A series of 12 videos to offer practical Parkinson’s advice
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Author: Parkinson's Life editorsPublished: 19 May 2016
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Imagine if you had an extra hour for doing good. A new video project shows the Parkinson’s community what can be achieved in just one hour more
What could you achieve if you had one hour more each day? If you’re living with Parkinson’s an extra hour of ‘on time’ could really improve your quality of life.
A new series of 12 short illustration videos shows what you can do to during your ‘on time’ to help specific aspects of living with Parkinson’s. The videos, developed as part of ‘1 hour more’, are released on the project’s Facebook page every two weeks and aim to offer both emotional and practical support.
Matteo Brambilla, ‘1 hour more’ project manager, said: “Parkinson’s stories can and should be engaging: if a picture is ‘worth a thousand words’ then a moving image can be even more thrilling, and can help cultivate and increase awareness of Parkinson’s”.
Don’t be afraid to ask for help
The first in the series is titled ‘companionship’. The key message of the video is that spending time with good friends can positively affect your mindset.
Maintaining a routine inspires new adventures
The second video focuses on the importance of regular sleeping cycles and medication routines. The ‘1 hour more’ Facebook posts accompanying this video offer tips such as: “Keep an eye on times so that the pills work as efficiently as possible, allowing you to manage your schedule in a calm, stress-free and optimal way.”
Joining a choir can strengthen your voice
Living with Parkinson’s can affect your voice, which can sometimes make communication challenging. The third video in this series gives some tips on activities to improve the strength of your voice.
About ‘1 hour more’
The ‘1 hour more’ project invites people with Parkinson’s to submit their personal stories, which are published on a bespoke digital platform. The stories in the collection focus on the value of ‘time’ for all people within the Parkinson’s community and aim to raise public awareness of the condition. The project launched a series of video animations to inspire people with Parkinson’s to lead a full life.
To view the project so far visit the ‘1 hour more’ website
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Playing video game consoles, such as Xbox and Nintendo Wii, could help prevent the development of Parkinson’s, according to a new study. The research, carried out by Manchester University, found that playing ‘exergames’ was more beneficial for the brain than simple physical activities such as walking. Participants in the study played the games three times a week for a total of 10 weeks, with each session ranging from 15 to 60 minutes. Researchers then tested their mental faculties, comparing results with those who exercised instead. Psychologist Joseph Firth, a postgraduate researcher at Manchester University, said: “Various neurological conditions such as Parkinson’s can impede people’s cognitive function. We were fascinated to learn these sort of games can significantly improve overall functioning.” Joseph Firth concluded: “The biggest benefit of ‘exergames’ was in healthy, older individuals. Their executive function saw a notable improvement compared to those who just did physical activity.”
Karolinska Institutet study suggests Parkinson’s starts in the gut
A study, carried out by the Karolinska Institutet in Sweden, has found evidence suggesting that Parkinson’s starts in the gut before spreading to the brain. The research team at the prestigious medical university used 40 years’ worth of data from Swedish national registers and observed lower Parkinson’s rates in patients who had undergone a ‘truncal vagotomy’ – an operation to remove sections of the vagus nerve, which links the digestive system to the brain. Bojing Lui, who led the study, said “These results provide preliminary evidence that Parkinson’s disease may start in the gut.” “Other evidence for this hypothesis is that people with Parkinson’s disease often have gastrointestinal problems such as constipation, that can start decades before they develop the disease. “Much more research is needed to test this theory and help us understand the role this may play in the development of Parkinson’s,” Bojing Lui continued.
Study proves the effectiveness of Parkinson’s drug apomorphine
Results from the 12-week TOLEDO study – which tested the effectiveness of APO-go®/MOVAPO® (apomorphine) on Parkinson’s patients whose symptoms could not be controlled with standard therapies – showed that patients treated with the infusion had a significantly greater improvement in ‘off’ time, compared with those taking the placebo. The reduction in ‘off’ time was achieved without an increase in dyskinesias and was reflected in the patients’ own assessment of the overall treatment effect. The results were presented during the ‘Emerging Science’ session at the American Academy of Neurology (AAN) Annual Meeting in Boston, US, last month. Professor Katzenschlager, lead investigator of the TOLEDO study, said: “TOLEDO provides the high-level evidence we needed for the efficacy and tolerability of apomorphine infusion in patients who are still experiencing debilitating treatment response fluctuations despite receiving optimised treatment, and confirms the clinical experience of those who have used apomorphine infusion for many years.”