Developers of drug safety app want your opinion

Advances

Author: Geoffrey ChangPublished: 28 July 2016

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

WEB RADR apps

Take a survey and help develop an app that identifies drug safety issues for patients


Campaigners are calling for people with Parkinson’s to give their opinions on an app that reports the side effects of drug treatments, and helps identify and record drug safety issues.

Part of the WEB-RADR project that aims to improve the collection, detection and monitoring of side effects, the mobile app is designed to allow patients and healthcare professionals to report any suspected adverse drug reactions to national EU regulators.

Now, the European Patients Forum – an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe – is encouraging patients with chronic conditions to give their opinions in a survey that will help develop the app further.

Susanna Lindvall, vice-president of the European Parkinson’s Disease Association, said: “The app could be used for research purposes, especially due to the interaction between the various drugs you take. From the results, it could as be possible to find special side effects linked to subgroups of patients.”

As well as improving the app, the survey results will reveal people’s preferences surrounding the use of technology to report negative side effects and receive safety information.

The anonymous survey will take approximately 15-20 minutes to complete and is available in seven languages: English, French, German, Spanish, Portuguese, Dutch and Croatian.

Meanwhile, theWEB-RADR project is also exploring the potential use of publicly available social media data for identifying drug safety issues.


Enter the survey here

Go Back

Share this story

Comments


Related articles


July events lead

Agenda

July 2016

Highlights: Mervyn Peake Awards Exhibition & PintsForParkinson's

READ MORE
Adam Ellenstein and Susan Scarlett lead

Interviews

Setting a Guinness World Record for Parkinson’s was the proudest moment of my life

105km swim for Parkinson’s verified as new Guinness World Record

READ MORE
StepUp2PD round-up

Health & Fitness

IN PICTURES: A step forward for Parkinson’s

A picture gallery from the StepUp2PD exercise retreat

READ MORE