Free online tool allows you to track Parkinson’s symptoms

Resources & Tools

Author: Geoffrey ChangPublished: 7 January 2016

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Prepare for your next health consultation with the easy tool that clearly maps out your symptoms

The Parkinson’s Well-Being Map is an online tool that allows you to record and review your Parkinson’s symptoms – covering all aspects of living with the condition – helping you prepare for health consultations.

Well being map ii

Simple multiple-choice questions measure the frequency and severity of your symptoms in a colourful chart. Once completed, the map clearly highlights which symptoms are of most concern, so that you can get the most out of your next health consultation.

The map is available in a number of languages and you can fill in the chart online, or download for free and have your own printed version. When you have completed it, you can take a copy of the map with you to your next consultation with a healthcare professional, which will help them better assess your condition.

Download the Parkinson’s Well-Being Map here

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Take part in The Parkinson Tulip Project

This April, The World Parkinson Coalition is launching The Parkinson Tulip Project – a global collaborative photography campaign to raise awareness of the world’s fastest growing neurological disease. As part of the campaign, which is supported by Supernus Pharmaceuticals, members of the Parkinson’s community are invited to share a photo of themselves with tulips – the official symbol of Parkinson’s disease. The project will run until April 2022, and all images shared by the community will be displayed at the sixth World Parkinson Congress in Barcelona, Spain. Additionally, every photo submitted will be entered into The Parkinson Tulip Project raffle. The World Parkinson Coalition hopes that the project will “give a face and name to those impacted by Parkinson’s” and “inspire the community, reminding people touched by Parkinson’s disease that they are not alone”.

Looking after dental health with Parkinson’s disease

Parkinson’s disease symptoms and medications can cause dental health problems – including difficulty cleaning teeth and increased tooth decay. Now, a study from researchers in Brazil has offered dental care recommendations to help people living with the condition. Analysing data from 14 studies, the scientists highlighted people with Parkinson’s can have “reduced quality of oral health and hygiene”. Their advice included routine teeth-brushing, as well as regular trips to a dentist. They also suggested brushing teeth with both hands, as symptoms like tremor and rigidity could mean using one hand is more difficult. The researchers wrote: “Although oral diseases are largely preventable, they are among the most prevalent diseases globally, thus creating a public health problem. “Despite the relatively low level of evidence in studies on oral health among patients with Parkinson’s disease, the data retrieved for this systematic review allowed us to create a set of simple guidelines.”

Why Parkinson’s disease research can’t ignore sex differences

Researchers at the University of Maryland, US, have highlighted the growing body of research that suggests male and female patients are affected differently by Parkinson’s disease. Parkinson’s disease is caused by the death of cells in the brain and nervous system. These cellular changes are associated with the collapse of the blood-brain barrier – a border of cells that protects the brain from damaging molecules. In the article – published in scientific journal ‘APL Bioengineering’ – the researchers observed that this barrier behaves differently in male and female patients. The fact that some research suggests women tend to have a stronger blood-brain barrier, for example, could explain why Parkinson’s disease is more common in men. Dr Alisa Morss Clyne, one of the article’s authors, says this research has been an “awakening”. She adds: “You cannot ignore sex differences. My goal is to inspire people to include sex differences in their research.”

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Free online tool allows you to track Parkinson’s symptoms

Resources & Tools

Author: Geoffrey ChangPublished: 7 January 2016

Prep: Cook: Serves:

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“I want to create technologies that help alleviate human suffering”

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Free online tool allows you to track Parkinson’s symptoms

Resources & Tools

Author: Geoffrey ChangPublished: 7 January 2016

Prep: Cook: Serves:

Last Month

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“I want to create technologies that help alleviate human suffering”

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