Take part in a global Parkinson’s carers survey

News

Author: Joe McAweaneyPublished: 18 July 2019

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

EPDA Parkinson's carers survey

The European Parkinson’s Disease Association (EPDA) is inviting carers from within the Parkinson’s community to take part in a survey aiming to shine a light on the physical, financial and emotional difficulties they face.

The research – supported by French healthcare devices company Air Liquide – will be used to inform future campaigns and create valuable tools to help carers and the wider Parkinson’s community.

Russell Patten, the secretary general of the EPDA, said: “Carers are such an important part of the Parkinson’s community – they provide the firm foundations that support their loved ones who are physically living with the condition.

“However, carers’ needs and quality of life are sadly, all too often, overlooked; this can lead to devastating and lasting effects on the individual and the wider society.”

The survey is open until 6 September 2019, and is available in English, French, German Italian, Danish, Dutch, Portuguese, Slovenian and Spanish.

For more information on caring and Parkinson’s please visit the EPDA website.


Read more:

Scottish university reveals multimillion-pound Parkinson’s research partnership

Parkinson’s may originate in the gut, says new study

Go Back

Share this story

Comments


Related articles


First Steps

Interviews

First Steps: making Parkinson’s “less scary”

The two-day programme is created by people with Parkinson’s, for people w

READ MORE
Michael J Fox webinar

Resources & Tools

WEBINAR: Learn about the role of intestinal bacteria in Parkinson’s disease

Register now for this free, hour-long live webinar

READ MORE
Woman preparing lesson

Interviews

Providing free speech therapy for New York’s Parkinson’s community

We talk to student clinician Beata Royzman about speech therapy for Parkins

READ MORE