Win a free copy of ‘Faces of Parkinson’s’ book by sharing #UniteForParkinsons
Author: Parkinson's Life editorsPublished: 15 February 2017
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Enter our competition to win a copy of ‘Faces of Parkinson’s: Global Reflections on PD’ and help raise awareness of the #UniteForParkinsons campaign
To coincide with the #UniteForParkinsons campaign, we’re launching a competition for three lucky readers to win a copy of ‘Faces of Parkinson’s: Global Reflections on PD’, a new book of personal portraits, published by the World Parkinson Coalition®.
The #UniteForParkinsons campaign, launched by the European Parkinson’s Disease Association and Parkinson’s UK charities, aims to raise an unprecedented amount of awareness on World Parkinson’s Day (11 April) to mark 200 years since the condition was first medically recognised by Dr James Parkinson.
There are two simple ways of entering the competition to win a copy of the ‘Faces of Parkinson’s’ book:
2. ‘Like’ and ‘retweet’ our Twitter post, using the hashtag #UniteForParkinsons
The competition will run from 15 February until World Parkinson’s Day on 11 April 2017. Winners will be selected at random and announced the following week. Thanks to the World Parkinson Coalition® for donating copies of the book.
Stories from ‘Faces of Parkinson’s’
Here, we’ve curated some extracts from the book that are testament to the power of unity within the international Parkinson’s community.
Brian Reedy, a person with Parkinson’s says: “Rather than lament the loss, I find myself counting my blessings. I meet amazing people with Parkinson’s. I have deepened my understanding of patience, and compassion for others. I learn to celebrate my successes no matter how challenging and time consuming they have become. My love and appreciation for my wife has grown tremendously.”
Brian Reedy and his wife Lilly Reedy
Rod Sykes, a person with Parkinson’s says: “So many people exhibit such strength of character as they cope with the vicissitudes of chronic illness. I have a renewed appreciation for their courage and determination and for the courage and love of those who support them. Day by day I am mindful of the gift of my spouse, Marilynn. Her fundamental commitment is the light by which I navigate my days.”
Rod Sykes and his wife Maralyn
Sara Riggare, a person with Parkinson’s, says: “My Parkinson’s doesn’t only affect my life, it affects my whole family: my husband, Per, and our 13-year-old daughter, Frida. She has never known me without it because even though I’ve known since my teens that I have a neurological disease, it wasn’t until Frida was six months old that I was actually diagnosed with Parkinson’s… But Parkinson’s also gives! Per, Frida and I have friends all over the world, friends we would never have met if not for Parkinson’s.”
Sara Riggare with daughter Frida and husband Per
Kevin Lockette, a clinician, says: “I am now President of the Hawaii Parkinson Association and am networking with community partners to facilitate programs to help people live well with Parkinson’s…Working with people with Parkinson’s has given me the opportunity and life purpose to try to make the planet a better place, at least in my corner of the world. It is encouraging to see the improved attitude from the healthcare community and society toward treatment and care of people with Parkinsonn’s.”
Nasrin Esnaashari, a clinician, says: “I learned to search for the person, not the Parkinson’s, and recognise the trust they have in their clinician. I learned to heal the person, not the clinical symptoms and feel their physical and emotionally challenging paradigm. My discoveries simply made me a better clinician, nurse practitioner and a healer!”
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Regular exercise may slow progression of early Parkinson’s disease symptoms
A research team in Japan has suggested that around four hours of weekly moderate exercise is associated with a better clinical course of early-stage Parkinson’s. Their study, published in ‘Neurology’, drew on data from 237 people with the condition, whose symptoms were monitored over a period of up to six years. The research showed that people who were regularly active for at least one to two hours, one or two days a week, were better able to maintain daily activities than those who exercised less – and even experienced a “slower deterioration of processing speed”. The researchers highlighted that these benefits stemmed from maintaining regular exercise over time, rather than levels of activity at the onset of the condition. They added that their findings “suggest it may never be too late for someone with Parkinson’s to start an exercise programme”.
Could traumatic brain injury accelerate the onset of Parkinson’s disease?
Undergoing a traumatic brain injury (TBI) – a sudden injury that damages the brain – may be linked to Parkinson’s onset at an earlier age, new research suggests. The study, led by researchers in the US, examined data from the National Alzheimer’s Coordinating Centre (NACC) database and assessed whether TBI was associated with age of disease onset, survival and the degeneration of dopamine-producing nerve cells in the brain. They found that while there was no significant association with age of death or greater impact on dopamine-producing nerve cells, results showed that TBI was linked to a 4.9-year earlier age of Parkinson’s onset. Reflecting on the results, the researchers wrote that traumatic brain injury “appears to accelerate Parkinson’s onset without altering age of death”. However, the researchers also cautioned that “the nature of this relationship remains unclear”.
NASA astronaut who lived with Parkinson’s disease has died
“When I got diagnosed with Parkinson’s I thought it was over,” US astronaut Michael “Rich” Clifford once said, in a webcast conversation with Parkinson’s expert Dr Ray Dorsey. But when US space agency NASA offered him another opportunity to board a space shuttle, despite the onset of Parkinson’s symptoms, he didn’t hesitate. “And it was as easy as that.” Now, nearly 30 years since his final venture into space, Clifford has died due to complications from Parkinson’s disease. He leaves a legacy of three journeys into space, several awards for his services to the space programme – including the NASA Space Flight Medal – and a history of advocacy for people with Parkinson’s. In a 2013 conversation with the Michael J Fox Foundation, Clifford said: “Everyone with Parkinson’s handles it differently. Don’t let it get in the way of living. “Life is too good. Keep going. The sky’s the limit.” Image credit:…