Parkinson’s is more complicated the older you get, and
that’s what the album’s about – all the symptoms, all the feelings you get and
the strange ways that people start to treat you. If you have Parkinson’s,
you’ll recognise it straight away – it’s all to do with how we feel and not
necessarily how we look. The message for those with Parkinson’s is ‘you’re not
The condition came along when I was about 54. It started
off in the shower – I was trying to rub my back and realised my left arm
wasn’t working very well. I went to the piano and I thought, “actually, it’s
falling behind the right hand”. My doctor referred me to a neurologist in
Nottingham, who said: “Have you ever heard of Parkinson’s disease?” It wasn’t a
very nice moment.
Parkinson’s can take you to dark places in your head. It’s
not the shaking and it’s not the stumbling or falling – it’s the phases of
nightmares and sleeplessness. That’s where I was at the time I started to write
my album two years ago. Parkinson’s impacted my piano playing – so the only
thing left to me now is to write music.
It’s not all doom and gloom. There’s a lot of humour to be had – we get ourselves into some interesting situations! If you can find a reason to laugh, you’ve got to take it.
What’s your musical background?
I’m a retired music teacher, but a full-time musician.
I’ve worked with lots of young people over the years through choirs, classroom
teaching and practical music making. I wrote music for amateur and professional
theatre and used to direct and write music for Derby youth theatre. I was a
That’s where my MBE – an order of the British Empire award – came from. When I received the letter, I thought it was a joke actually because it was all typed out like on an old typewriter. Prince Charles gave me the award and it was very special.
Why did you choose to feature a range of different genres and styles?
It was a conscious decision to explore different styles. The fascinating thing about Parkinson’s is that all sorts of different talented people and all different types of character can get it. The different styles reflect these different people. There’s going to be something for everyone – there’s folk, modern rock and a bit of country – there’s even opera in there.
How has music been important to your experience of Parkinson’s?
Sometimes it’s almost miraculous. I’m working on a new album and I put it on the other day. To be honest, I couldn’t walk at the time. I literally had to crawl because I was so worried about falling over – one of these days I’m going to fall straight through the drum kit! I put this track on, and it motivated me so much that I was able to snap straight out of it. And by the end of the track, three minutes later, I was dancing. I could even dance on one leg.
What role do you think that music can play during the coronavirus crisis?
Music can shake up our emotions and also straightens them
out. I love dancing around the studio listening to a track that I have
just recorded. A Beethoven symphony or a Benjamin Britten opera, or the White
Album can all take me to a special place in my head that Parkinson’s can’t get
Take some time out to plan some making and listening time for music. It does not matter how skilled you are, what experience you have, what style, where in the world the music originates, whether you are making music or listening or dancing – or all of these simultaneously. Just do it. Music, however you engage with it, will help you through.
What would you like to achieve next?
I’d like to raise more money for Parkinson’s research. 50% of anything I make on the album is going to a charity for Parkinson’s and if there’s any profit, the rest is going to be invested in my next album. I’d like to take it to a professional studio and producer, because collaboration has always been the key to the best things I’ve done.
Do you have a message for people with Parkinson’s at the moment?
My hope for the Parkinson’s community is that the science and the determination of humanity to find a vaccine to stop the coronavirus, will continue to advance and find a cure for Parkinson’s and all other disease. It’s ambitious, as well as hopeful – but we can do anything if we all put our minds to it.
To find out more about Parkinson’s and creative therapies, please visit the EPDA website.
Need to Know
Tony Coffey from Guernsey, Channel Islands, was diagnosed with Parkinson’s in 2009. He retired as a music teacher aged 60 – a year after receiving an MBE for services to education in 2014. His album ‘Out My Head’, dedicated to the carers of people with Parkinson’s, features 18 tracks about his experience of the condition.
We speak to the winner of our Parkinson’s poetry competition 2019
1 day ago
Antioxidants could reduce risk of Parkinson’s disease by 32%, study finds
Antioxidant vitamins, found in foods like almonds, avocados and broccoli, could reduce the risk of Parkinson’s disease, researchers in Sweden have reported. The scientists analysed data from a study of 43,865 men and women, aged between 18 and 94. Participants were asked to share information about their diets when the study began and were then monitored through health records over an average of almost 18 years. The researchers found that those who had reported high levels of vitamins C and E – which help prevent cell damage and inflammation – had a 32% lower risk of developing Parkinson’s disease. “Our findings suggest that dietary vitamin E and C intake might be inversely associated with the risk of Parkinson disease,” the scientists concluded.
Weight, sleep and depression linked to risk of cognitive problems in Parkinson’s
Researchers at the University of Pennsylvania, US, have found that people with early Parkinson’s disease are at higher risk of developing cognitive impairments if they are overweight, have disruptive sleep behaviours or experience symptoms of depression. Evaluating data from 405 people, the researchers used statistical analysis to identify relationships between certain characteristics and changes in patient cognition over time. Their findings suggest that factors such as high body mass index (BMI) or excessive sleepiness are associated with a faster rate of cognitive decline in Parkinson’s disease. The researchers wrote: “Despite its common and devastating occurrence, treatment of [cognitive impairments] in [Parkinson’s disease] is limited and no medications slow its onset or progression. However, identification of treatable or modifiable comorbidities that affect the rate of progression of [cognitive impairments] in [Parkinson’s disease] could provide opportunities for early intervention and improved prognosis.”
Gene screening technique could offer insights on Parkinson’s disease
Researchers from the Massachusetts Institute of Technology (MIT), US, will investigate genes that could protect cells in the brain against Parkinson’s disease. An award from US non-profit G Harold and Leila Y Mathers Foundation will allow scientists to use a mouse model screening technique to find out more about the condition. Individually deleting each of the 22,000 genes present in mice neurons will help identify which genes are linked to neuron survival – and offer insights that could lead to new treatments for the condition. Dr Myriam Heiman, an Associate Professor at MIT, said: “There is currently no molecular explanation for the brain cell loss seen in Parkinson’s disease or a cure for this devastating disease. I’m extremely grateful for this generous support and recognition of our work from the Mathers Foundation, and hope that our study will elucidate new therapeutic targets for the treatment and even prevention of Parkinson’s…