For comprehensive information about stem cell treatment please visit the European Parkinson’s Disease Association (EPDA) website.
Parkinson’s pilgrimage: hiking the Camino de Santiago for stem cell research
Author: Almaz OhenePublished: 1 February 2018
Prep: Cook: Serves:
The Summit For Stem Cell Foundation is inviting the Parkinson’s community to join them on their Camino de Santiago pilgrimage hike to raise money for stem cell projects
The stem cell research organisation Summit For Stem Cell Foundation has raised US $5.5 million for Parkinson’s research – and is now aiming to raise a further US $8 million to see through stem cell transplantations in 10 Parkinson’s patients.
To help achieve the two-year fundraising target, the US-based foundation is inviting people from the Parkinson’s community to join them on their eight-day trek, from 3 to 11 October. This year they will be hiking the Camino Inglés, which is one of the least travelled routes on the Camino de Santiago pilgrimage trail in Spain.
Sherrie Gould, founder and movement disorders advisor, Summit For Stem Cell, says: “We’ve had 33 people sign up so far and have 27 spots left. We’ll have a bi-lingual English and Spanish speaking guide for every 10 people.
“We are really hoping that we’ll get people signing up to help our cause from Europe, as it’s right on your doorstep.” She says budgets for the trip are still being finalised, but the cost is likely to be US $1,500.
Sherrie is keen to stress that anyone participating with Parkinson’s must also have a ‘buddy’. The buddy will be responsible for their partner, assisting them if they need to stop or go home sooner.
This is the fourth trek organised by the Summit For Stem Cell Foundation. A team climbed Mount Kilimanjaro in 2011 and reached base camp at Mount Everest in 2013.
In 2016, we reported on how the Summit team, with the help of guides and pack horses, hiked for more than 30 miles over seven days to the summit of Machu Picchu, Peru – raising over US $120,000 in funds for research.
She says those who sign up for the hike will receive regular email updates with advice on how best to train and prepare themselves. “People will be able to see how many miles we’re doing and they will have a whole hiking schedule. My dream is to hold hands and join forces with the Parkinson’s community in Europe.”
The project began in July 2010 when medical professionals from The Scripps Research Institute and Scripps Clinic, San Diego, CA, and the Parkinson’s Disease and Other Movement Disorders Center, La Jolla, CA, collaborated on Parkinson’s research using stem cells. Extensive funding was needed to support clinical trials.
The organisation has since raised millions of dollars, with 97% of all donations going directly to research. They are able to keep overheads low as everyone working for the organisation does so voluntarily – apart from the scientists carrying out the research.
Sherrie says: “We have catheters that we want to use to transplant the cells into the brains of our patients. So, right now we’re testing those catheters in a petri dish. We must wait for approval from the US Food and Drug Administration (FDA) approval before clinical trials start, but we are hoping for early 2019.”
The Summit For Stem Cell Foundation is part of a collective called G-Force PD, which involves five of the leading stem cell research teams from Europe, Japan and the US.
Sherrie says: “The whole concept of the group is for people to get together and just discuss problems. You know, people are coming with solutions, as a team we learn from each other, we discover how we can help each other and discuss the roadmap to the clinic.”
Their next meet up is in Sweden this April.
To sign up for the trek visit the Summit For Stem Cell website
Share this story
Now there’s an app to remind your loved ones to take their Parkinson’s meds
Introducing the voice reminder service for Parkinson’s carersREAD MORE
“I knocked out a tweet and within half an hour my feed was going mad”
We talk to the BBC journalist Rory Cellan-Jones about his diagnosisREAD MORE
Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s
One Direction star praised for care of granddad with Parkinson’sREAD MORE