In my country Archives - Parkinson's Life

In my country

We hear from the president of Društvo Trepetlika
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In my country

We talk to the director of the Spanish Parkinson’s Federation
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In my country

We talk to the founder of the European Parkinson Therapy Centre in Italy
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“Many patients still receive Parkinson’s diagnosis late”

We hear from the president of Društvo Trepetlika

Fighting the stigma around Parkinson’s in Spain

We talk to the director of the Spanish Parkinson’s Federation

“When coronavirus broke out in Europe, Italy was the hardest hit nation”

We talk to the founder of the European Parkinson Therapy Centre in Italy

The Barbados Parkinson’s Trust and Support Group

Parkinson’s in Barbados is “overshadowed by other conditions”

We talk to the founder of Barbados’ only Parkinson’s support group

‘People believe a witch doctor will cure them’

We speak to the president of the MPDA

Tackling shame and loneliness in Italy

We speak to the founder of charity ParkinZone

Supporting 100,000 Australians with Parkinson’s

We spoke to the CEO of Parkinson’s Australia

Step up for Parkinson’s: getting people moving in Malta

We talk to the founder of Maltese organisation Step up for Parkinson’s

“Many people believed my Parkinson’s symptoms were the result of bad spirits”

We talk to the founder of Ethiopia’s first Parkinson’s organisation

Reaching the rural areas of Pakistan with specialised care

Extending knowledge and resources to all corners of the country

arol da Barra - Salvador - Bahia – Brasil

Could physical therapy be the future of specialised Parkinson’s care in Brazil?

Filling the physical therapy gaps in Brazil's healthcare system

Building a Parkinson’s network in China

Assessing Parkinson’s infrastructure in China

Powerful partnership promotes Parkinson’s rehab in Jerusalem

A partnership helped to expand exercise and therapy sessions in Jerusalem

How New York inspired Copenhagen to walk for Parkinson’s

‘Exercise is medicine’: the Danish Parkinson’s Association’s motto

Why I launched Nepal’s first Parkinson’s support group

Overcoming tough economic challenges in Nepal

Pioneering ParkinsonNet programme launches in Norway

Innovative, patient-centred programme arrives in Norway

Telemedicine: how Sweden is reducing waiting times for Parkinson’s treatment

Video calling tech is speeding up access to advanced treatment

Parkinson’s Cafés: your regular dose of coffee and companionship

Dutch cafés are buzzing - and it's not just the caffeine

Parkinson’s in South Africa

An in-depth look at how Parkinson's is managed in South Africa

Improving Parkinson’s care in India’s largest city

The management of Parkinson’s in Mumbai holds many challenges

Investigational Parkinson’s disease dementia therapy fails in clinical trial

Research into new potential therapies for people with Parkinson’s is complex, which means that not all clinical trials will successfully move on to the next phase. This proved to be the case for US biotech company Aptinyx, which announced that it will halt further development work on an investigational therapy following “disappointing” results in the second phase of its study. The research had set out to examine the effect of NYX-458 – an oral therapy created to modulate the activity of receptors in the brain that are responsible for communication between neurons. The aim of the therapy was to improve cognition in people with cognitive impairment linked to Parkinson’s or Lewy body dementia. Yet, when compared to a placebo, the therapy didn’t demonstrate “meaningful improvements” in cognitive function. Dr Andy Kidd, president and CEO at Aptinyx, said: “We are very disappointed that the results of this Phase 2 study did…

A new intimacy guide aims to support people with Parkinson’s disease in the US

Does sexual wellness in the Parkinson’s community need more focus? It’s an area that the American Parkinson Disease Association (APDA) and media brand Havas Health Plus have targeted through the launch of a free intimacy guide. Available to people in the US, ‘The ParkinSex Booklet & Kit’ aims to support those whose relationships may have been impacted by emotional and physical distance linked to the condition. Alongside an educational guide, the kit includes items such as candles, coupons for adaptative clothing and massage stones. Following a positive response to an initial pilot distribution of the guides in the US, there is now a waitlist for future kits. Commenting on the launch in a press release, APDA president and CEO Leslie Chambers said: “The challenges of Parkinson’s can often result in intimacy and connection getting left behind. This is why we created ‘The ParkinSex Booklet & Kit’, to help people with…

How prevalent are non-visual hallucinations in Parkinson’s disease?

Some people in the later stages of Parkinson’s can experience hallucinations – “when you see, hear or feel things that aren’t there”. With most research into this topic centred on visual hallucinations, a team in Australia set out to investigate data around non-visual hallucinations in people with the condition. Published in the ‘Journal of Neurology’, the analysis drew on 91 relevant studies released between 1970 and 2022. The team found that visual hallucinations appeared to be most common, with an expected prevalence of up to 96.6%. Meanwhile, non-visual hallucinations – including auditory (relating to the sense of hearing) and olfactory (relating to the sense of smell) – had an estimated prevalence of up to 73.3%. Concluding that non-visual hallucinations may “impact a notable proportion” of people with the condition, the team said: “More direct research and clinical attention need to be devoted to the study and management of such hallucinatory…

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“Many patients still receive Parkinson’s diagnosis late”

Fighting the stigma around Parkinson’s in Spain

“When coronavirus broke out in Europe, Italy was the hardest hit nation”

In my country

In my country

In my country

“Many patients still receive Parkinson’s diagnosis late”

Fighting the stigma around Parkinson’s in Spain

“When coronavirus broke out in Europe, Italy was the hardest hit nation”

Parkinson’s in Barbados is “overshadowed by other conditions”

‘People believe a witch doctor will cure them’

Tackling shame and loneliness in Italy

Supporting 100,000 Australians with Parkinson’s

Step up for Parkinson’s: getting people moving in Malta

“Many people believed my Parkinson’s symptoms were the result of bad spirits”

Reaching the rural areas of Pakistan with specialised care

Could physical therapy be the future of specialised Parkinson’s care in Brazil?

Building a Parkinson’s network in China

Powerful partnership promotes Parkinson’s rehab in Jerusalem

How New York inspired Copenhagen to walk for Parkinson’s

Why I launched Nepal’s first Parkinson’s support group

Pioneering ParkinsonNet programme launches in Norway

Telemedicine: how Sweden is reducing waiting times for Parkinson’s treatment

Parkinson’s Cafés: your regular dose of coffee and companionship

Parkinson’s in South Africa

Improving Parkinson’s care in India’s largest city

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Investigational Parkinson’s disease dementia therapy fails in clinical trial

A new intimacy guide aims to support people with Parkinson’s disease in the US

How prevalent are non-visual hallucinations in Parkinson’s disease?

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