Campaigners publish top priorities for Spain’s policymakers in ‘White Book’

PD in Practice

Author: Geoffrey ChangPublished: 19 June 2015

Parkinson's LifePrep: Parkinson's LifeCook: Parkinson's LifeServes:

White-Book-launch

Publication highlights the changes needed to provide better care

Two years after meeting with healthcare professionals and industry representatives, the Spanish Parkinson Federation has officially unveiled the ‘White Book’ – an evidence-based publication to guide decision-making in Spain.

Developed with support from the European Parkinson’s Disease Association (EPDA) under its STRONG initiative, the publication signifies an important step in the development of the Spanish group in terms of its awareness-raising activities.

Over the last two years, the Spanish organisation has been gathering evidence to put forward a new ‘approach, analysis and proposal’ to tackle Parkinson’s in the future and influence decision makers. The result of that meeting is compiled in what is being called the ‘White Book of Parkinson’s in Spain’ (El Libro Blanco del Párkinson en España).

The book will primarily be used to engage with national policymakers and highlight the changes that are necessary to improve the care of people living with Parkinson’s throughout Spain, ensuring they get access to the right treatment at the right time.

María Gálvez Sierra, director of the Spanish Parkinson Federation, said: “The launch of the ‘White Book’ is an important step for us towards the creation of new policies and strategies to improve the situation of 160,000 families who are living with Parkinson’s disease in our country.

“The STRONG project was the boost for the creation of this book. The EPDA knows the challenges that Parkinson’s organisations face in Europe – that’s why they supported the book from the outset.”

The official launch took place on 16 June at the Ministry of Health in Madrid, and the book is available online in Spanish here.

Susanna Lindvall, EPDA vice-president, said: “We’re delighted about the launch of the White Book project. The teamwork between the Spanish Parkinson’s Federation, national healthcare professionals and the treatment industry companies should be the benchmark for all countries around the world. This ‘White Book’ is the perfect example of what can be achieved when we work together.”

Go Back

Share this story

Comments


Related articles


Brain-Surgery-Live

Special reports

“Brain Surgery Live is a modern medical miracle the public deserved to see”

Exposure for such modern miracles is crucial, argues Justin Rossi

READ MORE
Portland Sleep and PD

Resources & Tools

Trouble sleeping? Listen to a free podcast about sleep and Parkinson’s

Discussing a common nocturnal nemesis for people with Parkinson's

READ MORE
Mike Bell poet lead

Perspectives

Why I promise to make poetry, not Parkinson’s disease, my daily challenge

Parkinson’s poet crafts a piece per day for year-long project

READ MORE