Women and Parkinson's Archives

Women and Parkinson's

Eight powerful stories from Parkinson’s disease community
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Women and Parkinson's

Ingrid Roesner on speaking up with Parkinson’s disease
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Women and Parkinson's

Caitlin Nagy on navigating Parkinson’s disease and body confidence
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International Women’s Day: “Everyone benefits from raising awareness”

Eight powerful stories from Parkinson’s disease community

“It’s so important to be clear about how people can help you”

Ingrid Roesner on speaking up with Parkinson’s disease

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“It’s been a really interesting journey of self-acceptance and self-love”

Caitlin Nagy on navigating Parkinson’s disease and body confidence

“I am still a woman”

Are older women with Parkinson’s disease left out of discussions?

“Finding information about being a woman with Parkinson’s was challenging”

Kathleen Reardon on diagnosis and being heard by doctors

“It’s essential to create a workplace where chronic illness is not taboo”

Cathy Molohan on the “balancing act” of work and Parkinson’s disease

“We do ourselves an injustice by just suffering through it”

Richelle Flanagan on connecting with Parkinson’s disease community

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“Parkinson’s disease feels like an ally of sexism”

On diagnosis, identity and learning to say ‘me first’

7 famous women with Parkinson’s

Can you name a well-known woman with Parkinson’s disease?

“Look at us – we are here”

To mark International Women’s Day, we share our campaign highlights

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“Helping women with Parkinson’s know they are not alone”

Francisca Ruiz González on making women with Parkinson’s visible

“Life isn’t easy”: how coronavirus is affecting women with Parkinson’s

Four women with Parkinson’s share their experience of lockdown

The women blazing the trail in Parkinson’s tech and innovation

Have you heard about these Parkinson’s technology inventions?

“Incompetence, racism and prejudice delayed my diagnosis”

Manon Day on being a young black woman with Parkinson’s

“Recognising gender difference is essential for Parkinson’s research”

The research gap, revealed by neurologist Marina Picillo

“We need to be having more conversations about menopause”

One woman’s story about the approach of menopause

Women and Parkinson’s: menstruation, medication and motherhood

Our podcast shines a light on how women experience the condition

Women and Parkinson’s: “Being pregnant was scary”

One woman’s poignant account of pregnancy and Parkinson’s

Women and Parkinson’s: “My medication only works three weeks out of four”

An honest account of menstruation, medication and symptoms

“We are not just variants of men”

Our new campaign centres the experiences of women with Parkinson’s

Investigational Parkinson’s disease dementia therapy fails in clinical trial

Research into new potential therapies for people with Parkinson’s is complex, which means that not all clinical trials will successfully move on to the next phase. This proved to be the case for US biotech company Aptinyx, which announced that it will halt further development work on an investigational therapy following “disappointing” results in the second phase of its study. The research had set out to examine the effect of NYX-458 – an oral therapy created to modulate the activity of receptors in the brain that are responsible for communication between neurons. The aim of the therapy was to improve cognition in people with cognitive impairment linked to Parkinson’s or Lewy body dementia. Yet, when compared to a placebo, the therapy didn’t demonstrate “meaningful improvements” in cognitive function. Dr Andy Kidd, president and CEO at Aptinyx, said: “We are very disappointed that the results of this Phase 2 study did…

A new intimacy guide aims to support people with Parkinson’s disease in the US

Does sexual wellness in the Parkinson’s community need more focus? It’s an area that the American Parkinson Disease Association (APDA) and media brand Havas Health Plus have targeted through the launch of a free intimacy guide. Available to people in the US, ‘The ParkinSex Booklet & Kit’ aims to support those whose relationships may have been impacted by emotional and physical distance linked to the condition. Alongside an educational guide, the kit includes items such as candles, coupons for adaptative clothing and massage stones. Following a positive response to an initial pilot distribution of the guides in the US, there is now a waitlist for future kits. Commenting on the launch in a press release, APDA president and CEO Leslie Chambers said: “The challenges of Parkinson’s can often result in intimacy and connection getting left behind. This is why we created ‘The ParkinSex Booklet & Kit’, to help people with…

How prevalent are non-visual hallucinations in Parkinson’s disease?

Some people in the later stages of Parkinson’s can experience hallucinations – “when you see, hear or feel things that aren’t there”. With most research into this topic centred on visual hallucinations, a team in Australia set out to investigate data around non-visual hallucinations in people with the condition. Published in the ‘Journal of Neurology’, the analysis drew on 91 relevant studies released between 1970 and 2022. The team found that visual hallucinations appeared to be most common, with an expected prevalence of up to 96.6%. Meanwhile, non-visual hallucinations – including auditory (relating to the sense of hearing) and olfactory (relating to the sense of smell) – had an estimated prevalence of up to 73.3%. Concluding that non-visual hallucinations may “impact a notable proportion” of people with the condition, the team said: “More direct research and clinical attention need to be devoted to the study and management of such hallucinatory…

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International Women’s Day: “Everyone benefits from raising awareness”

“It’s so important to be clear about how people can help you”

“It’s been a really interesting journey of self-acceptance and self-love”