Medical experts praise Parkinson’s graphic novel

Perspectives

Author: Almaz OhenePublished: 26 January 2017

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

Peter Dunlap-Shohl lead

Graphic novel ‘My Degeneration: A Journey Through Parkinson’s’ by Peter Dunlap-Shohl has been recognised by The Journal of the American Medical Association (JAMA) as “one of the best graphic medicine books of 2016”


The world-renowned Journal of the American Medical Association (JAMA) has praised political cartoonist-turned graphic novelist Peter Dunlap-Shohl for his contribution to the burgeoning ‘graphic medicine’ patient information movement.

The article applauds Dunlap-Shohl for the portrayal of his Parkinson’s diagnosis and subsequent acceptance of the condition. The paper’s authors, Michael J Green and MK Czerwiec, say that the book “is a masterclass in communication that should be read by students and practitioners alike, showcasing the strength of comics at both telling and showing.”

In an early section of the book, Dunlap-Shohl reports on some of the thoughtless and harsh things said by medical professionals. One of the doctors says: “It’s Parkinson’s. But at your age, something else will pick you off before it’s a major problem.”

Instead of becoming defeatist, Dunlap-Shohl’s character takes the situation a step further by offering his own tips and positive spin on how a doctor should deliver a Parkinson’s diagnosis.

170126_PL_ My Degeneration page 10 med res

‘Try this. “You have Parkinson’s disease. A few decades ago, this would have meant a drastically shortened life span and much suffering… We’ve got tools now to manage the disease effectively for years, for decades even. And more coming.”’

170126_PL_ My Degeneration page 11 med res

A later chapter offers the reader a new perspective about how the “mask of Parkinson’s” – when facial muscles become immobilised forcing a blank expression – can leave patients open to accidental misinterpretation. When Dunlap-Shohl’s character is happy, his face can’t form the matching emotional expression, and his words come across as “angry, sarcastic, or something altogether different,” according to Green and Czerwiec. “Interestingly, the medium of comics can remedy this miscommunication, since comics convey words and images, providing the visual cues that propel a story along with its intended emotional tone. It’s a brilliant way to make both points.”

After we reached out to Peter to tell him his work had been highly praised in JAMA, he said: “It was a pleasant shock. Comics have been trivialised for as long as they have been around, so it’s a thrill to see them taken seriously. It’s also a challenge to continue to do meaningful work without losing our raffish, outsider charm.”

The authors of the article added: “As clinicians, we particularly appreciated the generosity of his ample advice – which ranges from helpful tips about exercise to how to walk when stuck (try going backwards).”

Peter doesn’t let his Parkinson’s hold back his creativity and he is currently working on a big piece of comic strip work on Alaska’s nuclear weapons history.

The full journal article, ‘Graphic Medicine: The Best of 2016’, can be found on ‘The Journal of the American Medical Association’ website.


Read more: How this graphic novelist drew through his “intolerable Parkinson’s pain”

‘My Degeneration: A Journey Through Parkinson’s’ by Peter Dunlap-Shohl is available from Penn State University Press

Go Back

Share this story

Comments


  • http://www.ganglbauer.info Gerald Ganglbauer

    There’s only one good thing about Parkinson’s: The constant fight against this damn disease brings our real potential to the surface. Many of us have developed skills they didn’t know they had before, launched projects they didn’t dream of before, and work much harder and more creative than before. Like our life depends on it. And, yes, it does.

  • Pingback: This Week in #GraphicMedicine (1/27/17) – The Graphic Librarian()

Related articles


Santiago-de-Compostela

Perspectives

On the road to Santiago – with just my Parkinson’s for company

Doctor travels 800km on solo Parkinson’s pilgrimage

READ MORE
mPower

Advances

New patient-centred study will harvest data via smartphones

New iPhone app could gather data of 20,000 patients

READ MORE
Finland Unity Walk

Europe

Every step counts: 2,000 people to take part in Unity Walk across Finland

Finnish Parkinson Association has organised a national Unity Walk

READ MORE