Privacy and cookies

This Privacy Policy describes the policies and procedures of Parkinson’s Life (“PL”, “we”, “our” or “us”) on the collection, use and disclosure of your information on (the “Site”) and the services, features, content or applications offered by Parkinson’s Life (collectively with the Site, the “Services”).

Parkinson’s Life receives information about you from various sources, including:

1. if you subscribe to the Site and the Services;

2. your use of the Services generally; and

3. from third party websites and services.

When you use the Services, you are consenting to the collection, transfer, manipulation, storage, disclosure and other uses of your information as described in this Privacy Policy and our Terms of Use.


What information does Parkinson’s Life collect?

If you submit personal information through one of the following features of our Site, it may be collected and stored by the team that administers the Services:

  • enquiries sent in through the ‘contact us’ form
  • survey forms
  • membership forms
  • mailing list subscription forms

Parkinson’s Life does not pass on any of your personal information to other websites or to any third party.


Information

When you subscribe to the Parkinson’s Life newsletter, you will provide information that could be Personal Information, such as your name, password and email address. You acknowledge that this information may be personal to you, and by providing Personal Information to us, you allow others, including Parkinson’s Life, to identify you and therefore may not be anonymous. We may use your contact information to send you information about our Services, but only rarely when we feel such information is important or you have subscribed to our mailing lists. You may unsubscribe from these messages through your Account settings, although Parkinson’s Life reserves the right to contact you when we believe it is necessary, such as for account recovery purposes.



Cookies are small pieces of text stored as a file on the computer’s hard drive. They are not computer programs, and they cannot be executed as code. They cannot be used to disseminate viruses or access the hard drives – a cookie cannot read other information saved on the hard drive, or get a user’s e-mail address etc. They only contain and transfer to the web server as much information as the users themselves have disclosed to a certain web site.

Cookies are used by your browser and by most websites to help personalise or improve your web experience. If you wish to restrict or block the cookies which are set by EPDA websites, or indeed any other website, you can do this through your browser settings. Please be aware that restricting cookies may affect some of the functionality of the EPDA website although the majority of the site will still be accessible to you.

The Help menu on the menu bar of most browsers will tell you how to prevent your browser from accepting new cookies, how to have the browser notify you when you receive a new cookie and how to disable cookies altogether. Additionally, you can disable or delete similar data used by browser add-ons, such as Flash cookies, by changing the add-on’s settings or visiting the website of its manufacturer.

You can find more information about deleting and controlling cookies from the website.

The EPDA will not use cookies to collect personally identifiable information about you. However, in order to provide Services to you within the EPDA intranet or extranet, it is necessary to gather information that will enable the Site to personalize, improve and to operate such Services. In connection with certain aspects of the Services, we may request, collect and/or display some of your Personal Information.


Google analytics

The EPDA uses Google Analytics, a web analytics service provided by Google, Inc.

Google Analytics sets a cookie in order to evaluate your use of the Site and compile reports for us on activity on the Site to help us understand how visitors engage with the Site and track visitor interactions. Google Analytics collects information anonymously and without identifying individual visitors.

Google stores the information collected by the cookie on servers in the United States. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google. By accessing the Site, you consent to the processing of data about you by Google in the manner and for the purposes set out above.

Analytics uses its own cookie to store information, such as what time the current visit occurred, whether the visitor has been to the site before, and what site referred the visitor to the web page. To disable this type of cookie, some browsers will indicate when a cookie is being sent and allow you to decline cookies on a case-by-case basis. In addition to declining cookies, you can also install the Google Analytics Opt-out Add-on in your browser, which prevents Google Analytics from collecting information about your website visits.

Google Analytics sets cookies to help us accurately estimate the number of visitors to the website and volumes of usage. This to ensure that the service is available when you want it and fast.


Sharing tools

Parkinson’s Life uses a number of social media tools in the form of ‘share’ buttons to enable users of the site to easily share articles with their friends through a number of popular social network. As a result, when you visit a page with content embedded or social media buttons and content, you may be presented with cookies from these websites. These websites are not controlled by Parkinson’s Life. By using these links you accept the privacy policies of these websites.

These sites may set a cookie when you are also logged in to their service. Data may then be collected by these companies that enables them to serve up adverts on other sites that they think are relevent to your interests. If you do not use such platforms then our site will not place these cookies on your device.


YouTube cookies

We sometimes embed video content from our official YouTube channel using YouTube’s privacy-enhanced mode. This mode may set cookies on your computer once you click on the YouTube video player, but YouTube will not store personally-identifiable cookie information for playbacks of embedded videos using the privacy-enhanced mode.


What happens when there are changes to this Privacy Policy?

If this privacy policy changes Parkinson’s Life will update this page. You should visit this page regularly so you know:

  • what personal information PL collects
  • how PL uses your personal information
  • when (if ever) PL shares your personal information with someone else


What if I have questions or concerns?

If you have any questions or concerns regarding privacy using the Services, please send us a detailed message to and we will make every effort to resolve your concerns.

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