Meet EPDA vice-president Susanna Lindvall as she gets involved in #UniteForParkinsons 2018
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The end of the year is a great opportunity to reflect and look back on highlights from the last 12 months. That said, Parkinson’s Life is still less than one year old, but despite its age we’ve covered an amazing mix of inspiring stories such as the astronaut with Parkinson’s who flew into space, the ukulele-maker in a race against Parkinson’s, and the incredible scientific feat of deep brain stimulation live on the TV for the first time…
As well as providing top tips on wellbeing, the latest research news, essential tools, and international coverage of campaigns from around the world.
So to make sure you, our readers, haven’t missed out on anything, we’ve created a selection of un-missable stories since we launched at the beginning of May. Click the images to read the full stories.
Let’s start with our most read story. Norwegian photographer Anders Leines has certainly gone some way to fulfilling his mission of giving Parkinson’s a “total makeover”. In this interview and gallery, he talks about his exhibition that aims to capture younger, ‘early-onset’ Parkinson’s patients in a series of portraits that are at once poignant and celebratory.
Parkinson’s Cafés are buzzing and it’s not just the caffeine. This Dutch initiative is making a real difference to the lives of people with Parkinson’s, by building a network of friendly, supportive communities across the Netherlands
Sexuality and intimacy are still seen as taboo, and they are especially huge challenges that people with Parkinson’s and their partners have to face. But as specialists Gila Bronner and Orna Moore explain, open channels of communication are essential for a decent quality of life.
This is the incredible story of how one NASA astronaut didn’t let Parkinson’s stop him from entering space once again.
This collection of 24 inspiring, real-life stories of people living with Parkinson’s is downloadable as a free digital e-book, available in English, Italian, German and French. Great for our international audience.
“The mountain is more than physical – it’s a metaphor for reaching goals in health, personal achievement, research, and finding cures,” said Enzo Simone, leader of a group of fearless campaigners who climbed the epic Mount Etna, Europe’s highest volcano.
What if you suddenly couldn’t smile? Or frown? Photographer Chris Crossley captures facial ‘masking’ in this stunning set of ‘Concrete’ images.
In August the Parkinsoniada sports games took place in Czech Republic and saw hundreds of people with Parkinson’s pick up the baton and get exercising. Read this report of the special sporting event by Leszek Dobrowolski, president of Warsaw Regional Association of People with Parkinson’s Disease.
Having been recently diagnosed with Parkinson’s and turning down treatment in the US, luthier Pete Howlett focused all attention on his quest to reach his life target of completing 1,000 instruments – what he considers a “lifetime’s work” – and he’s adamant the disease won’t stop him.
The Parki’s Kookatelier – a cooking guide that provides specialised recipes to help patients overcome chewing and swallowing problems, as well as odour and taste loss – received the royal blessing from the King and Queen of Belgium at its launch in September.
Calling all electronic music lovers! There may now be a good excuse for blasting out your favourite high-tempo dance track. State-of-the-art movement tracking technology is being used to show that music with a strong and steady beat – such as house or techno – could help Parkinson’s patients walk in time.
As part of the Back To The Future Day 2015 celebrations, Nike pledged to donate all money raised from sales of new limited edition sneakers – as worn by character Marty McFly in ‘Back To The Future Part II’ – to Parkinson’s research. Fittingly, Michael J Fox was the first to try them on. Check out that futuristic self-lacing system, Doc!
“As a PT4 paratriathlete it’s an honour to represent GB in the able-bodied World Championships,” Ruth Wilson told us in October before she competed in the Duathlon World Championships in Adelaide, Australia. Ruth represented Great Britain against able-bodied athletes, despite being diagnosed with Parkinson’s disease six years ago.
Clocking up 2.5 million hits, TV programme ‘Brain Surgery Live’ sparked many talking points causing people around the world to take to social media to voice their opinions. We provided a round-up of highlights from social media as the action unfolded in real time.
Live DBS surgery was always going to be controversial – but it’s crucial in educating patients and inspiring the next generation of Parkinson’s disease researchers, argues medical student Justin Rossi.
Amid revelations that Robin Williams also suffered from Lewy body dementia, as well as Parkinson’s disease, before his death last year, we shed light on the little-known dementia, often misdiagnosed as Parkinson’s and described by experts as “the most common disease you have never heard of”.
In this exclusive interview, ultra-athlete Sam Fox recalls his gruelling 14,000-mile odyssey across the US (which has raised more than US$2 million for Parkinson’s research), reminisces about his new favourite states in the US, and reveals why Tour de Fox isn’t over just yet.
The tennis legend John McEnroe was one of the many celebs to pledge their support for the Michael J Fox Foundation’s ‘unselfie’ campaign on social media.
Strength and conditioning specialist Patrick LoSasso leads you through 5 exercises that could improve your Parkinson’s disease symptoms in this step-by-step video.
Our last round-up of top apps for the Parkinson’s community proved to be such a hit that we went and found some more and compiled a new list of free or low-cost digital resources for people living with Parkinson’s, which includes apps for monitoring, treating and streamlining care.
So that’s our 2015 in a nutshell! All that’s left to say is Merry Christmas and Happy New Year!
Enjoyed reading Parkinson’s Life this year? What was your favourite story? What would you like to see more of? Where can we make improvements? We’d love to hear your thoughts and feedback by emailing: email@example.com
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