Carers' Corner Archives - Parkinson's Life

Carers' Corner

Netherlands researchers highlight the importance of “supportive networks"
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Carers' Corner

Advocate Leslie Peters on the challenges faced by carers
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Carers' Corner

We speak to the winner of our Parkinson’s poetry competition 2019
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Female carer feeding her female patient soup with a spoon

A “missed opportunity” for Parkinson’s disease carers?

Netherlands researchers highlight the importance of “supportive networks"

“My voice matters”: Parkinson’s caregiver raising awareness

Advocate Leslie Peters on the challenges faced by carers

Catherine Strisik Parkinson's poetry competition

World Poetry Day: Parkinson’s, marriage and grief

We speak to the winner of our Parkinson’s poetry competition 2019

New survey highlights challenges facing Parkinson’s carers

Parkinson's Europe launches a new multilingual survey for Parkinson’s car

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

One Direction star praised for care of granddad with Parkinson’s

Young woman sleeping in bed beside the window

How my husband’s Parkinson’s has ruined our sex life

A candid account of sex life and Parkinson’s

Faces of Parkinson’s: “His facial expressions have changed, but not the sparkle in his eyes”

Personal portraits of people with Parkinson’s

Campaigners win petition for ‘student carer’ tick box on uni application forms

Campaigners win petition for ‘student carer’ status on uni application forms

Student carers soon to be recognised on application forms

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Introducing the voice reminder service for Parkinson’s carers

Learn coping tricks and strategies for carers at Parkinson’s summit

The Caregiver's Summit aims to equip carers with the tools to take charge

10 shocking facts that show what it’s like to be a carer

Highlighting the issues faced by carers throughout Europe

“That you can be you – and still fight this beast everyday – makes you a giant”

How one carer and her husband overcame “terrifying” diagnosis

An emotional new poem for World Parkinson’s Day

World Parkinson’s Day: Poet pens poignant poem to raise awareness

Social experiment shows what it’s like to live with Parkinson’s for one day

Parkinsons1Day video project teaches empathy skills

Advanced Parkinson’s: a survivor’s guide to ‘transcending the pain of death’

Book review: ‘Love’s Last Measure’ by Anne Mikkelsen

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Caring for your partner can be challenging, but it doesn't have to be a bur

Carers Week launches in UK

2015 campaign focuses on building ‘carer-friendly communities’

Unemployment, debt, poverty & depression… the life of a carer

These 10 statistics highlight the realities of being a carer

‘Engagement platform’ lets carers log their work and receive rewards

Recognising and rewarding the work of carers via mobile platform

Investigational Parkinson’s disease dementia therapy fails in clinical trial

Research into new potential therapies for people with Parkinson’s is complex, which means that not all clinical trials will successfully move on to the next phase. This proved to be the case for US biotech company Aptinyx, which announced that it will halt further development work on an investigational therapy following “disappointing” results in the second phase of its study. The research had set out to examine the effect of NYX-458 – an oral therapy created to modulate the activity of receptors in the brain that are responsible for communication between neurons. The aim of the therapy was to improve cognition in people with cognitive impairment linked to Parkinson’s or Lewy body dementia. Yet, when compared to a placebo, the therapy didn’t demonstrate “meaningful improvements” in cognitive function. Dr Andy Kidd, president and CEO at Aptinyx, said: “We are very disappointed that the results of this Phase 2 study did…

A new intimacy guide aims to support people with Parkinson’s disease in the US

Does sexual wellness in the Parkinson’s community need more focus? It’s an area that the American Parkinson Disease Association (APDA) and media brand Havas Health Plus have targeted through the launch of a free intimacy guide. Available to people in the US, ‘The ParkinSex Booklet & Kit’ aims to support those whose relationships may have been impacted by emotional and physical distance linked to the condition. Alongside an educational guide, the kit includes items such as candles, coupons for adaptative clothing and massage stones. Following a positive response to an initial pilot distribution of the guides in the US, there is now a waitlist for future kits. Commenting on the launch in a press release, APDA president and CEO Leslie Chambers said: “The challenges of Parkinson’s can often result in intimacy and connection getting left behind. This is why we created ‘The ParkinSex Booklet & Kit’, to help people with…

How prevalent are non-visual hallucinations in Parkinson’s disease?

Some people in the later stages of Parkinson’s can experience hallucinations – “when you see, hear or feel things that aren’t there”. With most research into this topic centred on visual hallucinations, a team in Australia set out to investigate data around non-visual hallucinations in people with the condition. Published in the ‘Journal of Neurology’, the analysis drew on 91 relevant studies released between 1970 and 2022. The team found that visual hallucinations appeared to be most common, with an expected prevalence of up to 96.6%. Meanwhile, non-visual hallucinations – including auditory (relating to the sense of hearing) and olfactory (relating to the sense of smell) – had an estimated prevalence of up to 73.3%. Concluding that non-visual hallucinations may “impact a notable proportion” of people with the condition, the team said: “More direct research and clinical attention need to be devoted to the study and management of such hallucinatory…

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A “missed opportunity” for Parkinson’s disease carers?

“My voice matters”: Parkinson’s caregiver raising awareness

World Poetry Day: Parkinson’s, marriage and grief

Carers' Corner

Carers' Corner

Carers' Corner

A “missed opportunity” for Parkinson’s disease carers?

“My voice matters”: Parkinson’s caregiver raising awareness

World Poetry Day: Parkinson’s, marriage and grief

New survey highlights challenges facing Parkinson’s carers

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

How my husband’s Parkinson’s has ruined our sex life

Faces of Parkinson’s: “His facial expressions have changed, but not the sparkle in his eyes”

Campaigners win petition for ‘student carer’ status on uni application forms

Now there’s an app to remind your loved ones to take their Parkinson’s meds

Learn coping tricks and strategies for carers at Parkinson’s summit

10 shocking facts that show what it’s like to be a carer

“That you can be you – and still fight this beast everyday – makes you a giant”

An emotional new poem for World Parkinson’s Day

Social experiment shows what it’s like to live with Parkinson’s for one day

Advanced Parkinson’s: a survivor’s guide to ‘transcending the pain of death’

Beating ‘burnout’: nine ways to stay positive when caring for your partner

Carers Week launches in UK

Unemployment, debt, poverty & depression… the life of a carer

‘Engagement platform’ lets carers log their work and receive rewards

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Investigational Parkinson’s disease dementia therapy fails in clinical trial

A new intimacy guide aims to support people with Parkinson’s disease in the US

How prevalent are non-visual hallucinations in Parkinson’s disease?

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