6 free guides to help raise awareness of Parkinson’s disease

Resources & Tools

Author: Parkinson's Life editorsPublished: 4 May 2016

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EPDA Toolkits lead

Are you part of a Parkinson’s patient organisation and want to raise its profile but don’t know how? Then these six ‘toolkits’ can help with many aspects of Parkinson’s advocacy


Developed by the European Parkinson’s Disease Association (EPDA), the following toolkits are a set of six free downloadable resources offering practical advice and guidance on a range of topics, from how to handle the media, to developing a successful advocacy campaign – and even how to organise your own Unity Walk. Read on for a brief summary of each toolkit and links to download.

1. Want to fundraise, but don’t know where to begin?

Fundraising opportunities can be overwhelming for any organisation, whether you’re just starting out or a more experienced advocate. This guide to fundraising aims to make the fundraising process as straightforward as possible for your organisation.

Divided into sections such as ‘Applying for a grant’ and ‘Developing a fundraising strategy’, this toolkit features advice on how to successfully fundraise for projects while keeping the running costs of your organisation in check.

EPDA Guide to FundraisingDownload the ‘Guide to fundraising’ here.

2. In the media spotlight

Planning a media campaign and dealing with the media can be a simple process if you are well prepared. Advice on the key stages of the media relations process, from targeting the right journalists, to engaging the right clinic experts, are set out in accessible sections.

EPDA Guide to working with the mediaDownload the ‘Guide to working with the media’ here.

3. Dealing with pharmaceutical companies

This toolkit gives top tips about best practice and explains how commercial support and sponsorship are important for developing positive working relationships within the treatment industry.
EPDA Guide to working with the treatment industryDownload the ‘Guide to working alongside the treatment industry’ here.

4. How to build social media networks

The emergence of social media can appear both exciting and daunting for voluntary organisations that are not used to it. This resource helps to ‘de-mystify’ social media platforms and explains the differences between Facebook and Twitter, both powerful tools for getting your message out there

EPDA Social Media ToolkitDownload the ‘Guide to working with social media’ here.

5. How to develop and execute an advocacy campaign

This advocacy toolkit is designed to help Parkinson’s organisations develop, plan, prepare and execute an advocacy campaign that could shape health agendas on a national scale. This guide is also available in Spanish.

EPDA Advocacy ToolkitDownload the English language ‘Guide to developing an advocacy campaign’ here.

6. Every step counts

Organising an internationally recognised Unity Walk for the first time can seem daunting – particularly if you are part of a smaller organisation without any experience of planning and running major events.

One step at a time, this guide offers comprehensive advice on how to organise your own sponsored walk and also includes all the practical resources needed – such as a budget sheet, post-event questionnaire and forward planner – to ensure that the event is successful.

EPDA Toolkit Unity walkDownload the ‘Guide to organising a Unity Walk here’ here.


Explore a host of further EPDA resources here

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