The Brian Grant Foundation
The Brian Grant Foundation was launched in 2010 and with the goal to encourage and empower people with Parkinson’s to be proactive with their care programmes.
Through affordable exercise classes based on the latest research, cooking sessions with experts in nutrition, and emotional support workshops led by mental health specialists, the foundation encourages healthy living for people with Parkinson’s.
Ex-NBA player Brian Grant opens up about his Parkinson’s disease
Author: Parkinson's Life editorsPublished: 16 August 2016
Prep: Cook: Serves:
Brian Grant, 12-year NBA veteran and founder of the ‘Parkinson’s Power Through Project’, describes his battle with Parkinson’s and depression in an emotional article – we pick out some of the highlights
“It started with a twitch. Just a little patch of skin on my left wrist that would twitch every so often. I’d had twitches before from previous surgeries, but this one was different: it came out of nowhere,” writes retired NBA star Brian Grant in a moving piece for The Players’ Tribune.
In a situation that will be familiar to many living with Parkinson’s, Grant recalls how he “didn’t think much of it, at first.” In 2005, however, after numerous appointments with neurologists, Grant received a definitive diagnosis: “I was 36 years old, one of 400 people to have played in the NBA for 12 seasons, an elite athlete. And I had young-onset Parkinson’s disease.
“Retirement, divorce, depression, now this. I wasn’t angry, I wasn’t sad, I just wanted to know what was next, and whether this would kill me.”
He admits that he didn’t really know much about the disease – aside from the fact that Michael J Fox and Muhammad Ali both lived with it – and used information on the internet to carry out his own research and learn more about the condition.
He remembers that two weeks after diagnosis he received two important phone calls.
“One was from Lonnie Ali, Muhammad’s wife. She wanted to know how I was doing, not just with the Parkinson’s, but with everything else in my life. She said that just because I had Parkinson’s doesn’t mean I could ignore everything else that was stressing me out.
“The other was from Michael J Fox. For a while, though, I wasn’t quite sure how I wanted to fight. The Michael J Fox Foundation already does a wonderful job with research. The Ali’s are at the forefront of patient care in Arizona.”
Grant later launched his charity, the Brian Grant Foundation, and says that the ethos behind it stems from those two phone calls he received post-diagnosis.
Despite his status as a famous elite athlete who was used to dealing with being in the spotlight, Grant became very self-conscious when it came to his physical symptoms that he would try and hide out of embarrassment.
“Twenty-thousand fans stared down at me, cheered for me, and all I could think of was hiding my hand”
“It was unnerving to go to any event, because I was so worried about how I looked. In 2008, I went to a Portland Trail Blazers game for Kevin Duckworth’s memorial. Twenty-thousand fans stared down at me, cheered for me, and all I could think of was hiding my hand,” Grant writes
Grant acknowledges that medication doesn’t work in the same ways for everyone, but advises readers that “exercise like yoga and pilates, as well as being conscious about your nutrition, is going to positively affect the way you progress.”
The piece ends on a positive note, with Grant admitting and accepting the changes that his Parkinson’s has caused.
“The hardest part, for me, was losing my ego. I’m so used to being fit, toned and in control. Now I’m losing control, and I have to do that with dignity.”
The Brian Grant Foundation
Read the full article here.
Lead image credit: The Players’ Tribune
Share this story
Michael J Fox Foundation CEO hails advances in Parkinson’s treatment
The MJFF’s Todd Sherer discusses advances in Parkinson’sREAD MORE
Are impulse control disorders the last Parkinson’s ‘taboo’?
New PD guidelines updates focus on impulse control disordersREAD MORE
‘7 Years of Camera Shake’: photographer with Parkinson’s publishes inspiring coffee table book
David Plummer describes his journey as a wildlife photographerREAD MORE