Carers' Corner Archives - Parkinson's Life

Carers' Corner

Learn more about the Parkinsons Wellness Project initiative
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Carers' Corner

Netherlands researchers highlight the importance of “supportive networks"
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Carers' Corner

Advocate Leslie Peters on the challenges faced by carers
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‘I Got You’ – a musical tribute to Parkinson’s disease caregivers

Learn more about the Parkinsons Wellness Project initiative

Female carer feeding her female patient soup with a spoon

A “missed opportunity” for Parkinson’s disease carers?

Netherlands researchers highlight the importance of “supportive networks"

“My voice matters”: Parkinson’s caregiver raising awareness

Advocate Leslie Peters on the challenges faced by carers

Catherine Strisik Parkinson's poetry competition

World Poetry Day: Parkinson’s, marriage and grief

We speak to the winner of our Parkinson’s poetry competition 2019

New survey highlights challenges facing Parkinson’s carers

Parkinson's Europe launches a new multilingual survey for Parkinson’s car

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

One Direction star praised for care of granddad with Parkinson’s

Young woman sleeping in bed beside the window

How my husband’s Parkinson’s has ruined our sex life

A candid account of sex life and Parkinson’s

Faces of Parkinson’s: “His facial expressions have changed, but not the sparkle in his eyes”

Personal portraits of people with Parkinson’s

Campaigners win petition for ‘student carer’ tick box on uni application forms

Campaigners win petition for ‘student carer’ status on uni application forms

Student carers soon to be recognised on application forms

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Introducing the voice reminder service for Parkinson’s carers

Learn coping tricks and strategies for carers at Parkinson’s summit

The Caregiver's Summit aims to equip carers with the tools to take charge

10 shocking facts that show what it’s like to be a carer

Highlighting the issues faced by carers throughout Europe

“That you can be you – and still fight this beast everyday – makes you a giant”

How one carer and her husband overcame “terrifying” diagnosis

An emotional new poem for World Parkinson’s Day

World Parkinson’s Day: Poet pens poignant poem to raise awareness

Social experiment shows what it’s like to live with Parkinson’s for one day

Parkinsons1Day video project teaches empathy skills

Advanced Parkinson’s: a survivor’s guide to ‘transcending the pain of death’

Book review: ‘Love’s Last Measure’ by Anne Mikkelsen

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Caring for your partner can be challenging, but it doesn't have to be a bur

Carers Week launches in UK

2015 campaign focuses on building ‘carer-friendly communities’

Unemployment, debt, poverty & depression… the life of a carer

These 10 statistics highlight the realities of being a carer

‘Engagement platform’ lets carers log their work and receive rewards

Recognising and rewarding the work of carers via mobile platform

Parkinson’s Europe co-founder Lizzie Graham wins World Parkinson Coalition award

Parkinson’s Europe co-founder Lizzie Graham has won a World Parkinson Coalition (WPC) award for her contribution to the Parkinson’s community. Lizzie is one of four people set to receive the Robin Elliott Award – which is given out every three years to individuals whose efforts best embody the goals and ethos of the WPC. She will be presented with the award in a ceremony at the World Parkinson’s Congress, which will be held in Barcelona later this year. Commenting on the news of Lizzie’s award, Parkinson’s Europe President, Veronica Clark, said: “Lizzie is Lizzie, and we love her for who she is and what she has done for us all – for people with Parkinson’s past and present and, I’m sure, future.” Lizzie co-founded the European Parkinson’s Disease Association (renamed Parkinson’s Europe last year) in 1992. She has since held several roles within the organisation – including secretary general and…

Study explores predictors of cognitive impairment in Parkinson’s disease

Cognitive impairment can affect some people with Parkinson’s – and may greatly impact their quality of life. Now, researchers in China have examined the possible risk factors for cognitive impairment in those with the condition. The study analysed data from 409 people with Parkinson’s within two years of their involvement in the Parkinson’s Progression Markers Initiative (PPMI) – an international study that follows people with and without the condition over time. The participants, who were newly diagnosed and experiencing normal cognitive function at the start of the research, were studied for at least five years. Published in ‘Frontiers in Aging Neuroscience’, the results indicate that older age at onset, high blood pressure and worse baseline motor symptoms may be among factors that could contribute to an increased risk of developing cognitive impairment. The researchers cautioned that “a larger sample and much more comprehensive assessment, and prolonged follow-up, will be required”.

Could frailty be a potential risk factor for Parkinson’s disease?

Frailty can refer to a reduction in physical function, and its attributes – including a slow walking speed and weak grip – are commonly experienced by people with Parkinson’s. Until now, there has been limited insight into the link between frailty and the risk of developing the condition over time. This is what led researchers at the Huazhong University of Science and Technology in China to analyse data from a large UK study, which was gathered over a 12-year period. Published in JAMA Neurology, the analysis found that frailty may be linked to an 87% higher risk of developing the condition. Commenting on the results, the researchers said: “These findings indicate that physical frailty is a potential risk factor for [Parkinson’s], and the assessment and management of frailty might have clinical significance in the at-risk population.”

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‘I Got You’ – a musical tribute to Parkinson’s disease caregivers

A “missed opportunity” for Parkinson’s disease carers?

“My voice matters”: Parkinson’s caregiver raising awareness

Carers' Corner

Carers' Corner

Carers' Corner

‘I Got You’ – a musical tribute to Parkinson’s disease caregivers

A “missed opportunity” for Parkinson’s disease carers?

“My voice matters”: Parkinson’s caregiver raising awareness

World Poetry Day: Parkinson’s, marriage and grief

New survey highlights challenges facing Parkinson’s carers

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

How my husband’s Parkinson’s has ruined our sex life

Faces of Parkinson’s: “His facial expressions have changed, but not the sparkle in his eyes”

Campaigners win petition for ‘student carer’ status on uni application forms

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Learn coping tricks and strategies for carers at Parkinson’s summit

10 shocking facts that show what it’s like to be a carer

“That you can be you – and still fight this beast everyday – makes you a giant”

An emotional new poem for World Parkinson’s Day

Social experiment shows what it’s like to live with Parkinson’s for one day

Advanced Parkinson’s: a survivor’s guide to ‘transcending the pain of death’

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Carers Week launches in UK

Unemployment, debt, poverty & depression… the life of a carer

‘Engagement platform’ lets carers log their work and receive rewards

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Parkinson’s Europe co-founder Lizzie Graham wins World Parkinson Coalition award

Study explores predictors of cognitive impairment in Parkinson’s disease

Could frailty be a potential risk factor for Parkinson’s disease?

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