How would you answer these three questions on life with Parkinson’s disease?

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Author: Johanna Stiefler JohnsonPublished: 16 December 2021

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Ever since we first started recording Parkinson’s Life podcast, we’ve been asking our guests the same three questions, designed to get to the heart of what it’s like to live with Parkinson’s disease. In this end-of year special, for the first time, we share some of their answers


Tiredness. Joy, in a way. The future.

Frozen. Shameful. Life-changing.

A bloody nuisance!

Reality. Unpredictable. End of innocence.

It’s a challenge.

Quicksand. Wet cement. Mercurial.

Freezing. Changing. Lack of control.

The uninvited houseguest.

Slow. Friends. Exercise. Cure.

Insidious. Indiscriminate. Scary.

A terrible disease. Needs to be eradicated.

Movement. Disorder. Disease.

It’s a journey.

Horrible. Scary. Empowering.

Opens new doors.

What three words would you use to describe Parkinson’s? Leave your answer in the comments below.

To hear our guests’ answers to this and two other questions about what it’s like to live with the condition, tune in to our holiday podcast special: ‘Three questions on life with Parkinson’s’.


This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing, using digital or innovative solutions.


Read more:

Podcast: Pursuing passions with Parkinson’s disease

Six quotes to live by, from Parkinson’s Life podcast guests

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