How we collect your information
When you engage or give to us directly.
You may give us your information in order to sign up for one of our events, make a donation, fundraise for us, sign up to our communications via any of our websites, contact us directly, complete a survey, or subscribe to a mailing list. We collect this data only when you have given us your explicit consent. We are responsible for your data at all times.
When you give to us indirectly
Your information may be shared with us by independent event organisers or fundraising sites like Better Now or Virgin Money Giving. These independent third parties will only do so when you have indicated that you wish to support us and with your consent. You should check their Privacy Policies when you provide your information to understand fully how they will process your data.
Through third-party organisations
You may have provided consent to a company or other organisation to share your data with third parties, including charities.
Depending on your settings or the privacy policies for social media and messaging services like Facebook, WhatsApp, Twitter or LinkedIn, you might give us your consent to access information from those accounts or services once you choose to follow a Parkinson’s Life account.
Information available publicly
This may include information found in places such as Companies House, the Charity Commission and information that has been published in articles/newspapers.
When you use our websites
The information we collect
Personal data is any information that can be used to identify you. For example, it can include information such as your name, date of birth, email address, postal address, telephone number and credit/debit card details, as well as information relating to your health or personal circumstances. We use this data to provide you with the services, products or information you asked for. We will hold this information until you request that we update or delete it.
Special category data
Data protection law recognises that certain categories of personal information are more sensitive. This is known as special categories and covers the processing of personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, or trade union membership, and the processing of genetic data, biometric data for the purpose of uniquely identifying a natural person, data concerning health or data concerning a natural person’s sex life or sexual orientation shall be prohibited. We would only collect sensitive personal information where there is a clear need to do so such as participation in a challenge event, to ascertain what services are relevant to you or to cater other support to you. Before collecting any sensitive personal information from you we will always make it clear to you what sensitive personal data we are collecting and why. We will also ask for your consent to store and retain this data.
Cookies are small pieces of text stored as a file on the computer’s hard drive. They are used by your browser and by most websites to help personalise or improve your web experience.They are not computer programmes, and they cannot be executed as code. They cannot be used to disseminate viruses or access the hard drives – a cookie cannot read other information saved on the hard drive, or get a user’s personal data. They only contain and transfer to the web server as much information as the users themselves have disclosed to a certain website. If you wish to restrict or block the cookies which are set by our websites, or indeed any other website, you can do this through your browser settings. Please be aware that restricting cookies may affect some of the functionality of our site, although the majority of the site will still be accessible to you.
The Help menu on the menu bar of most browsers will tell you how to prevent your browser from accepting new cookies, how to have the browser notify you when you receive a new cookie and how to disable cookies altogether. Additionally, you can disable or delete similar data used by browser add-ons, such as Flash cookies, by changing the add-on’s settings or visiting the website of its manufacturer. You can find more information about deleting and controlling cookies from the AboutCookies.org website.
We use Google Analytics, a web analytics service provided by Google, Inc. Google Analytics sets a cookie in order to evaluate your use of the Site and compile reports for us on activity to help us understand how visitors engage with the site and track visitor interactions. Google Analytics collects information anonymously and without identifying individual visitors. We do not make, and do not allow Google to make, any attempt to find out the identities of those visiting our website.
As part of the registration process for our weekly e-newsletter, we collect personal information. We use that information to tell you about stuff you’ve asked us to tell you about; to contact you if we need to obtain or provide additional information; and to check every now and then that you’re happy and satisfied. We don’t share this data with any other organisations or businesses. We use a third-party provider, MailChimp, to deliver our newsletter, and a private database Insightly to store data. We gather statistics around email opening and clicks to help us monitor and improve our e-newsletter. For more information, please see MailChimp’s privacy notice and Insightly’s privacy statement. You can unsubscribe to our general mailings at any time of the day or night by clicking the unsubscribe link at the bottom of any of our emails or by emailing us directly at firstname.lastname@example.org. We will hold this information until you request that we update or delete it.
Parkinson’s Life surveys
We will occasionally carry out research surveys with the aim of collecting Parkinson’s-related quality of life information to support our aims and objectives – to improve the lives of people with Parkinson’s, their families and carers. We will never ask for personal information that can be used to identify you. We may sometimes ask for an email address and name solely for the purpose of facilitating you to access the survey. This information will not be sold, given away or used for any other purpose other than facilitating your access to the survey. We may sometimes link to surveys being carried out by third parties. We do not have control over whether these survey sites will collect or use personal information.
Parkinson’s Life sharing tools
We use a number of social media tools in the form of ‘share’ buttons to enable users of the site to easily share articles with their friends through a number of popular social networks. As a result, when you visit a page with content embedded or social media buttons and content, you may be presented with cookies from these websites. These websites are not controlled by us. By using these links, you accept the privacy policies of these websites. These sites may set a cookie when you are also logged in to their service. Data may then be collected by these companies that enables them to display adverts on other sites that they think are relevant to your interests. If you do not use such platforms then our Site will not place these cookies on your device.
We will often post links to the EPDA and external websites through our Facebook and Twitter profiles. These posts will sometimes use the Bitly utility to create shortened uniform resource locators (“URLs” or web addresses). Bitly collects information about accesses (such as clicks) of every shortened URL created through the Services. This information includes, but is not limited to: (i) the IP address and physical location of the devices accessing the shortened URL; (ii) the referring websites or services; (iii) the time and date of each access; and (iv) information about sharing of the shortened URL on Third Party Services such as Twitter and Facebook. These metrics and analytics are used by Bitly and its partners to improve their websites and services by, for example, providing value-added features.
How we keep your data safe
We ensure that there are appropriate technical controls in place to protect your personal details. We undertake regular reviews of who has access to information that we hold to ensure that your information is only accessible by the appropriate Parkinson’s Life team member(s).
We may occasionally use external companies to collect or process personal data on our behalf. On these occasions, we will undertake comprehensive checks on these companies before we work with them, and put a contract in place that sets out our expectations and requirements, especially regarding how they manage the personal data they have collected or have access to.
Some of our suppliers run their operations outside the European Economic Area (EEA). Although they may not be subject to the same data protection laws as companies based in the UK, we will take steps to make sure they provide an adequate level of protection in accordance with UK data protection law. By submitting your personal information to us you agree to this transfer, storing or processing at a location outside the EEA. We will only ever share your data in other circumstances if we have your explicit and informed consent.
Keeping your information up to date
Where possible we use publicly available sources to keep your records up to date; but we would be grateful if you let us know if / when your contact details change.
Your rights concerning your information
You have a right to ask us to stop processing your personal data, and if it’s not necessary for the purpose you provided it to us for (e.g. processing your donation or registering you for an event) we will do so.
You have a right to ask for a copy of the information we hold about you, and will endeavour to provide you with information within 10 working days from your request. If there are any discrepancies in the information we provide, please let us know and we will correct them. If you want to access your information, please contact email@example.com, and we will work with you to verify your identity before providing the information.
If you have any questions, or wish to make a complaint, please contact firstname.lastname@example.org. You can also access further information from the Information Commissioner’s Office here.
Changes to this Policy
Additional cookie notes
Google Analytics cookies
||This cookie is deleted when browser is closed.
||The ASP.NET Session ID is a unique session identifier that is automatically created when a session starts for a given visitor. It is a randomly generated number and contains no personal information.
||Google Analytics randomly generated number
||We use Google Analytics to monitor traffic levels, search queries and visits to this website.
||This cookie is deleted when browser is closed.
||Google Analytics stores IP address anonymously on its servers in the US, and neither CIVIC or Google associate your IP address with any personally identifiable information.
||These cookies enable Google to determine whether you are a return visitor to the site, and to track the pages that you visit during your session.
||Used to distinguish users.
||A system cookie for Google Analytics
||2 years from set/update
||6 months from set/update
|__atuvc & __atuvs
||Addthis (social sharing)
|UMB_UCONTEXT & UMB_UPDCHK
||1 day and 7 days respectively
||These cookies are only for users logged into the site administration area.
|XSRF-TOKEN & XSRF-V
||This cookie is deleted when browser is closed
||These cookies are set from the administration login area as a security measure.