A series of 12 videos to offer practical Parkinson’s advice
Resources & Tools
Author: Parkinson's Life editorsPublished: 19 May 2016
Prep: Cook: Serves:
Imagine if you had an extra hour for doing good. A new video project shows the Parkinson’s community what can be achieved in just one hour more
What could you achieve if you had one hour more each day? If you’re living with Parkinson’s an extra hour of ‘on time’ could really improve your quality of life.
A new series of 12 short illustration videos shows what you can do to during your ‘on time’ to help specific aspects of living with Parkinson’s. The videos, developed as part of ‘1 hour more’, are released on the project’s Facebook page every two weeks and aim to offer both emotional and practical support.
Matteo Brambilla, ‘1 hour more’ project manager, said: “Parkinson’s stories can and should be engaging: if a picture is ‘worth a thousand words’ then a moving image can be even more thrilling, and can help cultivate and increase awareness of Parkinson’s”.
Don’t be afraid to ask for help
The first in the series is titled ‘companionship’. The key message of the video is that spending time with good friends can positively affect your mindset.
Maintaining a routine inspires new adventures
The second video focuses on the importance of regular sleeping cycles and medication routines. The ‘1 hour more’ Facebook posts accompanying this video offer tips such as: “Keep an eye on times so that the pills work as efficiently as possible, allowing you to manage your schedule in a calm, stress-free and optimal way.”
Joining a choir can strengthen your voice
Living with Parkinson’s can affect your voice, which can sometimes make communication challenging. The third video in this series gives some tips on activities to improve the strength of your voice.
About ‘1 hour more’
The ‘1 hour more’ project invites people with Parkinson’s to submit their personal stories, which are published on a bespoke digital platform. The stories in the collection focus on the value of ‘time’ for all people within the Parkinson’s community and aim to raise public awareness of the condition. The project launched a series of video animations to inspire people with Parkinson’s to lead a full life.
To view the project so far visit the ‘1 hour more’ website
Highlights: Ceilidh and Ciao Parkinson’s dinner dance
6 days ago
Pig cells implanted into human brain as Parkinson’s treatment
A new treatment, which involves the implantation of pig cells into a human brain, is being tested as a potential treatment for Parkinson’s. The therapy, called NTCELL, has been developed by New Zealand-based biotechnology company Living Cell Technologies, and produces factors that promote central nerve system growth and repair nerve degeneration. Although still in the early stages of testing, the results have been promising with those being treated showing an improvement over an 18-month period. Roger Barker, professor of Clinical Neurosciences at the University of Cambridge, said: “The strategy is a good idea. The question is how competitive that will be compared with other cell therapies.” The treatment could be available as early as 2018.
Fruit flies help shed light on development of Parkinson’s disease
A study carried out by medical students from Juntendo University in Tokyo, Japan, has found that a loss of mitochondrial protein can exacerbate the progression of Parkinson’s disease. The research centred on the study of mutant fruit flies. The team examined what happened to the flies that lacked mitochondrial protein CHCHD2 – a protein that plays a key role in maintaining the structure of cells. The study found that the lack of CHCHD2 led to motor dysfunctions, such as the loss of climbing ability, as the flies aged. However, when researchers introduced a form of human CHCHD2 to the flies, the dysfunctions were reversed. The researchers, led by medical students Hongrui Meng and Chikara Yamashita, said their results shed light on the role of CHCHD2 mutations in Parkinson’s and offer “potential therapeutic targets in Parkinson’s caused by mitochondrial dysfunction.”
3 weeks ago
New research suggests sleep disorders could be early sign of Parkinson’s
New research has found that sleep disorders could be an early warning sign for Parkinson’s. The study, carried out by the University of Toronto, found that 80% of those suffering from rapid eye movement (REM) sleep disorders during dreaming went on to develop neurological conditions. Dr John Peever, who led the study, said: “Our research suggests sleep disorders may be an early warning sign for diseases that may appear some 15 years later in life.” “We observed that more than 80% of people who suffer from REM sleep disorder eventually develop synucleinopathies, such as Parkinson’s disease.” Dr Peever hopes that these findings will help combat neurological conditions in the future. “Much like we see in people prone to cancer, diagnosing REM disorders may allow us to provide individuals with preventative actions to keep them healthy long before they develop these more serious neurological conditions,” Dr Peever continued.