“I #UniteForParkinsons because…”

Global update

Author: Almaz OhenePublished: 22 March 2018

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Ander Arnaez

With World Parkinson’s Day only weeks away, members of the international Parkinson’s community tell us why they will #UniteForParkinsons on 11 April


The global Parkinson’s community is coming together on a bigger scale than ever for this year’s #UniteForParkinsons campaign to show what Parkinson’s truly is. Here, people with Parkinson’s – including campaigners, bloggers, inventors and musicians – tell us why they “#UniteForParkinsons”.

Bruce Ballard is one of the World Parkinson Congress 2019 bloggers and lives in New York, US. He uses his blog to promote an “enriched environment” for people with Parkinson’s, including himself, and declares that he will “#UniteForParkinsons” so we can all move forward!”

Bruce Ballard

Ander Arnaez’s granddad’s experience with Parkinson’s inspired him to work with the Parkinson’s innovation company Walk With Path – he has since become strategy, business development and marketing manager. Like thousands of others around the world, he believes in the power of unity: “Our union will defeat Parkinson’s”.

Ander Arnaez

Allison Smith is one of the Word Parkinson Congress 2019 bloggers. She lives in California, US and as the ‘Perky Parkie’ she shares her Parkinson’s journey with sprinkles of humour. She says: “I #UniteForParkinsons because my dog Crash needs me to be healthy and happy! Woof!”.

Allison Smith

Tol Larmour is a drummer from Cumbria, UK who has co-written an ‘anthem for Parkinson’s’. He says: “I #UniteForParkinsons because together I’m stronger”.

Tol Larmour

Inspired by her father’s battle with Parkinson’s, design engineer Lise Pape founded the Parkinson’s innovation company Walk With Path and developed ‘Path Finder’ – a shoe that projects laser lines to trigger walking, which prevents freezing of gait. She writes that she is joining the campaign: “because we all deserve a bright future”.

Lise Pape

Andrew Johnson is a singer/songwriter who has released a Parkinson’s-themed album with the band Affinity Formation. He simply says: “Fix us (please)”.

Andrew Johnson

Elisabeth Ildal is one of the World Parkinson Congress 2019 bloggers and lives in Denmark. She cycles to keep her Parkinson’s symptoms at bay. She writes: “I #UniteForParkinsons because I love my life, my family and all the experiences the future will bring”.

Elisabeth Ildal

American blogger Kirk Hall is a self-styled “grandpa with rapier intellect, wry sense of humour, overactive imagination and mild cognitive impairment”. He says: “I #UniteForParkinsons because PD palliative care is going to make life better for all of us!!!”.

Kirk Hall

Japanese World Parkinson Congress 2019 blogger Tamami Nose feels that her “world has been expanded” since her Parkinson’s diagnosis. She says: “I #UniteForParkinsons because I will be myself”.

Tatami Nose

For comprehensive information about the #UniteForParkinsons campaign, visit the campaign website.

The EPDA and Parkinson’s UK are running the #UniteForParkinsons campaign to coincide with World Parkinson’s Day on 11 April. It aims to inspire Parkinson’s organisations and supporters around the world to come together on a bigger scale than ever to show what Parkinson’s truly is. Get involved on the day by making your own Parkinson’s video and sharing it on social media using the hashtag. For more information, visit the website. Campaign toolkits are available to download in Dutch, English, French, German, Italian, Spanish and Welsh.

Read more: Meet the family members who #UniteForParkinsons in support of their loved ones

Read more: Meet EPDA vice-president Susanna Lindvall as she gets involved in #UniteForParkinsons 2018

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