High-profile MEP supports European inventory research initiative

The European Parkinson’s Disease Association (EPDA) marked World Parkinson’s Day with the launch of a major research project – as part of its My PD Journey initiative – in a drive to increase political awareness and backing from MEPs

At a workshop held on 14 April in Brussels the EPDA presented the findings of the European inventory project to an audience of MEPs and other influential individuals. The inventory – My PD Journey’s first major initiative, developed in partnership with the European Section of the International Parkinson and Movement and Disorder Society (MDS-ES) – aims to identify where gaps in the current Parkinson’s care pathways exist and seek out national examples of good practice that could be replicated in other regions. My PD Journey is a multi-stakeholder initiative for people with Parkinson’s in Europe, led by the EPDA.

MEPs were also encouraged to sign the EPDA’s Pledge for Parkinson’s and commit to the organisation’s MEP Support Network – an informal interest group, led by the EPDA, whose members are devoted to raising awareness at national and European level.

Mairead McGuinness (pictured above), Vice President of the European Parliament, signed the Pledge for Parkinson’s and said in her speech: “Everyone knows someone with Parkinson’s and has a personal story. The EU can be a very cohesive force in making sure that all people get access to the right treatment. The personal and societal costs are enormous. It is therefore important to have an emphasis on Parkinson’s at a European level. We want and need better outcomes.”