Free online course: learn how to be an effective Parkinson’s campaigner

Resources & Tools

Author: Parkinson's Life editorsPublished: 30 June 2016

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

Online web course

A new educational course gives people with Parkinson’s and their carers the tools to become better campaigners


The European Patient Ambassador Programme (EPAP) is a free online course for anyone affected by Parkinson’s disease and other chronic conditions. The course teaches patients and their carers the skills and knowledge they need to represent themselves successfully and become involved in advocacy. More than 500 patients have completed it so far.

Divided into seven modules, the programme features classes on how to access reliable information become involved in research and work with the media. There is a new module on participating in healthcare conferences with input from a specialist patient advisory group.

EPAP is open to patients facing all conditions, although they are an organisation specialising in respiratory conditions. The Dutch-language EPAP launched in Amsterdam at the European Respiratory Society (ERS) Congress in February and there are plans to translate EPAP into further European languages, with Italian and a French versions launching later in the year.

The EPAP website also contains further resources in additional languages and news on patient involvement.

What does it mean to be a Parkinson’s advocate?

Advocacy – or campaigning – is a way you can make the voice of people with Parkinson’s heard. It helps to increase the power and influence of your organisation. It could be a campaign raising awareness of the need for greater support for carers; or more Parkinson’s nurses; it could be lobbying for a certain drug or treatment to be fully reimbursed. Advocacy is about making a change for the people you represent.

Go Back

Share this story

Comments


Related articles


Sam Fox lead

Interviews

Meet the ultra-athlete who clocked up 14,000 miles and $2m for Parkinson’s

Sam Fox: hiking, climbing and biking my way to raising $2m

READ MORE
Harry Styles Anne Twist

Carers' Corner

Harry Styles is an “absolutely brilliant” carer for his granddad who has Parkinson’s

One Direction star praised for care of granddad with Parkinson’s

READ MORE
Elisa lead

Perspectives

“Nobody ever thought I had Parkinson’s disease – I was just 10 years old”

How one girl has coped with Parkinson's since she was 10

READ MORE