How would you answer these three questions on life with Parkinson’s disease?

Episodes

Author: Johanna Stiefler JohnsonPublished: 16 December 2021

Prep: Cook: Serves:

An illustration of a group of people with speech bubbles.

Ever since we first started recording Parkinson’s Life podcast, we’ve been asking our guests the same three questions, designed to get to the heart of what it’s like to live with Parkinson’s disease. In this end-of year special, for the first time, we share some of their answers

Tiredness. Joy, in a way. The future.

Frozen. Shameful. Life-changing.

A bloody nuisance!

Reality. Unpredictable. End of innocence.

It’s a challenge.

Quicksand. Wet cement. Mercurial.

Freezing. Changing. Lack of control.

The uninvited houseguest.

Slow. Friends. Exercise. Cure.

Insidious. Indiscriminate. Scary.

A terrible disease. Needs to be eradicated.

Movement. Disorder. Disease.

It’s a journey.

Horrible. Scary. Empowering.

Opens new doors.

What three words would you use to describe Parkinson’s? Leave your answer in the comments below.

To hear our guests’ answers to this and two other questions about what it’s like to live with the condition, tune in to our holiday podcast special: ‘Three questions on life with Parkinson’s’.

To find out more about living well with Parkinson’s, visit Parkinson’s Europe website.

This podcast has been supported by a grant from the Boston Scientific Foundation Europe, whose mission is to improve patient wellbeing, using digital or innovative solutions.

Six quotes to live by, from Parkinson’s Life podcast guests

Last Month

Next Month

Go Back

Share this story

Comments

Episodes

Podcast: Love, sex and Parkinson’s

Exploring the impact of Parkinson’s disease on dating and relationships

Podcast: Pursuing passions with Parkinson’s disease

An artist and comedian discuss the condition’s impact on their interests

Podcast: Parkinson’s and loneliness

How to stay connected when living with Parkinson’s disease

35 new Parkinson’s drug trials launched in last year

Researchers launched 35 new clinical trials of Parkinson’s drug therapies in the last year, according to recent findings published in the ‘Journal of Parkinson’s Disease’. The 2023 Parkinson’s drug development pipeline report noted a slight decrease in active trials compared to the 2022 update (down from 147 to 139 overall). About one-third of trials were still in Phase 1, half were in Phase 2 – and just 20 (14%) were in Phase 3, raising concerns about ‘slow progress’. However, of the active trials logged on ClinicalTrials.gov at the time of the latest report, 35 were found to be newly registered. The report authors concluded: “The slow progress and lack of agents transitioning from Phase 2 to Phase 3 is concerning, but collective efforts by various stakeholders are being made to accelerate the clinical trial process, with the aim of bringing new therapies to the [Parkinson’s] community sooner.”

Parkinson’s Europe co-founder Lizzie Graham wins World Parkinson Coalition award

Parkinson’s Europe co-founder Lizzie Graham has won a World Parkinson Coalition (WPC) award for her contribution to the Parkinson’s community. Lizzie is one of four people set to receive the Robin Elliott Award – which is given out every three years to individuals whose efforts best embody the goals and ethos of the WPC. She will be presented with the award in a ceremony at the World Parkinson’s Congress, which will be held in Barcelona later this year. Commenting on the news of Lizzie’s award, Parkinson’s Europe President, Veronica Clark, said: “Lizzie is Lizzie, and we love her for who she is and what she has done for us all – for people with Parkinson’s past and present and, I’m sure, future.” Lizzie co-founded the European Parkinson’s Disease Association (renamed Parkinson’s Europe last year) in 1992. She has since held several roles within the organisation – including secretary general and…

Study explores predictors of cognitive impairment in Parkinson’s disease

Cognitive impairment can affect some people with Parkinson’s – and may greatly impact their quality of life. Now, researchers in China have examined the possible risk factors for cognitive impairment in those with the condition. The study analysed data from 409 people with Parkinson’s within two years of their involvement in the Parkinson’s Progression Markers Initiative (PPMI) – an international study that follows people with and without the condition over time. The participants, who were newly diagnosed and experiencing normal cognitive function at the start of the research, were studied for at least five years. Published in ‘Frontiers in Aging Neuroscience’, the results indicate that older age at onset, high blood pressure and worse baseline motor symptoms may be among factors that could contribute to an increased risk of developing cognitive impairment. The researchers cautioned that “a larger sample and much more comprehensive assessment, and prolonged follow-up, will be required”.

All fields required

First name*
Last name*
Email address*
Enter Email Confirm Email
Country of residence*
About me*
- I have Parkinson's disease
- I am a partner / carer / family / friend of someone who has Parkinson's
- I am a healthcare professional with an interest in Parkinson's
- I work for a Parkinson's disease organisation
- Other
CAPTCHA
*
- By proceeding you agree to our
Comments
This field is for validation purposes and should be left unchanged.

How would you answer these three questions on life with Parkinson’s disease?

Episodes

Author: Johanna Stiefler JohnsonPublished: 16 December 2021

Prep: Cook: Serves:

Last Month

Next Month

Share this story

Comments

Episodes

Podcast: Love, sex and Parkinson’s

Episodes

Podcast: Pursuing passions with Parkinson’s disease

Episodes

Podcast: Parkinson’s and loneliness

35 new Parkinson’s drug trials launched in last year

Parkinson’s Europe co-founder Lizzie Graham wins World Parkinson Coalition award

Study explores predictors of cognitive impairment in Parkinson’s disease

{title}

Subscribe

How would you answer these three questions on life with Parkinson’s disease?

Episodes

Author: Johanna Stiefler JohnsonPublished: 16 December 2021

Last Month

Next Month

Share this story

Comments

Related articles

Episodes

Podcast: Love, sex and Parkinson’s

Episodes

Podcast: Pursuing passions with Parkinson’s disease

Episodes

Podcast: Parkinson’s and loneliness

35 new Parkinson’s drug trials launched in last year

Parkinson’s Europe co-founder Lizzie Graham wins World Parkinson Coalition award

Study explores predictors of cognitive impairment in Parkinson’s disease

{title}

Subscribe

Sign in