“A fundamental change in medical culture” is needed

Europe

Author: Geoffrey ChangPublished: 8 April 2015

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

A leading patient advocacy group is calling on health professionals to take more responsibility for improving medicine-taking behaviour among patients with chronic conditions such as Parkinson’s.

The European Patients Forum (EPF) wants professionals to be trained in shared decision-making and in communicating effectively with patients about treatment choices and goals.

The EPF is proposing a change in attitude from ‘blaming the patient’ to ‘working with the patient for better health outcomes’ – along with a change in terminology from ‘compliance’ to ‘adherence’ – in order to promote what it describes as “a neutral description of patients’ medicine-taking behaviour.”

Setting out its position in a newly published paper, the EPF stated: “An important part of self-management is the effective administering of medicines. Many patients, however, end up not taking their medicines in the way the prescriber instructs them. It’s a safety issue that carries large costs and risks to both the individual and health systems.”

Kaisa Immonen-Charalambous, EPF senior policy adviser, added: “Patients want clear and comprehensive information on medicines, of course. But information is merely a support tool. Even more important is that the health professionals have the right skills and attitudes. They need to believe that involving patients in decision-making promotes trust and honesty, and ultimately leads to better outcomes. We need to move towards a fundamental change in medical culture.”

Read the position paper here.

Go Back

Share this story

Comments


Related articles


fighting Parkinson's

Interviews

“I’m just fighting my corner”

The latest in our monthly series profiling WPC2019 bloggers

READ MORE
Parkinson's podcast

Episodes

Podcast: How do women experience Parkinson’s differently from men?

Three women with Parkinson’s discuss the challenges they face

READ MORE
Webinar pain and fatigue

PD in Practice

WEBINAR: Get expert advice on managing Parkinson’s pain and fatigue

Join this free MJ Fox Foundation live webinar

READ MORE