editors to development professionals to lawyers, to join in the humanitarian efforts.
Faizan Sheikh, founder of My Angel My Hero, said: “My Angel My Hero’s mission is to give life to stories through videos and films. We believe every moment is a story. Every story has a message. In phase one of our 2015 campaign, we’ll offer people affected by Parkinson’s the opportunity to be heard.”
The name of the campaign comes from a film that Sheikh made about a promising young dancer who is diagnosed with young onset Parkinson’s, a story inspired by real life events. He began to encourage others facing Parkinson’s to recount their experience on camera, giving rise to this latest online campaign.
Frankie Smith, a retired maths teacher diagnosed with Parkinson’s at 53, learned about My Angel My Hero in a chat room. In her video testimonial she says: “Every day I wake up, and I have a sense of gratitude. I hope that as my Parkinson’s gets worse and as I meet each new challenge, I continue to have an attitude of thankfulness and a choice to be happy.”
About My Angel My Hero
My Angel My Hero is a 501(3)(c) non-profit organisation committed to raising awareness for various social, medical and charitable causes including Parkinson’s disease, autism and domestic violence. What began as an idea to help patients tell their stories has grown into a full team of volunteers and community members that is rooted in compassion, growth and advocacy.
WEBINAR: Learn about the role of intestinal bacteria in Parkinson’s disease
Register now for this free, hour-long live webinar
1 day ago
Has Covid-19 impacted access to Parkinson’s medication?
New research has found that the coronavirus pandemic has affected access to medication for people living with Parkinson’s disease. The sub-study used information from a survey conducted by the International Parkinson and Movement Disorder Society. The results from 346 participants showed that 22.8% of high-income and 88.9% of low-income countries’ respondents agreed that the coronavirus crisis had impacted people’s access to Parkinson’s medication. Some respondents reported increased disability, increased hospitalisation and increased mortality as factors. The majority of those who completed the survey were doctors. The researchers concluded: “Our results offer preliminary data that the Covid-19 pandemic has affected Parkinson’s disease patients’ access to regular medication. “Covid-19 has diverted resources away from chronic conditions towards the fight against Covid-19 in many countries. Resource-poor countries seem to be disproportionately affected compared to their affluent counterparts.”
Brazilian dance could improve mobility in people with Parkinson’s, study finds
Researchers at the Federal University of Rio Grande do Sul in Brazil compared participants in a 12-week programme, inspired by samba and forró dances, with those in a walking exercise programme to measure improvement in their functional mobility and gait. The 18 participants had an average age of 68.6 and had all been diagnosed with Parkinson’s over a year ago. The results, published in journal BMC Neurology, found that both groups showed significant improvements in mobility and balance tests. Participants in the dance group showed increases in stride frequency at a self-chosen test speed and a reduced swing time (the amount of time the foot is off the floor) at a fast speed. The results indicated that dance was as “effective as walking in improving functional mobility”. The researchers wrote: “It is essential to find different activities that can offer benefits to individuals… so that they can engage in the…
#WomenAndParkinsons shortlisted for ‘Charity Content Campaign of the Year’
Parkinson’s Life’s #WomenAndParkinsons campaign – a series highlighting the unique experiences of the estimated three million women worldwide who live with the condition – has been shortlisted in the UK Content Awards 2020 in the ‘Not-for-Profit / Charity Content Campaign of the Year’ category. Since its launch in 2019 the #WomenAndParkinsons campaign has covered topics including: the impact of menstruation on medication; the difficulties surrounding pregnancy, childbirth and breastfeeding with Parkinson’s; the interaction between menopause, sex and Parkinson’s; how coronavirus is impacting the lives of women with the condition; and what’s behind the lack of focus on gender. Parkinson’s Life editor Simge Eva Dogan, said: “Our campaign has centered on voices that were previously unheard and started much-needed discussions about the specific needs and experiences of women who are living with Parkinson’s. Being recognised by this award will help us to build on the success of the campaign so far and continue…