A series of 12 videos to offer practical Parkinson’s advice
Resources & Tools
Author: Parkinson's Life editorsPublished: 19 May 2016
Prep: Cook: Serves:
Imagine if you had an extra hour for doing good. A new video project shows the Parkinson’s community what can be achieved in just one hour more
What could you achieve if you had one hour more each day? If you’re living with Parkinson’s an extra hour of ‘on time’ could really improve your quality of life.
A new series of 12 short illustration videos shows what you can do to during your ‘on time’ to help specific aspects of living with Parkinson’s. The videos, developed as part of ‘1 hour more’, are released on the project’s Facebook page every two weeks and aim to offer both emotional and practical support.
Matteo Brambilla, ‘1 hour more’ project manager, said: “Parkinson’s stories can and should be engaging: if a picture is ‘worth a thousand words’ then a moving image can be even more thrilling, and can help cultivate and increase awareness of Parkinson’s”.
Don’t be afraid to ask for help
The first in the series is titled ‘companionship’. The key message of the video is that spending time with good friends can positively affect your mindset.
Maintaining a routine inspires new adventures
The second video focuses on the importance of regular sleeping cycles and medication routines. The ‘1 hour more’ Facebook posts accompanying this video offer tips such as: “Keep an eye on times so that the pills work as efficiently as possible, allowing you to manage your schedule in a calm, stress-free and optimal way.”
Joining a choir can strengthen your voice
Living with Parkinson’s can affect your voice, which can sometimes make communication challenging. The third video in this series gives some tips on activities to improve the strength of your voice.
About ‘1 hour more’
The ‘1 hour more’ project invites people with Parkinson’s to submit their personal stories, which are published on a bespoke digital platform. The stories in the collection focus on the value of ‘time’ for all people within the Parkinson’s community and aim to raise public awareness of the condition. The project launched a series of video animations to inspire people with Parkinson’s to lead a full life.
To view the project so far visit the ‘1 hour more’ website
Are we too focused on the search for a Parkinson’s cure?
We ask Parkinson’s experts for their views on this controversial debate
3 weeks ago
Excess calcium in brain could cause Parkinson’s
Researchers at the University of Cambridge, UK, have discovered that excess levels of calcium in brain cells may lead to the formation of the toxic clusters that signify Parkinson’s disease. The findings, reported in the journal ‘Nature Communications’, show that calcium can influence the interaction between small membranous structures inside nerve endings, which are important for neuronal signaling in the brain, and alpha-synuclein – the protein associated with Parkinson’s disease. Dr Janin Lautenschläger, the paper’s first author, said: “This is the first time we’ve seen that calcium influences the way alpha-synuclein interacts with synaptic vesicles. We think that alpha-synuclein is almost like a calcium sensor. In the presence of calcium, it changes its structure and how it interacts with its environment, which is likely very important for its normal function.”
Jewish people with Crohn’s disease more likely to carry LRRK2 gene mutation
A scientific study has concluded that there may be a link between Parkinson’s and Crohn’s disease within the Ashkenazi Jewish community. The study’s findings, which were published in the journal ‘Science Translational Medicine’, has found that members of the population with Crohn’s disease are more likely to carry the LRRK2 mutation which is a significant cause of Parkinson’s. Lead researcher Dr Inga Peter, professor of genetics and genomic sciences at the Icahn School of Medicine, New York, US, said: “Crohn’s disease is a complex disorder with multiple genes and environmental factors involved, which disproportionately affects individuals of Ashkenazi Jewish ancestry. “The presence of shared LRRK2 mutations in patients with Crohn’s disease and Parkinson’s disease provides refined insight into disease mechanisms and may have major implications for the treatment of these two seemingly unrelated diseases.”
Could caffeine in the blood help diagnose Parkinson’s?
Blood caffeine levels could be promising diagnostic biomarkers for early-stage Parkinson’s, Japanese researchers reported in the journal ‘Neurology’ earlier this month. The study found that people with Parkinson’s had lower levels of caffeine and caffeine metabolites in their blood than people without the disease, at the same consumption rate. Caffeine concentrations also were decreased in Parkinson’s patients with motor fluctuations than in those without Parkinson’s. However, patients in more severe disease stages did not have lower caffeine levels. The study’s authors, Dr David Munoz, University of Toronto, and Dr Shinsuke Fujioka, Fukuoka University, suggested that the “decrease in caffeine metabolites occurs from the earliest stages of Parkinson’s.” They added: “If a future study were to demonstrate similar decreases in caffeine in untreated patients with Parkinson’s […] the implications of the current study would take enormous importance.”