Michael J Fox Foundation launches ‘Fox Insight’ patient-led Parkinson’s data study

PD in Practice

Author: Parkinson's Life editorsPublished: 16 November 2017

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Fox insight interface lead

A new Parkinson’s study from Michael J Fox Foundation allows patients to log their own data about health-related experiences – aiming to build a large, diverse data set to advance the understanding of the condition

The new patient-led Parkinson’s data study from The Michael J Fox Foundation, ‘Fox Insight’, is an online clinical study where people with Parkinson’s – and their family and friends– share information that could transform the search for better treatments.

The study aims to build a large, diverse cohort of people with Parkinson’s and age-matched control volunteers, giving people living with the condition the opportunity to partner with scientists to influence research design, and shape patient-relevant outcomes.

The programme easily collects patient-reported data about health-related experiences from those with – and without – Parkinson’s in a number of ways:

– Every 90 days participants will be invited to provide health-related information through a series of researcher-designed questionnaires on health-related topics.

– Each time questionnaires are done, participant will be completing a ‘study visit’.

– Anonymised ‘Fox Insight’ data is made available to the scientific community to influence research design, scientific investigation and further discovery.

Click the image below to watch the ‘Fox Insights’ introduction video.

Fox insight video

The study’s interface can also log data collected from wearable device such as smart watches and other remote data collection methods. And participants can also learn more about the condition by exploring anonymous data contributed by other ‘Fox Insight’ participants.

To register please visit the website.

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